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Why can’t they treat my Lymph node PCa

User
Posted 08 Jan 2024 at 13:25
Good luck Phil. Always thinking of you friend 💪☺️
User
Posted 08 Jan 2024 at 14:13

Hi Phil, 

Thinking about you, the stress times are hard going aren’t they. Let us know how you get on.

Leila 

User
Posted 08 Jan 2024 at 20:01

Hi Goalhanger,

You have nothing to apologize for, and you are not being selfish by being concerned about your own health.  Why shouldn't you be?  Yes, it's good to be glad for every day that we live, but if we're enjoying life then we want it to continue.  So, anything that reminds us of the precarious nature of our existence often brings on anxiety. 

Be kind to yourself.  Hope all goes well at your review.

Best wishes,

JedSee.

 

User
Posted 09 Jan 2024 at 09:49

Stay strong Phil.  Good luck for Thursday, we’re all there for you.

Ange x

User
Posted 09 Jan 2024 at 10:16

Thank you so much for your lovely messages of support. Really appreciate it and it does help. 
On my last counselling session we talked about being kind to yourself. My first counsellor told me that, and I don’t think I really understood what she meant. I think I finally got it on that last session with my next counsellor . I have to accept I’m not perfect and make mistakes. I think I’ve always thought more of other people and not myself. So maybe it’s time to be a little bit selfish ….. 

Thanks guys. I really appreciate the support. 

Take care

Phil

User
Posted 09 Jan 2024 at 13:21

Counsellor is right, unless you are able to care for yourself, then you can’t really care for others. Might sound selfish, but in reality it isn’t, it’s quite the opposite. 

User
Posted 09 Jan 2024 at 18:07

Hi guys I went to hospital today and told them I needed a blood test for my appointment Thursday… she looked at my form and said this is for July and it’s not for your consultant 🤦‍♀️… I looked again and realised it’s for ED clinic…. What a wally… 

The letters all look the same and it’s hard to tell what they are for… 

So, haven’t got my consultant appointment yet , gotta wait some more…

User
Posted 09 Jan 2024 at 18:27

Originally Posted by: Online Community Member

 🤦‍♀️… I looked again and realised it’s for ED clinic…. What a wally… 

At the ED appointment, let's hope it'll be more a case of.... What a willy!.... 😁

 

 

 

Edited by member 09 Jan 2024 at 18:43  | Reason: Not specified

User
Posted 09 Jan 2024 at 21:07

 

At the ED appointment, let's hope it'll be more a case of.... What a willy!.... 😁

🤣🤣

User
Posted 31 Jan 2024 at 14:28

So, latest update from my consultation yesterday. 
PSA has gone up to 5 from 4 so not so good. He told me I have spread to my spine and some ribs, which is slightly worse than the last scan in June. We didn’t know about this spread as I told them I didn’t want to know but he told me this time. 
Interestingly the cancer in my lymph nodes has shrunk a little. 
No mention of any change of meds except Dexamethasone replacing Prednisone because of my tiredness. 
So obviously the Abi + Zoladex isn’t working too good. 
So if I still have cancer which is responding to testosterone would it be a possibility to have the Op - you know the one where they mess with your balls so no more testosterone??? Not something I would like but if it gives me a year or so then maybe … ! 
Was a bit down last night and couldn’t sleep but bit brighter today 👍

Take care everybody

Phil

User
Posted 31 Jan 2024 at 15:10

That’s not so good Phil, the op you’re talking about I think is more common in India, as the medication is too expensive for some men there, but maybe it can be done here. 
I'm keeping my fingers crossed it’s a blip. Maybe think about some of the supplements and stuff we talked about, just a thought. It’s helped David immensely. 
Take care.

Leila.

User
Posted 31 Jan 2024 at 15:22

Hi Leila, I will definitely be looking at the list David sent me. I’ve already started the pomegranate juice 🙂. I did look before but I’m not very good at keeping a regime. 😬


Although I was half expecting this it still kinda gives you a shock . I was quite surprised I didn’t burst into tears but my consultant was so upbeat . Said the increase in PSA was a small jump … 

Just a quiet day today  gathering my thoughts. We have so much we still want to do. 

Thanks 

Phil

User
Posted 31 Jan 2024 at 15:24

New Avatar is me and the missus on the paddle steamer last year. 

User
Posted 31 Jan 2024 at 19:03

Hi Phil, Nice photo of you and your lovely wife.  Sorry to hear about your results, not surprising that you felt down yesterday after receiving them. As we say, tomorrow is another day and you can feel different.  Keep planning your trips to Jersey to see your family/Grandson and do as much as you are able to do.  Thinking of you, take care.

Ange xx

User
Posted 31 Jan 2024 at 19:47

Hi Phil,

The op you’re thinking about is an orchidectomy. I’ve been reading through your profile and this thread Phil, and am sorry after everything you’ve been through that the results are not as good as you hoped.

If I’m ever in a position where I face a lifetime of HT I would seriously consider orchidectomy. If you’ve followed my journey you will see that Prostap certainly DOES NOT agree with me and I did wonder if switching to Zoladex would improve my side effects, although my CNS told me that Prostap was one of the kindest for side effects! Scary😱 

Some people say that it’s the lack of testosterone rather than the drug itself  that causes the side effects but I’m not convinced.

One thing that this disease has taught me (for the better I might add) is to enjoy every day as best you can and I’m pleased you are doing that too. Spending time with my family is so important to me and I’m lucky(some might say unlucky!🤣🤣🤣) that we have my son and our 2 grandsons living with us part of the time. It keeps my wife and I very busy and the laundry is through the roof, but you know just having them around has helped me get through this.

All the best,

Derek

User
Posted 31 Jan 2024 at 20:15

Hi Phil, 

David’s regime isn’t too painful honest guv 😉 I’ve sent a msg to your inbox.

User
Posted 31 Jan 2024 at 20:48

Originally Posted by: Online Community Member

Hi Phil, 

David’s regime isn’t too painful honest guv 😉 I’ve sent a msg to your inbox.

what do you reckon is the best pomegranate juice Leila?

User
Posted 01 Feb 2024 at 13:03

Originally Posted by: Online Community Member

Hi Phil, 

David’s regime isn’t too painful honest guv 😉 I’ve sent a msg to your inbox.

Hi Leila, thank you but not seen anything in my inbox yet .. 

I think my reticence is because every time I take my pills I am reminded of what’s going on. I need to get over that and I will definitely take a look at what I can do to help myself. 😁

Phil

Edited by member 01 Feb 2024 at 13:04  | Reason: Not specified

User
Posted 01 Feb 2024 at 13:22

Originally Posted by: Online Community Member

New Avatar is me and the missus on the paddle steamer last year. 

Fabulous photo Phil. It's nice to meet your wife. 

PS: I hope they're not concrete steps you're sitting on. My mum used to say to us as kids, "Sitting on cold floors causes piles." I wonder if I could get her to join the forum, and impart more of her medical expertise.

Edited by member 01 Feb 2024 at 14:33  | Reason: Additional text.

User
Posted 01 Feb 2024 at 13:41

Sent it just now. Leila 

 
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