Why can’t they treat my Lymph node PCa

It’s great to hear how well you’re doing Phil.  Not only coping with the treatment but carrying on with everything else.  I noticed when Keith was having chemo he had days when he was knocked out but made up for it on his better days.  Amazing where this inner strength comes from.  Pleased to hear you’re coping with the cold cap, I don’t think Keith would’ve been happy to lose his full head of hair.  Keep going Phil, your amazing!!

Enjoy the match tonight and then England -v- Serbia on Sunday night too.

Ange x

Great to see your update Phil. And thanks for the reminder, I need to cut my grass too!

Still got my fingers crossed for you 🤞🏻

Keep going and keep us updated with your progress 👍🏻

Good luck. 

Kev.

Hi 

2 down,keep it up and try not to overdo it trust me I know from experience.

Take care Phil 

Have a great time with your pals Phil. Friends are so important.

So 3rd Chemo passed without any issues. Except they didn’t get my cold cap sorted and i gave up trying to get them to get it. 

I also asked them if i could stop my Dexamethasone tablet in the morning as it was prescribed by Oncology before the Chemo. Oncology told me to ask the Chemo and they said it’s ok to stop it. So I’ve been taking it for no reason since May. Hope fully i may lose some of the weight I’ve put on now as im sure its down to the that.

Also asked for a record of my recent PSA results. So just before i started chemo in May it was 13.47 which was quite a jump from 9.84 in April. 11th June it went up again to 18.66 then up again slightly on 2 July to 18.85. Can’t help worrying even though they told me this happens and not to worry.

You may recall we had a wedding to go to in the US in August , well as you can guess my Onco said not advised and so we had to cancel flights and hotel. I logged into BA and cancelled the flights and got back all but a small cancellation fee plus 150,000 Avios and a companion voucher. Not sure if it was because we are executive club members or not but it was very easy to do so that was good. We lost one nights charge for a hotel for cancelling and couldn’t claim it back on insurance as it was under my PCa excess.

But we still got another wedding in September down in Ilfracombe so gonna make that a whole week down there. And we also need a week oop North to visit the wife’s brother. 

Been outside this morning sorting out a lock on the side gate. Need to ransack my shed now to find a flat plate to screw on for the bolt….. or I’ll have to flatten one out from something and paint it. No peace for the wicked…!

Hope you guys are all doing ok ? Shorts on today as weather nice although gonna rain all day tomorrow.

Take care 

Phil

Hi Goalhanger,

Sorry to hear about the Covid.  Hope that you're both feeling better soon.

Best wishes,

JedSee.

That's great news Phil,that's what I like to read.

Phil 

Fantastic news Phil!

That should make the wine all the more enjoyable. 

Long may your response to treatment continue 🤞🏻

All the best. 

Kev.

That’s brilliant news Phil.  Keep setting your sights high - can certainly recommend Las Vegas/New York trip.  One of our most memorable holidays.

All the very best to you and your family

Ange x

Hiya guys. Woke up this morning and my mouth is a teeny bit better. Wifey bought me some stuff to wipe round your teeth for dry mouths and it seems to help a bit. Still didn’t have any dinner last night though. 

Well Spurs didn’t help me feel better did they … Not the easiest team to support… 🤦‍♀️. 

Regarding my sessions… i actually assumed 10 sessions. I can’t recall if they actually said that or I just assumed. If so I’m halfway through. But certainly next session I will try my best to drink cold drinks to alleviate the metal mouth. Frozen fruit is too cold and hurts my teeth. 

Doing some painting indoors today. Did the filling round the edges yesterday. Just taking my time so I don’t get knocked out. 

Last weekend was the wedding we were meant to go to in Maine. Our youngest was best man. So sad we couldn’t go. We were meant to be in a place called Boothbay Harbor right now staying in a hotel built on a pier. One of our favourite places and we don’t often do places more than once. Hoping we can get out and about in the New Year.  🤞 Can’t believe it’s only just over a year ago we were up the Mississippi on a paddle steamer. 

Anyways, thanks for your support guys. It’s great to know you’re all there 🤣. Brings a tear to my eye 🥲

cheers, take care

Phil

Well here we are again, sitting in me lounger at the Spa - oops in mean chemo department… Just had my first cup of tea and a kitkat 😁

I’ve also got ice poles in a thermos to suck on to hopefully help with the metal mouth. Fingers crossed it helps as we’ve got some meals out booked 🥴. Fatigue and ankle swelling no worse, which is good. Getting a little bit of tingling in my left foot which is obviously not so good but so far I only really notice it at night. So I put Savlon on which seems to help a bit. Hoping it doesn’t get worse. I’ll mention it to Consultant next Tuesday when I see him F2F. Hair not really growing much but stopped falling out now. Haircut tonight - she hasn’t got much to do 😬… When I see consultant I will ask about my white and red platelets. I’d like some guidance on when I can fly again as we’d like to plan something for early next year. We’ve got 2 BA companion vouchers but one runs out 6th May…. 
One other thing is I’ve just had a few days of not dropping off to sleep very quickly. Normally the Mirtazapine kicks in perfectly. Unfortunately when I don’t go off I often start ruminating about my childhood stuff which is not so good. Was hoping my counselling would help me to stop thinking too much about it but even though she got me more sessions we run out in the end. So gonna start taking my Mirtazapine a bit earlier and see if that helps. 

Booked up a long weekend on a Norfolk Broads cruiser in October so hoping I’ll be ok for that. Let the others do the hard work and I’ll play on my fatigue a bit 🤣🤣 while I sit and eat nibbles and watch the world go by. 

Been keeping busy at home. Had downstairs ceilings flattened Monday and  yesterday while I carried on painting the walls where I could get to . Got a week or so now before ceilings can be painted. Got plenty of other little jobs to do. 

So, still presuming I will be ok for the full 10 sessions. They just asked if it was my last one. I told them I see my consultant Tuesday so I’ll know for sure then. 

Keep going guys, 

Phil

Edited by member 04 Sep 2024 at 13:50  | Reason: Spelling, grammar and additions

Hi Phil, 

Great to see you're still powering through with your treatment, and all the DIY jobs. 

Have you got a captain's hat for your cruise? Let your ship's crew who's boss eh.

We've got our fingers crossed for you 🤞🏻

Cheers, 

Kev.

Leila, I think I’m booked up for at least the next year 🤷‍♂️, especially at the speed I go at 🤣. Try to pace myself or I knock myself out .. It’s difficult as once i start I don’t like to stop… Been sanding this morning so sat watching Para Olympics now for a bit before I crack on again. 

Kev, I’ll need me captains hat won’t I so I can give the orders 😁. Against my advice we got a longer boat which will be harder to manoeuvre in tight spaces but the others wanted more room inside. We’d have still got separate en suites with the smaller boat but I was outnumbered and we went up from 35’ to 44’ and no bow thrusters to help steer… 

First day after chemo and mouth seems ok so far, fingers crossed. No tiredness as yet but we’ll see how it goes coming week. Nervous wait for my blood test result next Tuesday… 😬. Seeing my consultant face to face so got some questions for him. 

Take care guys, best of luck to all of you 👍

Phil