Why can’t they treat my Lymph node PCa

Hi guys. Next consultation is only hours away now so been a bit fretful. It’s a 4pm appointment so will likely be late as well . 
Hoping for the miracle of a steadied or reduced PSA but not really expecting it. 
Not sure what we’ll do if it’s gone up again. Dont know how far it will have to go up before Docetaxel is brought into play. 
Just gotta wait now . Trying to keep busy and not think about it 😬… 

Take care chaps

Phil

I’ll be back on tomorrow. Not good news at the hospital today. 

Phil

I’m really sorry to hear that Phil. It’s easy to get a bit blasé about PCa when surrounded by other people with the same thing, but it’s actually s***. Update us when you’re ready pal.

Ian.

Thinking about you and yours Phil from us both. 

Edited by member 28 Feb 2024 at 16:55  | Reason: Not specified

Hi Phil,

Give the degaralix a go, as Lyn says it just might do the trick, as for the orchidectomy I can’t really comment, but it’s worth keeping on the back burner and discussed.

Now, more importantly 😉 young man, you have a lovely wife, and she will stand by you, and you her, that’s so special.

The other thing, how can you possibly eat kitkats with coffee, tea  dear boy, tea it’s the only thing  to have with chocolate. 
Coffee, on the rare occasion I drink it needs to be strong, black  and on its own. 

Lots of support on here Phil, we are rooting for you. 

Leila 

Thank you for your lovely messages. It really helps. 

As for the kitkat, well each to their own 🤣 but for me coffee and chocolate is right , tea with hot cross bun or biscuits ….. 😁

My coffee now is Decaf and black. How many ways can cafe staff not understand that. Why is black now Americano 🤷‍♂️. But when I then say Decaf Anericano they say do you want milk with that 🤦‍♀️… 

Does my head in …. 

Coffee anyone ? 
Phil

It is funny really as we wont even be here to worry. Just gotta hope we carry on for a few more years yet 😊

Before i do go I’ll make sure my boys are going to look after the wife and make sure she’s ok although only one of them lives here in the UK the other on lives in Jersey. My daughter in law in the UK is magic and i know she’ll always be there for my wife.

It is an odd feeling as i will probably go before my Mother in law as she is only 18 years older than me  …. My dad was a B*stard to me all my life but he managed to get to 94 which i must admit to feeling is a bit unfair …. 🙄

Anyway just waiting till Thursday for my first Degarelix injections and hoping it will give my system a boost and get the Abi working for a living !

Also having just moved back to Mirtazapin i am feeling much brighter and sleeping better. I also seem to have much more energy although my Consultant changed the Steroid to Dexamethazone because of my sleeping/energy levels.

Take care everyone,

Phil

Edited by member 04 Mar 2024 at 11:51  | Reason: M

It’s great to hear you sound more positive Phil.  Keith and I are praying for you.  Keep moving forward, you’ve got this!!

Ange x

So just copied this from my post in the Pub thread . Dont want to lose this thread 😬

So didn’t bother with a blood test in the end as was still not sure about consultation date. 
I did email the CNSs and they got back very quick and said no appointment has been booked so they’ll bring it up with my consultant in their meeting with him. 
She suggested I get the blood test done anyway as a walk in so going in Friday. 
Then booked my next Degarelix for 3rd April- my birthday 🤣. But GP says not received my consultant letter yet so can’t authorize getting the Degarelix. So back onto CNS and they were super quick and said they’d send me an email copy plus one to the GPs. So all sorted , or nearly, just my consultation date…  And then after that the bloody letter came in the post 🤦‍♀️

After our lovely day Tuesday I was on a bit of a downer yesterday 🤷‍♂️. I went to badminton but finished early as I just didn’t feel like it. I’d had words with the missus in the morning (very, very unusual!) and apparently I’ve been on a downer for a week or so. If I was at the Pub I’d have gone in the Public bar and sat in a corner nursing a pint of Guinness. 

So gotta get my mojo back , no good being like that. Gotta enjoy our days left..

So this morning booked flights for a wedding we have in the US in August . Got loads of Avios and a companion voucher so booked PE out ( daytime flight)(can’t do economy any more - id end up killing someone)  and Business Club Suite home as it’s a night flight. Club suite is soo much better than the old BA business. And only cost just over £600 for both of us. Result 👍 . Flying same flights as our boy and his missus as he’s Groomsman so that’ll be nice. We have a week out there so although we’ve done that area before we’ll try to see bits we’ve not seen. 

By the way I have noticed my appetite is insatiable at the moment and I’ve definitely developed the fat face. Presumably it’s the Dexamethazone . So need to start exercising some self control over my eating… straight after my next pack of fizzies ! And maybe another biscuit 🤦‍♀️

So, take care guys, I’m afraid Louis Armstrong was wrong when he sang ‘ we have all the time in the world’  it’s more like ‘ Enjoy yourself, it’s later than you think’ by Prince Buster - 🤣🤣

Phil

Thanks guys. 
My neighbour already beat you to it … she said she’ll bring hers over later . I looked at our now huge driveway and said there’s no room… 

I was gonna start my bike yesterday but battery was flat so that’s been on charge overnight so might pop it back and give it a go. It’s an old ‘73 bike so no electric start … so see how I do … ! 

Cheers

Phil

Decho, you lucky man 🤣..

My youngest is like that and when him and his now wife lived with us he always helped me with the cars. He has a Lotus Elise so it was always immaculate.

Ive only got the one bucket and I know I should buy the one with the grit trap in it 😁.

Remember back in the late ‘70s early 80s people used to over polish their cars and go through the paint. 

The first time I took my missus out to meet with my friends the Pub was having a 1600E meeting. She was 15 and very shy and still remembers that evening. 🥰 

Phil

You're bound to feel low Phil. You're one of my cancer heroes on here. I truly admire your resilience and upbeat attitude. Does the scan interfere with your Jersey trip? If not concentrate on rocking that island.

I'm really no hero believe me. It’s just about surviving as best we can. I had a lot of sh*t as a child and I suppose it probably makes you more resilient that you might’ve been. Just keep bouncing back up like one of those Weebles… 🤣

When they phone re the scans I will have to tell them we are away in Jersey and the next weekend away in Exmoor. NOTHING interferes with our holidays… 👍

Phil

I know you won’t think so Phil, but you’re amazing!! Keep the positivity going and enjoy everything you do.  Have a great time with your family at home and in Jersey.

Ange x

Happy birthday for tomorrow Phil. Looking forward to meeting up at the Airport. 

Thanks for the tips re eating out in Jersey, much appreciated. 

I agree with Decho, travelling also gives me something to focus on and look forward to. 

Good luck. 

Kev.

Edited by member 02 Apr 2024 at 14:12  | Reason: Added note

So! You were going to sort out the MiL Phil?  Good luck with that one!🤣🤣🤣