Why can’t they treat my Lymph node PCa

User

Posted 04 Jun 2025 at 10:44

Yesterday on the way back from hospital my missus said would I mind if she got some fish and chips . I said of course not and id have a pie as I still can’t face fish. She picked it up and popped the bag in the footwell where I was sat, but as soon as the smell wafted up I was gagging. Luckily we’re only 2 minutes away. So I survived with the windows open. But we got indoors and I think I vomited every bit of liquid in my stomach up. It was so awful and the missus had to eat her tea in the conservatory so I couldn’t smell it.

No one in my hospital team seems that bothered by this. Palliative nurse has tried a few things but nothings changed…

I know they are just trying to keep us alive but they should understand ‘quality of life’ as well. It’s really getting me down as I used to love nice food and going out. The manager of one of our favourite restaurants actually WhatsApped to see how I was yesterday. How nice is that .

Anyway… off to the hospital later .

Take care

Phil

User

Posted 04 Jun 2025 at 12:13

Hi Phil,

So sorry to see that you're having such a rough time, it must be horrible for you and your family. I can only hope that your hospital visit brings something positive.

All the best.

Kev.

User

Posted 04 Jun 2025 at 20:46

So sorry things are so difficult right now Phil. Surely the medics can address these issues.

User

Posted 05 Jun 2025 at 09:23

Hi Phil

Feeling your pain.So frustrating to tell people how your feeling when its hard to put into words,I do not want to sound harsh but you do feel like a number or a statistic sometimes,it seems like the right arm does not know what the left arm is doing in your case.

Hoping you get things sorted and treatment resumes.

Stay strong 💪 Phil

User

Posted 05 Jun 2025 at 09:32

Hi guys. Thanks for your replies. 👍

I have a telephone call with my GP shortly to go over my blood test results. Not sure what she can do other than refer me to some kind of specialist. I trued a toasted ham and cheese last night and had one bite and was vomiting my stomach up again…

Had my Radium yesterday as my consultant said it was ok. Just stop the calcium 3 days after and 7 days before…

I will keep you posted.

Cheers

Phil

Edited by member 05 Jun 2025 at 09:44 | Reason: Not specified

User

Posted 05 Jun 2025 at 09:55

Glad you got the Radium sorted Phil, but very sorry to hear about your struggles with food, that must be miserable.

Try and stay positive mate. You are one of the most positive and resilient people on here 👍

Ian.

User

Posted 05 Jun 2025 at 10:47

Hi Phil

Over the past couple of years, although we've never met, you've become a true friend. I hate to see you struggling, and wish someone would get their finger out and make things easier for you.

User

Posted 05 Jun 2025 at 10:48

Cheers Ian, Adrian

I just had my telecon with my GP and she was really thorough .
it appears my CRP has gone up from 20 to 62 in a couple of days. CRP is a measure of an infection. So another blood test now …!
Hopefully I’ll have some answers before I see my consultant in 2 weeks.

Phil

Edited by member 05 Jun 2025 at 10:51 | Reason: Not specified

User

Posted 05 Jun 2025 at 18:56

You’ve really been through the wringer my dear. I don’t post too much, as busy in the garden, we have rain today so I’ve caught up a bit.
I hope you’re consultation gives you some answers and a plan.
Hope the new kitchen is looking good, we’ve had a bit of decorating done, still got a few outside things to achieve, a room for my gym and our conservatory leaks, it’s made of oak and needs some serious TLC, finding someone to do it isn’t easy.

David’s got his PSA soon we never lose that stress feeling I hate PSA week.

Take care Phil.

Leila

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