Why can’t they treat my Lymph node PCa

Hi Guys, its me again… 

Just got back from a night away in a swanky hotel with the missus for her 60th birthday. We set off home straight after breakfast as she is working this afternoon. Well we got about 200 yards and i had to stop as i felt sick, and ended up barfing my full English over the Rectory wall with a builder looking on. He’s probably thinking I shouldn’t have drunk so much last night , which I didn’t by the way. The missus drove home. Ive been getting this a little while now, not every day and not often fully sick. I will be mentioning it to the consultant next Tuesday in case its related to one of the pills I’m taking.

I’m also getting some fatigue like I’ve never experienced before even on the Prostap or Zoladex. So exhausted i can barely walk and just need to lay down for a couple or 3 hours. Not every day but fairly often now. I’m hoping this will pass eventually but I’ll mention this also. I really don’t want to have to change off the Abi now as it’s reducing the options i have left. It’s getting me down a bit although wont mention this to the missus.

Hotel was lovely by the way, service was perfect, room was excellent albeit it a bit noisy ( thanks to the upstairs guest who decided to start talking at 3am and TV on loud at 6am). It is in a Suffolk country village renowned for its medieval architecture and all that stuff. We had half a day and the night and it was interesting but we are city people really. We love the buzz of a city and we also love the sea/water. We had to dodge all the couples in their funny hats, walking boots and hiking sticks studying the plaques on the walls saying how old the houses were ……. Each to their own 😄. Apologies to those reading who own funny hats, walking boots and hiking sticks 🤣. I probably looked well out of place in my polo shirt, shorts and white trainers…. 🤷

Take care everyone, I’m sure i will be back again with some comments about Life, The Universe and Everything…

Phil

Morning guys, saw my consultant yesterday and my PSA has dropped to 7 from 9.3 2 weeks ago. So well pleased, was prepared for the worst. I nearly burst into tears… in my head I was even thinking about my funeral 🤦‍♀️
Still keeping me on 2 weekly visits and tests for a while yet as Testosterone is still not as low as it should be. So hoping that will drop soon. Only been on the Abi 26 days.

My other readings are all ok so far, like liver and BP so that’s good. Just the random fatigue being the only side effect that I notice. 

Take care peeps
Phil

Congratulations, great news.

Congratulations good news long May it continue 

ann

My fortnightly update : PSA now gone down to 6.1 ( from 7, 2 weeks ago and 9 2 weeks before) so 9 to 6 in 4 weeks not too bad. Feeling very relieved as I was worried the last drop was going to be a blip. 
Testosterone also dropping now , so the Abi definitely doing something. Blood pressure perfect and no other issues to worry about. Still keeping me on 2 weekly checks for a while though. Just a pain going to hospital for blood test, then back again for consultation and then again to pick up more tablets, every 2 weeks. But I’m not complaining, really 😁. Just hoping that things progress so I can get back to 3 monthly checks as every 2 weeks can be quite stressful. 

I did ask about my new lesions , and said I wasn’t sure I should know or need to. She said I don’t need to know , just that the treatment is working. I suppose she’s right really. I’d only worry if it was now in my bones or even elsewhere.

On the grandson front we are still waiting. Due date tomorrow. I just phoned them and they are on the beach having a swim. Hopefully he will pop out this weekend and we can get some flights sorted and be out there Sunday or Monday to see the new addition to our family. Keeping fingers crossed they add Jersey back into Southend airport soon. It’s only 20 mins away whereas Luton is a s*** hole airport and takes over a hour by car (then of course there’s the exorbitant parking fees).

Anyway it looks like the weathers taking a turn for the better now so gotta enjoy it while we can. 24.5deg in my car yesterday…. ☀️ 

Hope everyone is ok out there ?

Take care all of you. 
Phil

Edited by member 10 Aug 2023 at 17:27  | Reason: Added new lesion information.