Why can’t they treat my Lymph node PCa

Ditto from me Phil.🤞

(Thanks for the reminder Chris, I'm getting a memory like a sieve!)

Thank you guys and gals , really appreciate it 👍

Lunch finished , missus back to work , so on with the jobs. 

Phil

I'm so sorry that the results weren't what we all wanted. Stay strong mate.

Thinking of you and your family Phil.

Leila 

A question : At my last appointment the consultant told me to stop the Abi but continue the Degarelix. I was a bit caught out and didn’t ask what’s the point of continuing with the Degarelix. Anyone any idea why? Is that normal? 
Also after the chemo is finished do you normally come off the Hormone meds completely? 
And the steroid ? 

Thanks

Phil

Hi Ann, I presume they are expecting your husband to respond to the Enza whereas my Abi doesn’t seem to be doing anything. 
Wish I could always think of those questions when you’re in there with the consultant. I’ll just wait and see what the chemo nurse says when I speak to her on the 17th. 
Best of luck to your hubby on the enza hope it keeps the horrible beastie away for many years 👍

Phil

Really sorry to hear about your results Phil. I can’t comment I. The treatment but I wish you well for you next treatment and will keep everything crossed for you🤞🤞🤞

Great attitude BTW, live life to the full!

Derek

Only just seen your post Phil, as I was away all week and not on here much. Really sorry your results were bad mate. Keep being positive, and I’ll no doubt catch up with you in Adrian’s “pub” 👍

Hey Phil, 

Great to see you've got some good stuff to look forward to 👍🏻

If you're taking the ferry tomorrow, don't forget to get a seat at the captain's table  😁

Looks like you'll have a great day in the French sunshine. 

Stay strong mate.

Kev.

HI Guys. So the day of my first Chemo has arrived. Bit nervous as to how I’ll cope with it , including the cold cap. I’ll keep a diary of the effects, feelings etc. The nurse told me they’ll give me a diary to keep track of everything. 

I’m hoping I can come off the Dexamethazone and just have the Prednisone for the Chemo. But I have a feeling all they will do is add the Prednisone for the 3 days prior, during and after the infusion. The dexamethazone has really done the Steroid number on me… Fat face and bloated belly plus a ridiculous appetite…

I will keep this thread updated with the chemo journey and try to keep Adrian’s Pub thread for other chatty stuff.

Take care ,

Phil

Cheers guys, sitting in me chair right now having the infusion.

Cold cap ok, as has been said first 15 mins are the worst then it’s fine. Had to be disconnected for a minute as I needed a wee. Waiting to go back on the mains 😳… 

For some reason I’m really hankering after a takeaway … maybe im just a greedy b****** 🤷‍♂️.

Phil

Good morning everyone. Well had a good night although I did have to get up twice for wees. Usually i don’t need a night wee , just occasionally one time. 
Also had 2 soft number twos. So we’ll see how that goes today. 
Otherwise feel fine with just a very slight headache above one eye. 
Had all my extra steroids 😳… and the other pills including the anti nausea one. 

So we’ll see how the day pans out. 

Gotta make sure I fill out the diary book they gave me. 

Been checking what I can and can’t eat and had to stop myself having some lovely Cornish ice cream my DiL brought over Sunday - gutted… 😞 

Cheers people, hope everyone is doing well?

Phil

Adrian, you can be a Mother Hen if you wish. I think we all need a Mother Hen in our lives 👍. Thank you for thinking of me .

Yes slept well , just had a couple of wees to take care of. Not my usual straight through till 7.30-8. 

So far so good with side effects. Sat here after watching catch up of the F1 on Sunday and didn’t fall asleep 🤷‍♂️…

Out to the garage now with my multimeter to check my speaker drivers now they’re out of the cabinets. Then it’s online to order new Capacitors and resistors and some new internal wire.

Take Care buddy 

Phil

Hi Phil

Good to hear your over the 1st hurdle,had my 7th cycle last wednesday,I get the sharp headaches over the eye which lasts a few seconds,not been sleeping 2 well last few nights a lot more growing pains in the legs and arms but if it's the price to pay I'll take it,last stomach self injection today as a gauge I find that things start to get a little better day by day from now on.

You may feel a little rough over the next few days but by this time next week you'll be jumping and clicking your heels.

All the best Phil 

Hi phil

Injections are to encourage white blood cells to grow to counter the chemo.

All the best 

So a quick round up of how I’m feeling after my first chemo.

Felt pretty good on day 1 and 2. But got the tiredness/fatigue every day since . So needed a sleep in the afternoon . 

Also getting acid reflux on some foods and drink. Had some wine Friday night and was ok other than the reflux. So took a Gaviscon which helped. Also found some foods taste different . Got some small fruit to freeze for the next session to help with the taste buds. 

Also having occasional diarrhoea in the mornings. Hoping that goes asap. 

Still feeling a bit tired after we just had a 2 1/2 round trip to Luton to take our oldest to the airport. I didn’t even drive, and had a kip in the back on the way 🤷‍♂️. 

I’ll be looking for ways to lose weight now as need to try my suits on for the weddings we have lined up - 2 in 2 weeks. 

Hoping I’ll get back to normal now and I’ll be ok till next session. 

Take care guys, 

Phil

Hi Guys. Well still feeling the tiredness a bit. It’s like a could go to bed at any time, shut my eyes and have a sleep. 3 hours yesterday after noon. Still went to bed normal time though. Not having a sleep today though, gonna battle through it.

Getting a bit of aching knees occasionally, but i expect that is more likely the Degarelix, which I had the 4th injection of yesterday. Tummy now a bit swollen and very tender as usual.

I tried to come off the Domperidone as I didn’t think it was doing anything but the next day had the trotters quite bad so back on it again and seem ok now.

Had a bit of a dip mentally yesterday and today. Just not confident the chemo will work as nothing else has worked so far. It’s hard to get out of that mindset once you've gone down that rabbit hole. I know there’s really nothing left if this doesn’t do anything. But I need to man up, its not fair on the missus and it doesn’t help anyway. Need to be thinking of all the things we’ve got planned plus the things we need to plan 😁

Well tried my suits on the other day and, well to cut a long story short I need a new suit…. ! Funnily enough it’s the jackets not the trousers as my new tummy seems to fit in the trousers ok . So a trip to Lakeside or Chelmsford required.

Motorbike saga for anyone that’s interested.

Fixed a blown transistor in the aftermarket electronic ignition which gave us great sparks on all 3 cylinders. Still not starting, so emptied carb float bowls and lo and behold it started and then re started 1st kick. So we permanently fitted the new transistor and closed the cover. Would the little b****** start again - nope. Sparks still good so checked all 3 carbs again….. perfect. So we’re now wondering if the oil pump is oversupplying and killing the sparks. Checked the pump and yep it’s not closing down properly on closed throttle . Run out of time to re run the cables so next weekend we have another job to do.

Speakers.

One tweeter has a blown voice coil but managed to find 2 obsolete direct replacement tweeters in an audio shop in France and I have them now. Voice coil rewinding too fiddly for my ageing eyes now. I have all the replacement capacitors, resistors for the crossover and new internal wiring ready to rock and roll when I have time…..

Hope you are all doing well, keeping busy and things are going to plan for you all ?

Take care 

Phil

Edited by member 30 May 2024 at 10:18  | Reason: Not specified

Morning chaps. Woke early this morning with very bad knee pain. I’ve had it before but this is the worst. 
I imagine it’s the Degarelix causing it. 
Anyone any ideas to alleviate as it’s stopping me going out today. Tried Ibuprofen but not kicking it.

Thanks

Phil

Great update Phil, and great to see that you're cracking on with your treatment.

Also good to see that you're keeping the wine industry in business 😁

Hope you can crack the weeing issue 🤞🏻

Good luck. 

Kev.