Hi since February 2019 it’s been a real rollercoaster trying to be diagnosed, around that time I had an infection so was on antibiotics and doctor did a psa test that came back high I think 9.2 so with a family history my uncle dying from prostate cancer the doctor recommended a mri scan.
June 2019 mri showed T2 possible local prostate cancer so the doctor referred me to the local hospital urology department, went to see the consultant beginning of June did a DRE one side firm so said I need a biopsy and he was certain it will come back positive for cancer.
August 18th 2019 Trus biopsy 18 needles the result for this come back around end of August negative so I was hopeful it might be just an infection or something. Appointment September specialist nurse said at this meeting that they would keep an eye on me and to book another psa test around end of 2019 so I think I got tested around the 13th of December.
Next appointment at hospital February 19th 2020 seen the same consultant he said my psa had gone up to 10.2 so recommended a template biopsy which was a bit of a blow when I was hopeful I might be clear but said waiting times could be 6 months. Well by march 2020 the world changed and covid and lockdowns took over and the rest of that year was lost.
Fed 6th 2021 at last they got me in for template biopsy turned up 7.30am in morning and to cut a long story short they would not do it I think I had some diarrhoea a week or so before so said I would have to go and get some stool samples at doctors done and they would try and get back in about 14 days later, they was worried about some kind of infection but I can’t remember what it was now. 14 days became months and I did get a call around June 2021 saying if I agreed instead of a template biopsy that I could have another mri scan and up to date psa test so went for that option.
June new mri scan done I think it must have been two weeks later nurse called me saying they had seen changes on my mri scan and I need a template biopsy. I had the call for appointment not to long after in mid August 2021 while I was away in Newquay on Holliday. I came back from Holliday all ready for this biopsy and luck really was not on my side and end up with Covid-19 that I caught on Holliday so could not make appointment.
From that missed appointment nothing happened for the rest of 2021 and out the blue January this year I had an appointment come through for a body CT scan with contrast I went for this scan and had a letter for a phone consultation with consultant towards end of January. From this phone call he said that the area in prostate had got bigger and I was going to get a appointment for a trus biopsy again because it would be faster. 14th of feb this year had my second biopsy 4 needles in the target area and random needles both sides of prostate again so around 16 in all. Did not have another phone appointment booked until 13th of April this year but between the biopsy and phone call they fitted me in for a choline pet ct scan.
From that phone consultation the consultant said that the biopsy had come back negative again and the pet scan had shown one area in prostate and one suspect lymph node so the recommendation is I need to have a template biopsy that I might have a bit of a wait for. It’s now been around 5 weeks since that call and they finally sent me a copy of the letter they sent to my doctor saying about the changed in mri from T2 to T3a 1n and the rad 5 change. I really don’t know what to think now so much time has gone on when I might have had a chance of a cure now it’s looking more unlikely all the time if only one of the 2 trus biopsies would have shown the cancer I could have been treated, the consultant said it still might be nothing I find that very unlikely with the rad 5 T3a 1n findings on mri, I’m sorry for such a long message but I find this all so worrying and frustrating at the same time.
Regards
Gary