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User
Posted 12 Jun 2022 at 18:45

Hi


Just been diagnosed with prostate cancer and wanted to say hi!

User
Posted 12 Jun 2022 at 23:20

Hi Bob,


Welcome to the forum! Really sorry you are here though.


Have you just had your diagnosis? Do you have any details yet? Gleason score, PSA, TNM score?  


There will be many on here who will be able to advise you if you have any questions going forward. 


Best wishes


Elaine

User
Posted 13 Jun 2022 at 01:32

Hi Bob, as Elaine says with some details about the diagnosis and perhaps things like your age and what you want from life we can guide you as to what might be worth looking at. For some people even though they have a cancer diagnosis it may be so slow and insignificant nothing needs to be done. For others it can be more aggressive and a more aggressive treatment is required.

Dave

User
Posted 13 Jun 2022 at 06:52

Welcome Bob, even though you don't really want to be here.


This online community is superb.  So much compassion, knowledge and wisdom.  It has helped me to reach well-informed decisions about my treatment pathways.  It has made my life better.


And don't forget the specialist nurses.  Call them if you need them.  They're brilliant. 

User
Posted 13 Jun 2022 at 11:50

Hi Bob - Warm Welcome.


As the wife of Mike who was diagnosed with prostate cancer a few weeks ago, I found this site so helpful. People have been so kind, compassionate and supportive and sharing their experiences. All of this has helped me manage my husband's journey. 

User
Posted 13 Jun 2022 at 16:39

Hi Elaine
Thank you for your reply to me. It helps!


Last 2 PSA tests were 3.8 then a repeat a few weeks later which was 3.3


The physical examination said 'not enlarged, but small, slightly nodular especially on the right lobe.'


The MRI result found prostate volume 24mls, PSA density 0.16 and PIRADS 4 in the peripheral zone


Biopsy result - Gleason 6, Group 1 low and then T3a and then N zero (T3a as it has broken through as I understand it).


Had a bone scan today and awaiting a result


I am 63. It's in the family my late father had prostate cancer and my little brother, (60! lol) has currently got it and being treated.


Would love to hear what this all means and what thoughts there are on treatment options. 


Thank you.
Bob

Edited by member 13 Jun 2022 at 16:54  | Reason: Not specified

User
Posted 13 Jun 2022 at 16:48
The good news is that Gleason 6 is the least aggressive grade of cancer. The bad news is that T3A means that the cancer has reached the surface of the prostate and is perhaps on the verge of spreading elsewhere. The "N0" means that there's no sign of spread into the lymph nodes, which is good.

With a grade T3, though, it needs treating pretty sharpish!

Best wishes,

Chris
User
Posted 13 Jun 2022 at 16:58

Hi Dave
Thanks for your reply.
Bob

User
Posted 13 Jun 2022 at 16:59

Thanks Ulsterman.
Bob

User
Posted 13 Jun 2022 at 17:00

Thanks Chris
Hoping that the bone scan result comes back quickly.
Bob

User
Posted 13 Jun 2022 at 17:01

Thanks for your reply Jim
Bob

User
Posted 13 Jun 2022 at 17:02

Thanks for your reply Maud
Bob

User
Posted 15 Jun 2022 at 16:31

Thanks Bill.


It's the waiting for results that I'm finding so hard. The bone scan was on Monday, I've chased today with no reply but I will give them till mid next week.

User
Posted 16 Jun 2022 at 15:27

Bone scan result came back clear! Phew.


Now the choosing of treatment options.......

User
Posted 24 Jun 2022 at 16:06

I just wanted to update on here.
Had a meeting with a doctor earlier and following a review of my scan results they have reduced the T3 to T2 as their collective opinion is that the cancer has not broken through.
They have recommended active surveillance. 3 monthly psa tests and annual mri.


With a Gleason of 6 and psa of 3.8 then 3.3 at last test they have suggested that it is not 'currently aggressive.


So I am going to live with prostate cancer for now and enjoy life to the full!

User
Posted 24 Jun 2022 at 16:18

That is good news. Keep healthy and stay positive and enjoy life. That is what I say to my darling husband. 

User
Posted 24 Jun 2022 at 20:29

Great news Bob. Enjoy getting on with life and hopefully you will never need any further treatment 👍

 
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