Hello New to this forum

Thanks for the comments, I think the worst part is not knowing what is going on, with them already telling me I had a lesion from the first MRI why not just tell me if this has spread.  If they told me what was going at least I would be able to try and process this and try and deal with it.  Also forgot to mention that on my one blood test they mention my free PSA level which was 13 but not sure what this means.

The point is that a lesion is not necessarily cancer - it could be infection, inflammation, bruising all of which may not be present the next time you have a scan. What is being referred to as a 'lesion' can just be a grey area. It seems that following your previous equivocal MRI scan, the urologist was of the view that it was more likely to one of these benign causes rather than cancer - hence not recommending a biopsy. Now they have a different view - not necessarily that the lesion has changed, perhaps, but just that it is still there! 

Your free PSA of 13% gives you a 28% chance of having prostate cancer so biopsy is definitely a good idea

Today I had my appointment with my consultant to discuss my biopsy results, I have been diagnosed with T2c, N0, M0.  Gleason score 7(3+4) PSA 4.27 6 of 12 samples taken had cancer.  Consultant gave me a choice of 3 treatments, RP, RT with HT and Brachytherapy.  Not sure which is my best option but consultant has recommended the surgery option due to my age as this would give me best outcome.  The Brachytherapy would mean having to go to Leeds so not sure I want to go for that option.  I am now awaiting an appointment with Radiologist and Surgeon to discuss my options.  I know it is my decision but any thoughts on what might be the best way to go would be appreciated.

Best wishes,

Chris

I have now had my appointments with the surgeon and oncologist and both feel that surgery would be my best option, so I am booked in for robotic assisted RP on the 19th Sept, I have also been put forward to take part in a research study being conducted by Nottingham University on the impact of short-term exercise programs on mitochondrial activity in prostate cancer patients. 

I am having my surgery at the Royal Derby Hospital, I could of had surgery even earlier at the beginning of September but the surgeon is on leave and comes back on the date of my op, but he did also say I could have it done later in the year if I wanted as there was no rush to get it done.

Had my post op appointment today, all went ok apart from I have to do a sleep study tonight to check for possible sleep apnoea as my BMI is above 35 just have to use a SpO2 monitor overnight and return to hospital tomorrow. I have an online appointment tomorrow with urology nurse and was meant to be having covid test on Friday, but guidance has changed and no longer required but still have to self-isolate until I go into hospital at 7am on Monday morning for my RARP.

Back from hospital yesterday after my RARP on Monday ended up being in for 4 nights.  Due to complications, I was in theatre for 5 1/2 hours and recovery for another 6 1/2 hours.  Also having problems with blood and clots passing down the side of the catheter mainly when I need to empty my bowels anyone else had this?  The way I feel right now I am beginning to regret my choice of treatment.  Hoping I will feel better once the catheter is taken out on Wednesday. 

It has been 6 weeks now since my RARP went to see my surgeon yesterday to find out the histology results.  There are no changes to the original diagnosis from the TRUS biopsy, Gleason 7 3+4, T2c N0, M0. Clear margins although he did say it cancer was very close to the edge of the prostate.  I haven't had a PSA test yet as my surgeon said he doesn't like to do them until 4 months after the op I was expecting to have one before my appointment.  I asked about nerve sparring, and he said that during the op he thought the right-side nerves were compromised so removed them and only able to save a few on the left.  I mention the ED to him, and he didn't seem interested I wasn't prescribed anything I assume as he thought I wasn't worth it with how few nerves were left so not sure what this means for my ED going forward.  He told me to only focus on the incontinence, which isn't great at the moment.

So after over 12 months of telling my consultant that something didn't feel right after my RP and I was still having pain following the surgery he finally agreed to do a Flexi cystoscopy to see if I had a stricture and to see if this was causing my pain and discomfort.  They didn't find a stricture but did find a tumor in my bladder I have since had a TURBT procedure to remove the tumor followed by chemotherapy and have been diagnosed with bladder cancer.  Has anyone else been diagnosed with bladder cancer after there diagnosis of prostate cancer.  Also the bladder cancer is a second primary cancer and not a secondary cancer from the prostate.  Now waiting on CT scan results to see if there is anything else they may have missed I have been waiting 3 weeks now and getting very anxious about the results.

Yes just locally direct into bladder straight after the TURBT diagnosed a non muscle invasive Ta Grade 2.  Prostate Cancer was T2c.  Got my PSA blood test at the end of this month and another flexi scope into bladder in March and again 6 months after that.  Just said no further treatment for the bladder cancer at the moment but just regular check ups.  They asked for a CT scan as I am still having pain and discomfort just checking in case they have missed anything else.