Hi all,
I am now almost 8 years after diagnosis when 45, had RRP in 2014, margins clear, T2C, then a PSA rise in 2017 and 2 years of Bicalutamide and 6 weeks of RT
all going well for the moment, continence returned after 6 weeks and full sexual function after 6 months
the main issue/side effect is from the HT. I knew the risks of gynocomastia beforehand therefore requested Tamoxifen, was refused by my oncologist (female, didn’t seem to be worried about it) I quickly developed nipple pain and then breast tissue growth. I really had to fight for Tamoxifen as I was only then prescribed 10mg twice weekly which had no effect by then. It was my sympathetic GP who examined me and prescribed 20mg daily, which took away the pain and further growth
anyway, the current situation is that I have small breasts still, I am fit and slim but these remain. I have been seen by a plastic surgeon specialising in breast removal/ reduction and agrees that I should have them removed.
I have a mixture of relief that this has been listened to and bloody anger that it wasn’t at the outset. Because an arrogant oncologist did not see any problem I now need to have a drastic operation. I feel like suing but I doubt that will go anywhere