Just to say in reply to Dave, my OH has just be put on Enzalutimide (a week ago today) and when we went for the appointment to go through everything regarding taking it, it came out in conversation that one months supply was £3000 but the NHS negotiated a more favourable rate so weren’t paying that much. His previous treatments were chemo on diagnosis, stampede trial (using patches) which worked brilliantly for approx 2 years but he had to stop as became allergic to them; then put on 3 monthly stomach injections. His PSA started to rise a little so bicalutamide was added which halted the rise but that started to become ineffective and his numbers started rising quite quickly, that’s when the Enzalutimide was prescribed. Have yet to see the results of taking it as first blood test next week.
And to answer Nick’s post re side effects, all I can say is up to now hardly any. I say this with fingers crossed! When on bicalutamide he had awful hot sweats and slept quite a lot. The sweats seem to have subsided a little, but he still has several ‘chair’ naps during the day. He is being followed up every two weeks for eight weeks to check on possible side effects.
Merilyn