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42 Months on

User
Posted 16 Aug 2022 at 16:16

Update - 42 months on

I was Gleason 3 +4 with a pre op PSA of 4.6. RARP in December 18 aged 56. Cancer was organ confined, 8 lymph nodes were removed and were all clear. There was no sign of perineural  invasion. 42 months on, PSA is stable at less than 0.03. I would put my continence at 99%. I drink a moderate amount of alcohol (same as pre op) without any problems. I only tend to leak the odd drop when I am very tired following being called out overnight during the course of my employment. On the ED side, despite only nerves spared on one side, I can function without the usual tablets, but not to my pre op levels. I have recently been diagnosed with mild hypertension and the medication for that has been known to cause ED, so I may ultimately need to resort to viagra etc in any event. The Dr also added that I am now , statistically, more likely to die from a cardio vascular incident than I am prostate cancer. I suppose we all die of something! 

 

I hope this update provides some encouragement for those who have been recently diagnosed. As ever best wishes and good luck to all who assisted me in the dark days following my diagnosis. 

User
Posted 16 Aug 2022 at 16:16

Update - 42 months on

I was Gleason 3 +4 with a pre op PSA of 4.6. RARP in December 18 aged 56. Cancer was organ confined, 8 lymph nodes were removed and were all clear. There was no sign of perineural  invasion. 42 months on, PSA is stable at less than 0.03. I would put my continence at 99%. I drink a moderate amount of alcohol (same as pre op) without any problems. I only tend to leak the odd drop when I am very tired following being called out overnight during the course of my employment. On the ED side, despite only nerves spared on one side, I can function without the usual tablets, but not to my pre op levels. I have recently been diagnosed with mild hypertension and the medication for that has been known to cause ED, so I may ultimately need to resort to viagra etc in any event. The Dr also added that I am now , statistically, more likely to die from a cardio vascular incident than I am prostate cancer. I suppose we all die of something! 

 

I hope this update provides some encouragement for those who have been recently diagnosed. As ever best wishes and good luck to all who assisted me in the dark days following my diagnosis. 

User
Posted 16 Aug 2022 at 17:19

Excellent news Zebulon, very important we get these good updates, because people looking through this site see a disproportionate amount of problems.

About 40,000 men in the UK are diagnosed each year, we see about 100 on this site, and it is easy to forget that the other 39,900 are probably doing fine.

Dave

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User
Posted 16 Aug 2022 at 17:19

Excellent news Zebulon, very important we get these good updates, because people looking through this site see a disproportionate amount of problems.

About 40,000 men in the UK are diagnosed each year, we see about 100 on this site, and it is easy to forget that the other 39,900 are probably doing fine.

Dave

User
Posted 19 Aug 2022 at 23:44

Thank you for posting this. Waiting for my RARP in the next few weeks. Good to see stories like this. Gives hope for those of us starting out on this journey.

User
Posted 20 Aug 2022 at 00:34

Z , good to see you are doing well, which hypertension medication are you taking. 

Thanks Chris 

User
Posted 20 Aug 2022 at 14:32

Hi Chris
Amlodipine. However, so far no ill affects.

Edited by member 20 Aug 2022 at 14:33  | Reason: Not specified

User
Posted 20 Aug 2022 at 15:37

Z, I was changed from 10mg of felodipine to 5mg of amlodipine then back to 15mg of felodipine.

Thanks Chris 

 
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