I have just been diagnosed with prostate cancer May 2022, Gleason score 3+3 and 3+4 low to moderate and a psa of 3.7, it was decided that I have active surveillance which I was happy to do, I had my first psa test done August 28th since the diagnosis and it came back at 7, I have also had a symptom occur in the past five weeks whereas I cannot push the flow faster when I urinate it seams to come out at the speed of gravity, in view of this the urologists have said that with my psa going up so quickly in such a short space of time and the symptom that active surveillance was now not an option and a treatment has to be decided, my appointment at Pinderfields Wakefield is on 14th September.
My problem is is that in 2001 I had a bowel disease Ulcerative Colitis and had to have my colon and rectum removed, a pouch is then made from small intestine and reattached to the rectum, this is called an Ileo Anal Pouch or J pouch, so as then I go to the toilet as like everyone else but more often, and because of this the surgeon I have spoken with at the time of my diagnosis was fearful of the pouch been damaged as it is literally next door to it, and could thus mean it having to be removed and having to have an ileostomy (a bag)on for the rest of my life which obviously I dont want, so treatments are limited because of this, so Is there some one else in a similar position to me and had treatment etc I know we are far and few between but any advice would be appreciated
Edited by member 01 Sep 2022 at 10:27
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