Hi SCM,
Diagnosis is probably the worst time. You know less about it and don't know what you've got.
I was reading that Deborah James who had bowel cancer said hope is an amazing thing and rebellious hope got her through the years.
'When I was diagnosed get waves of worry. I also found some of my worst worries were at night especially if I'd been drinking. So I cut out drinking. I also cut out coffee because that gives me ups and downs. It wasn't hard to do and lasted for several months.
I once rang a PCUK nurse who said I shouldn't get too far ahead of myself assuming the worst and to take things as they come.
Another nurse told me not to read American websites, I'm not sure why although some perhaps are emphasising treatments that cost which perhaps influence how they describe the condition. Also not to read tabloids about it.
I've continued to find all those things helpful as I still worry when it comes to psa testing time.
After reading on here for a few years and continuing to read other information there are new treatments being approved every year both in drugs and technology. Every case is different and people react differently to the drugs so you really don't know where you are until you're diagnosed and when you see how you react to treatment.
Hope has something in it. If that's of any help.
Edited by member 01 Sep 2022 at 23:07
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