Time to say good bye ..and thank you!

I cant'f find the words to truly describe the heartbreak at my husband reaching this point, age 56 and only 23 months from diagnosis. In Oct 2020 we were told to expect 5 years which we really thought we would get. 

Every treatment has been tried, and all failed with the exception of Abiraterone (Zytiga) which lasted approx 11 months.  A last throw of the dice was trialled 2 weeks ago (Enzalutamide) but within days we were told of significant spread to organs. 

We were told by a Professor of Urology last week that even though my husbands tumour was a grade 5 (Gleason 9), that it would have taken up to 4 to 8 years for symptoms to have emerged. On that basis they are certain that my husband would have had prostate cancer when he went for an exam in 2018 (and was refused)! then age 52. 

I notice there has been some discussion regarding earlier screening on the forum and the prevalence of younger men being diagnosed with PC where no obvious symptoms are experienced. We are strong believers that if a man is proactive like my husband, and visits a GP requesting a prostate exam that this should be carried out regardless if they have no symptoms.  Otherwise, many, many more men will continue to suffer and have their lives cut very short. 

I can only thank the forum for giving us the platform to learn as much as we can about the PC, but more importantly to receive support from fellow men and their families. It certainly gave us some hope along the way.

Good luck to you all, and keep spreading the awareness of PC.

Best wishes

Highland Lass

So sorry to read about your journey with Prostate Cancer.

I have been on Enzalutamide for about 15 months now to treat Advanced Prostate Cancer and my PSA has been steady at <0.1 but who knows how long this will last before I have to start more rigorous treatment regimes?

It would certainly appear that your husbands cancer was diagnosed too late unfortunately!

My thoughts and prayers are with you both at this sad time

Much love Tom  

So sorry to hear this news that we all fear doctors need to listen to their patients it's so sad. Gaz 

Highland lass, sorry to hear your news, sending love and hugs.

Thanks Chris 

So sorry to hear this highland lass xx

My thoughts are with you both xx

Sending massive love Highland Lass, as massive as I can muster. Stay as highlandish as you can.

Jamie.

Sending you love and strength to get through this , 

What can I say that's not already been said,I've done nothing but think about you all day,devastated for you.I hope the final months and hopefully years are filled with good memories and still some good laughs,please both be strong.

All my best wishes Phil 

In the same boat with treatment as it never lasts. Going to an appointment about chemo soon which I'm not looking forward to the potential side effects and bald head! I was diagnosed with stage 4 and bone mets in Jan 2020 but was nevertodhow long I had. At the moment I'll be lucky to hit 5 years.

Yup this forum is good as people come back with positive responses. Good luck with your hubby's treatment and hope you get something that works. Lutetium-177 has been mentioned on here and looks promising but we have to wait until NICE approves it. Some private places are delivering it already.