I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

ED post op

User
Posted 25 Oct 2022 at 16:30

Hi post op my main concern is the ED recently married wife’s 13 yrs younger than me and bingo nothings working downstairs, excessive nerve damage , tried viagra , granted only a couple so far , no reaction to the drug , very worrying to be honest 

User
Posted 25 Oct 2022 at 18:49

Hi,

RARP 16th September.

Same. The surgeon saved the nerves on both sides of the prostate. However, still no erection other than a bit more blood flow when about to orgasm. Not been prescribed Viagra or similar yet might ask soon. 

Keeping hopeful though, decided not to wait for the NHS, bought a pump for training purposes. Trying to Keep that blood flowing to the old fella. It does take a bit of practice, but it's now part of my daily routine. Although given the number of times men have stirrings throughout the day should probably do this more often. 

Not happy to share the pump with the wife though. It's all a bit mechanical, but using ones imagination during intimacy keeps the fires burning which is good for mental health.

Don't give up, from what I read on here can take a lot of time, but even then you might never have a meaningful erection again. Have you been in contact with your clinical team to see if you can get a referral?

User
Posted 25 Oct 2022 at 18:59

Thanks for the info it’s still early days , but I don’t feel like a bloke at mo ! There’s just nothing happening! Cheers again let’s keep the faith I’m looking into doing the same and buying a descent pump the surgeon said they usually work on most post op 👍

User
Posted 25 Oct 2022 at 20:03

Terrance, I was slightly older than you when I had supposedly non nerve sparring surgery, my wife is 16 years younger than me. Talk to each other and have fun trying to find a solution. We mastered the technique of flaccid insertion and she has the knack of getting me where she wants me. It hasn't been easy of late as she is going through the change. 

Never give up.

Thanks Chris 

User
Posted 25 Oct 2022 at 20:54

Originally Posted by: Online Community Member

Thanks for the info it’s still early days , but I don’t feel like a bloke at mo ! There’s just nothing happening! Cheers again let’s keep the faith I’m looking into doing the same and buying a descent pump the surgeon said they usually work on most post op 👍

A pump is essential for keeping your penis healthy while you are not having any natural erections. Before buying, ask for a referral to your local ED service or, if your NHS Trust doesn't offer that service, ask your GP to prescribe a pump on the NHS. Some areas don't approve pumps on the NHS so you might have a bit of a fight but why pay £260 for something that other men get for free? 

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 25 Oct 2022 at 21:24

Hi Terrance. You do have to fight for a lot of things (eg Tadalafil) at my NHS Trust but getting a pump was straight forward. I spoke to my clinical nurse specialist and she wrote to my GP telling them to prescribe me a pump. Might be worth an ask. It's probably a bit too early days to expect a reaction from the Viagra. 5 mg daily Tadalafil to improve blood flow and nerve repair might be a better option at this stage, if  your Trust will prescribe it. Chris

User
Posted 25 Oct 2022 at 23:57

Pump cost. VaxAid Deluxe £189.00

You can cheap out of course but the message I got from this forum was that you get what you pay for.

Other NHS recommend suppliers

https://services.nhsbsa.nhs.uk/dmd-browser/vmp/view/415/suppliers?ref=bnVsbCZzb3J0T3JkZXI9YWxwaGEmcGFnZT01JnNpemU9MTAw

 

 

User
Posted 26 Oct 2022 at 09:07

Ask for VAT exemption if you buy your own. You're buying it as a medical appliance (zero rated), not a sex toy (20% VAT).

User
Posted 26 Oct 2022 at 11:55

Ist stop is the Urology Dept Nurses to book into the ED Clinic. Hopefully your NHS area will allow their approved Pump via prescription. I also have a wife 14 years younger. My op was in 2019 aged 60 with 50% nerve sparing. It has been a long journey which requires work, love and understanding. My sex life is definitely different to before but no less rewarding. Best of luck........

User
Posted 26 Oct 2022 at 12:19

Prostate Cancer UK produce a leaflet called "Treating erectile dysfunction after surgery for pelvic cancers", with the sub heading "A quick guide for health professionals: supporting men with erectile dysfunction".

For Tablets (PDE5-Is) (sildenafil, tadalafil, vardenafil and avanafil) it says "Early initiation (after catheter removal or within 14 days) promotes early recovery and preservation of erectile function".

For a Vacuum Erection Device (pump) it says:

Early use (within one month after surgery) linked with better outcomes. Can be initiated 4-8 weeks after surgery.

I had no problem being prescribed tadalafil and a vacuum pump, but various factors outside my control meant I didn't get the pump until 4 months after surgery. I had already bought and was using a cheap pump (£25ish from LoveHoney) and that worked fine and still does. If you face a wait for an NHS prescribed pump then I would buy a cheap one to use now, bearing in mind the remark above about early use being linked with better outcomes.

 

 
Forum Jump  
©2024 Prostate Cancer UK