So, nearly 3 weeks later. I had the catheter removed and managed to pee 3 times in the surgery before returning home. Some 18 hours later the most intense pain I have ever felt stared when I tried and failed to pass urine. This time I was admitted to hospital and a scan showed I had a leak and urine in several wrong places. It really was agony, only partly relieved by morphine. A few hours later I had a catheter inserted again and the relief was instant. I filled dup the bag very quickly.
After 3 days in hospital to keep an eye on me, I was send home. Basically pain free since. 3 days ago the catheter was removed (after 15 days, so a total of 25 days) and I have had a pain free weekend with fairly normal urine flows and bowl movements. Happily, no incontinence yet, H have not had any caffeine, alcohol or red meet for the past 6 weeks (2 before surgery) and have been doing pelvic floor exercises again.
My surgeon said my symptoms were very unusual so I hope most here avoid/avoided them. But it was frightening for a while.
Starting to take longer walks now and gradually hope to return to 'normal' over coming weeks.