Thanks both for taking the time to reply, I really appreciate it. It sounds like my husband is doing ok at the moment and I guess everyone will have a different experience, I’m just hoping hoping it remains on a positive path, we both worry that every ache and pain means it’s spread, we awaiting the results of a bone scan so really hoping for it to be clear…it’s such an unpredictable disease though, we have started to tell ourselves to hope for the best but prepare for the worst!!
Chris, I have read your profile and you have been on such a rollercoaster of a journey, I’m so happy your levels have dropped, I really hope this continues for you. My husband is 54 so a similar age, it’s so sad that you have to go through this, like all of the people on here, but it’s great everyone can support each other on this forum.
Thanks again to both of you for replying and I wish you the best of luck on your journeys