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Any advice on private treatment

User
Posted 04 Dec 2022 at 17:15

I’m not sure if I’m allowed to ask for recommendations for getting a biopsy and any treatment needed done privately.

We’ve been waiting and waiting. We had a letter saying T3a ? N1? and M? after our MRI. It’s all very scary and confusing for us right now. We live on Oxfordshire/Glos borders and are currently with Cheltenham hospital. 
Thank you in advance. 

User
Posted 04 Dec 2022 at 18:43

Hello AJR - I am sorry to read of your problem.

I live In Gloucestershire, close to the Wiltshire boundary, & attend the same treatment centre as yourself. I first started the diagnostic process in April 2020 with a MRI, & CT scan preceding a transperineal biopsy, undertaken under GA, at my request, when no cancer was found.

Unfortunately my PSA has started to rise & I was referred back to Cheltenham in late September. I had a telephone consultation with a specialist nurse on 26 September & a MRI on 6 October before a very brief, ' face to face', meeting with a consultant 3 weeks later when I was advised that I should have a further biopsy. My biopsy was completed, at Cheltenham, on Thursday 24 November. I was told, by the consultant who completed the biopsy, that the results would not be available for 6 - 8 weeks.

The only letters that I have received from Cheltenham, other than one in 2020 advising that 'no cancer was found', are those offering an appointment. I am far from being an expert on these things but the letter that you refer to following your MRI appears to have been an error. The MRI identifies possible areas of 'suspicion' & as such is the basis of the decision as to whether or not a biopsy is appropriate - the only 'numbers' that are generated by the MRI relate to 'prostate size' & a PIRADS score, which assesses the likelihood of prostate cancer on a scale of 1 -5, where 5, as in my case, is very likely.

Can I suggest that you contact the Urology Department at Cheltenham before looking further at the opportunities for private treatment. 

I hope all of this is soon sorted - it is a enough stressful process before this sort of complication.

User
Posted 04 Dec 2022 at 19:06

Have you been started on any treatment yet?

User
Posted 04 Dec 2022 at 19:09

Not yet but the consultant said he’d start on the day of the biopsy. 
Thanks for your reply. 

User
Posted 05 Dec 2022 at 10:17
How long have you been waiting for a biopsy appointment?

Best wishes,

Chris

User
Posted 05 Dec 2022 at 12:52

Keep chasing them. 

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User
Posted 04 Dec 2022 at 18:43

Hello AJR - I am sorry to read of your problem.

I live In Gloucestershire, close to the Wiltshire boundary, & attend the same treatment centre as yourself. I first started the diagnostic process in April 2020 with a MRI, & CT scan preceding a transperineal biopsy, undertaken under GA, at my request, when no cancer was found.

Unfortunately my PSA has started to rise & I was referred back to Cheltenham in late September. I had a telephone consultation with a specialist nurse on 26 September & a MRI on 6 October before a very brief, ' face to face', meeting with a consultant 3 weeks later when I was advised that I should have a further biopsy. My biopsy was completed, at Cheltenham, on Thursday 24 November. I was told, by the consultant who completed the biopsy, that the results would not be available for 6 - 8 weeks.

The only letters that I have received from Cheltenham, other than one in 2020 advising that 'no cancer was found', are those offering an appointment. I am far from being an expert on these things but the letter that you refer to following your MRI appears to have been an error. The MRI identifies possible areas of 'suspicion' & as such is the basis of the decision as to whether or not a biopsy is appropriate - the only 'numbers' that are generated by the MRI relate to 'prostate size' & a PIRADS score, which assesses the likelihood of prostate cancer on a scale of 1 -5, where 5, as in my case, is very likely.

Can I suggest that you contact the Urology Department at Cheltenham before looking further at the opportunities for private treatment. 

I hope all of this is soon sorted - it is a enough stressful process before this sort of complication.

User
Posted 04 Dec 2022 at 19:06

Have you been started on any treatment yet?

User
Posted 04 Dec 2022 at 19:07
Thank you Grafton. My husband seems to be slightly behind you despite the consultant telling him he needed an urgent biopsy.

Hope everything goes well for you.

User
Posted 04 Dec 2022 at 19:08

Not yet but the consultant said he’d start on the day of the biopsy. 
Thanks for your reply. 

User
Posted 04 Dec 2022 at 19:09

Not yet but the consultant said he’d start on the day of the biopsy. 
Thanks for your reply. 

User
Posted 05 Dec 2022 at 10:17
How long have you been waiting for a biopsy appointment?

Best wishes,

Chris

User
Posted 05 Dec 2022 at 10:32

Hi Chris, 

It’s been four weeks since the call. We’ve had a bone scan already. The consultant said it was urgent and would be 2-3 weeks. It’s frustrating.

Thank you for replying. 

User
Posted 05 Dec 2022 at 12:52

Keep chasing them. 

User
Posted 05 Dec 2022 at 22:31
I had mine done privately, whole thing was pretty quick and straight forward. Speak to the consultants private secretary.

Now you have been waiting 3 weeks already there may be no benefit, stick with the same consultant though or it could get very messy organisationally.

You can still bounce back to the NHS at any stage..

User
Posted 06 Dec 2022 at 08:58

Cheltenham Urology function as a 'team' - the consultant that you meet to discuss your MRI results, for example, isn't necessarily the consultant that will undertake the biopsy. I have been through this process twice at this hospital - my biopsy has in both cases been carried out by a consultant different to that with whom I discussed the results of my MRI. They are all committed, reassuring & easy to talk to.

Once again, I suggest that you call Cheltenham Urology & let them sort it out

 
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