I'm G9 and had RT four years ago. All is going well. You are correct that if it recurs RT is unlikely to be an option (depends where it recurs). HT almost certainly would be the first line of treatment. However new treatments like lutetium, immunotherapy and gene therapy are all about a decade away (and have been for about two decades).
I understand what you mean by "I like to plan" but with so much uncertainty you can't do much.
I have PSA tests every six months. The only thing they tell you for certain is that you haven't died in the last six months. If they keep coming back clear, that also increases the probability that future ones will come back clear. When they start to come back positive, then with current treatment I will have about five years of good quality life, followed by five years of deteriating quality of life and then death. Like you there is no emotion in all this, it's just a realistic view of the future.
I was diagnosed at 53, I am now 58. If you had asked me my life expectancy before diagnosis I would have said 85. on diagnosis I would have said 65. Now I would say 73.
Edited by member 17 Dec 2022 at 14:15
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