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My Journey through HT and RT

User
Posted 10 Jan 2025 at 23:34

Hi Decho, glad you're in Fuertoventura the weather is miserable here. Long may results going in the right direction continue.

Dave

User
Posted 02 Mar 2025 at 17:18

It’s been a while since I updated my journey thread so thought it would be a good time to do so.

those of you following my weight loss challenge will know I’ve lost 4kg I’m 4 weeks and I’m now now sub 100kg for the first time I’m more than a year! Still a long way to go but I’m quite pleased really sitting here with my gin and tonic😊 What’s  even more pleasing is the steady reduction in body and visceral fat.

The other big change is my level of randiness. All of a sudden my hormones are raging and I feel like a (teenage?) man again. I now don’t prefer having a cup of coffee to the idea of having sex. It’s weird feeling like this again but nice. The idea of Penetrative sex no longer repulses me although I'm not managing to get strong enough erections to manage it, even using the pump. i think I need to explore other positions which  might work for us both. I’m getting very strong (dry) orgasms though with my wife using the male masturbator on me…this has been a great investment, it’s got such a lovely feeling even more so when it’s cool…and it’s been pretty cool here in Scotland recently. I’m also wondering whether injections might give me stronger erections so need to make an appointment with the ED nurse for a trial.

Generally I feel great, still having issues with my right hip but I think there’s an underlying problem there such bursitis so I will need to try and find a solution to it. My joint ache is continuing to get better as are my hot flushes.
I’m becoming more active again, yesterday I was away in the forests around Aberfoyle on my ebike…really enjoyed that, and the weathers to be quite good this week so will be out and about as much as possible.

My next PSA/Testosterone test is start if April so it will be interesting to see what my testosterone level is then…but of course that then brings on the worry about my PSA rising. It doesn’t stop me from having fun but it’s always there….as we were saying at Maggies on Friday, it’s like a maggot on the side of your head nibbling away!! Anyway booked another cruise for late September and back out to Fuerteventura for the second half of March. just going to do follow Chris Hoys ‘Do it Now’ advice for as long as I can.

again, good luck to everyone on their journeys…there’s always hope😊

Derek

User
Posted 02 Mar 2025 at 19:11
Just on the return of libido-I had 3 yrs of Zoladex plus 2yrs of abiraterone&enzalutimide on trial (37 sessions of RT completed treatment). Yes I well remember the return of libido it came sort of all of a sudden although it was expected it was a complete surprise that basically one minute none next minute it was plenty of it!

Peter

User
Posted 02 Mar 2025 at 23:50
Glad to hear things going well for you, Derek - sounds like you are well on your way back to some kind of normal. I had my last prostap injection on 24th February so hoping to be in a similar place to you before the year is out.

Good to here your experience too Peter - it is encouraging for those coming up behind you.

User
Posted 03 Mar 2025 at 13:59
Entertaining update as usual Derek. Very difficult trying to explain the lack of desire HT delivers to the unitiated.

I tried to explain it to my brother a while back but unless you've been through it it's impossible to grasp.

When he was telling me about his super sex life I told him I'd choose the soup.😉

User
Posted 03 Mar 2025 at 21:40

Great update Derek. Keep enjoying the holidays.

Best wishes,

Ian

Ido4

User
Posted 15 Apr 2025 at 16:39

Latest Results…

PSA 0.1 (no < symbol)

Testosterone 6.5

GP has written to my Oncologist but no idea why🤷🏼‍♂️

TBH I’m not sure WHAT all this means. I know I’ve still got a prostate and PSA will start to rise but not sure what the timescales of this would be. It’s 1 year since my last Prostap injection and 2 years since finishing RT.

User
Posted 15 Apr 2025 at 17:16

My PSA hasn't had a < symbol for ages. Whilst I was on HT it was always <0.1 . I can't remember all the numbers, but I they are in my profile. My PSA is generally now 0.1 it has been up to 0.2 and then back down to 0.1. My testosterone returned after about 9 months from last HT, which is similar to your timescale. 

In short I am about four years ahead of you I've had very similar diagnosis and treatment to you, and a very similar testosterone response and PSA response to you. If you and I keep following the same path you will be good for at least another four years. As for beyond that, well I'll let you know when I get there.

Dave

User
Posted 15 Apr 2025 at 17:42

Thanks Dave that’s reassuring. I must admit this last week has been hell for me, and more so for my poor wife. I have just been so anxious about this test, probably because I knew my testosterone had returned.

Notes to myself:
1. Always get my PSA Test on Monday so that my weekend is not ruined.
2. Up my sertraline a couple of weeks before the test is due.

User
Posted 15 Apr 2025 at 18:19
Derek your sense of humour will see you through. I tried Fenalfaxine at the start of the year because I was told I was becoming obsessive. Gave it up after one 28 day course. What I need is a sleeping draught to give me 4+ hours uninterrupted sleep. Forget the recommended units per week.

John

User
Posted 15 Apr 2025 at 18:19
Derek your sense of humour will see you through. I tried Fenalfaxine at the start of the year because I was told I was becoming obsessive. Gave it up after one 28 day course. What I need is a sleeping draught to give me 4+ hours uninterrupted sleep. Forget the recommended units per week.

John

User
Posted 15 Apr 2025 at 19:40

Presume some kind of spellchecker correction,  do you mean venlafaxine John ?

Edited by member 15 Apr 2025 at 21:37  | Reason: Not specified

User
Posted 16 Apr 2025 at 01:08

Originally Posted by: Online Community Member
GP has written to my Oncologist but no idea why🤷🏼‍♂️

Perfectly normal to keep the oncologist up to date on how you're going. It would be a worry if your GP didn't.

Your results are looking good Derek.

Jules

User
Posted 21 Apr 2025 at 09:41

A bit more of an update…

Turned out you were right. I emailed the surgery and got a phone call from the practice manager 5 mins later apologising. Turns out the letter was to the Oncologist was just to say my results were available for viewing. So why couldn’t that miserable receptionist tell me that and save me the worry?🤷🏼‍♂️

Another note to myself….if I walk into the surgery and see that woman on? Smile and walk straight back out😊

Other than that feeling quite good. Visited the Kelpies and Falkirk wheel yesterday and walked 9 miles at a fairly brisk pace…quite proud of myself as not done that for a long time. Even better my hips feel ok today, maybe I have turned the corner💪💪

Im still a bit of a heffer at 100kg but trying to lose another 4 kg before  I put it all back on on our cruise in July😩

Things are definitely improving in the trouser department now that my testosterone is returning. Randiness is quite high and my OH keeps telling me that ‘naughty Nicky’ (long story🤣🤣) is getting bigger and straighter all the time. My Peyronie’s seems to be correcting itself, I almost feel like a man again after 3 years of womanhood😉😉

Flushes are almost a thing of the past now.😊😊😊😊 I can go a whole day without one and if I do get one is more like just a warm feeling. Still get one annoying one every night shortly after I lie down to sleep each night but I can live with that.

I notice now I have to be more careful shaving that I don’t miss a bit and my wife is counting each hair that appears on my arms and legs🤣🤣

I still get a bit fatigued when doing physical activity but I guess that will improve through time.

Ive decided to wean myself off Maggies a bit. I will still go along occasionally to offer support to others but I think it’s time to move on from.

so, 9 months on from Independence Day, spring is in the air, got lots planned for the summer and feeling positive…..and I’m going to try and not get so stressed about my next PSA test. And for anyone else on this journey, there is hope, you will feel better once you’re off the ‘poison’…you just need to be patient.

Good luck to all of you and if my update has made you chuckle…all the better😊

Edited by member 21 Apr 2025 at 09:43  | Reason: Not specified

User
Posted 21 Apr 2025 at 13:19

Sounds good Decho, looks like you are coming out the far end in fine fettle. It gives me a lot of hope, I'm desperate for my independence day, still another year off 😱.

Enjoy your cruise

Spongebob

User
Posted 21 Apr 2025 at 13:54
Well done Deco, maybe look at low carb diets, I was 100kg 5 years ago, just 85 now! And I am not restrictive (except for carbs - there is always a catch!). You can even do low carb on a cruise relatively easily.

User
Posted 21 Apr 2025 at 16:15
Nice news Deco. Good to hear the positive outcomes
User
Posted 21 Apr 2025 at 16:31

Originally Posted by: Online Community Member

Sounds good Decho, looks like you are coming out the far end in fine fettle. It gives me a lot of hope, I'm desperate for my independence day, still another year off 😱.

Enjoy your cruise

Spongebob

Have you thought about asking your Oncologist if you can stop early? I stopped after 2 years with his approval. I really think this blanket 3 years period needs to be questioned, especially if you’re continually getting good PSA results. I really think if I had stayed on it another year I wouldn’t be in a good place.

User
Posted 23 Apr 2025 at 17:46

Great update Decho. Enjoy your cruise when it comes. 

Ido4

 
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