18 months post surgery.

User

Posted 23 Mar 2023 at 09:36

Hi All,

I'm now 7 weeks post surgery and my PSA level has just come in at below 0.1 , be a week before I see consultant comments please.

Vern.

User

Posted 23 Mar 2023 at 10:50

So does your post PSA result show < 0.1, the '<' is important because it means that they have tested to the limit that is possible in the lab. Your result being less than the threshold they can test to.

< 0.1 or 'less than' 0.1 would be considered undetectable.

If you need clarification of your result it's worth giving your uro-oncology nursed a call. The receptionist at my local GP are very good at missing out the all important '<'

User

Posted 23 Mar 2023 at 10:59

I always ask the GP sec to email the actual lab report to me. That negates any risk of misinterpretation.

User

Posted 23 Mar 2023 at 11:16

Yes the results show the below arrow you describe

Vern.

User

Posted 23 Mar 2023 at 11:26

Result reads.

< 0.1 .

Vern.

User

Posted 23 Mar 2023 at 12:10

Your good then Vern.

3 monthly tests for the next 2 years then.

User

Posted 24 Mar 2023 at 09:27

Morning;

Now I've got post PSA result < 0.1 I have appointment with my consultant on Monday 27th any questions I should ask or guess he'll tell me what's next.

On my incontinence journey I had been steady at no problems at night only in day when walking and that's around 45 MLS all day , then last night 30 MLS ! For first time !

One step forward two back.

Vern.

User

Posted 25 Mar 2023 at 12:16

Had my RP op on 8th March. Had 3 nights hospital stay due to low bp. Had TWOC yesterday on 24/3. Had good night with little leakage and only got up twice to pee. Getting up today was a shock with the leakage whenever I am up and moving it seems very frequent. Managed short walk trying to ignore leakage. Have restarted the pelvic exercises. It is a relief not to have the catheter but do find the leakage distressing.
I have been told I will only get my histology results at my review which isn’t until 23 May. It seems a long time to wait for something so critical.

Rob

Edited by member 25 Mar 2023 at 12:21 | Reason: Not specified

User

Posted 25 Mar 2023 at 12:26

I had my histology results three weeks after surgery, like you I prefer to get on and know what's what so I wouldn't worry about requesting appointment sooner.

Vern.

User

Posted 26 Mar 2023 at 07:34

Bit concerned this am. 18 days post RP now and this morning quite a lot of fresh blood in urine and large clot. Should I expect this?
why is it always a weekend!

Rob

User

Posted 26 Mar 2023 at 08:34

Morning Rob;

In my journey I find it better to discuss any problems as soon as they come up I'm sure your fine but just pick up the phone to your hospital contact or the Nurses on this site if they available on a Sunday.

I expect people with more experience on here will add more advice but don't be worried about bothering people you'll feel better soon as spoken to someone.

Cheers

Vern.

User

Posted 26 Mar 2023 at 09:02

Rob , to the odd bit of dissolving scab is quite common even six weeks after surgery. Have you been overdoing things ? Dark blood is usually associated with old blood , red blood is usually fresh blood.Seeing blood in the urine or blood coming out of the penis needs checking out. Sometimes your discharge ward maybe able to help

Thanks Chris

Edited by member 26 Mar 2023 at 10:33 | Reason: Not specified

User

Posted 26 Mar 2023 at 12:16

Re my post surgery PSA < 0.1

Seeing consultant Monday first thing do I need to prepare for likely further treatment and what does consultant base his decision on ?

Vern.

User

Posted 26 Mar 2023 at 12:57

Originally Posted by: Online Community Member

Re my post surgery PSA < 0.1

Seeing consultant Monday first thing do I need to prepare for likely further treatment and what does consultant base his decision on ?

Vern.

Great result Vern. Your PSA is undetectable so I assume your consultant will just want a retest in 3 months time. Further treatment is usually indicated by biochemical recurrence….this would be if your PSA reached 0.2 or 3 consecutive rises above 0.1

Good luck with your appointment

User

Posted 26 Mar 2023 at 13:00

Originally Posted by: Online Community Member

Bit concerned this am. 18 days post RP now and this morning quite a lot of fresh blood in urine and large clot. Should I expect this?
why is it always a weekend!

Rob

I would definitely get some medical advice. Try the discharging ward or ring 111, they may make you an appointment for today to see someone. Always best to get these checked out, hopefully all ok though. Best of luck

User

Posted 27 Mar 2023 at 10:22

Thanks guys, went to A&E on Sunday via 111 and after a couple of hours was admitted to Assessment ward where vitals taken etc then seen by Urologist. He discussed with the senior registrar whether a Cystoscopy should be done. On balance they decided it was safer not to provided an ultra sound showed I was fully emptying my bladder. I was so after some more checks and advice I was discharged.

Relief not to be admitted overnight. I will be able to talk to my lead nurse now the weekend is over.

Rob

User

Posted 27 Mar 2023 at 11:24

Good news Rob being proactive is best approach keep going .

All the best.

Vern.

User

Posted 27 Mar 2023 at 11:27

Just back from my 8 week post surgery and PSA results.

All clear consultant happy no further treatment at least for now PSA again in three months.

Might book a holiday now !

Vern.

User

Posted 28 Mar 2023 at 19:51

Great news Vern, had my post op bloods yesterday, just waiting and hopefully will get the same results.

User

Posted 28 Mar 2023 at 19:55

On the point of leakage, I went back to watch my team last Saturday.

A 94th minute winner and incontinence, don't really mix lol.

Join the online community now.

Click through to become a member and gain access to support, information and real time replies.

Notification

Join the online community now.