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18 months post surgery.

User
Posted 28 Mar 2023 at 20:39

Not had the confidence to go to football so well done to you , not to much danger of me getting over excited about my team this year but after 58 years of ups and downs all part of being a fan.

 

Vern.

User
Posted 29 Mar 2023 at 08:45

Hi Rob,

I had my RP 17 weeks ago and am still waiting for histology results! In my area there appears to be a huge backlog and I have now had my appointment for results rescheduled twice. On the positive side my 3 month PSA result was <0.01

I was very impressed with the time from diagnosis to Op (2 months) but am finding the delay in receiving histology results frustrating, but little I can do about it.

Hope you get yours at your planned appointment.

User
Posted 02 May 2023 at 08:07

Morning All,

Well today I'm 13 weeks post surgery and in some ways I'm doing ok my incontinence is reducing week by week and last week was av 10 MLS per 24 hours , In my last set of posts I said about uncomfortable when walking well that has not changed probably worse I saw GP on 16th March he said don't worry your doing very well ! Made appointment with my consultant 28th March he said maybe start of a hernia but don't worry your doing very well!,  Continue to struggle so made appointment with consultant who works from same office this was 6th April he was very good and said let's do a utrasound of groin area which was on 21st April and Doctor who did scan said no hernia but he said something about the tubes that carry sperm were enlarged on right side ( where pain is) but no idea why but would report it.

I'm now feeling well off colour with discomfort and feeling chilled and sick at times urine test negative, will call consultant office this morning to try and push results and perhaps make GP appointment at hospital as my GP surgery is two weeks for appointment ( all my treatment so far is private self funded ) 

All a bit long winded and dragging me down.

Hope you are all doing ok.

 

Vern.

User
Posted 02 May 2023 at 15:25

Re last post.

Just had scan result.

No hernia.

Epididymis is bulky on right side ( side of discomfort)

Could be swollen after surgery but thirteen weeks?

Is it possible infection before surgery now giving problem with discomfort and feeling unwell, consultant said see you in three months for check on PSA.

Any thoughts as to what I should now do or ask GP.

Vern.

User
Posted 22 Jun 2023 at 19:46

Hi All,

 

5 months from Surgery now incontinence  more or less resolved so getting on better up and down days but generally not to bad . Had second PSA blood test on 5th June at private hospital because they do the more sensitive test which consultant recommend ( last time said no need ) but still no result not sure that's good or bad.

I hate people still using snail mail seem to be reluctant to use email .

Regards to all.

Vern.

User
Posted 22 Jun 2023 at 21:17

I get my PSA results through my NHS app. Sensitive down to <0.04 at my testing centre.

User
Posted 22 Jun 2023 at 21:33
That's one of the advantages that we have here in France. Blood tests are done by private laboratories so you phone or go online for an appointment which is within 3 days and they do the tests in the morning between 8am and 11am. Just take your prescription and they take your blood and the results are sent to you by email the same day. My PSA test was at 10am this morning and I had the results at 14:20.
User
Posted 22 Jun 2023 at 21:40

Thanks for replys it's interesting the variation in way things are done even within NHS areas and private, I don't think my issue is time test results take more time it take consultant to review against NHS results are put on your account and sometimes no-one even looks at results that are lower than 3 !

Vern.

User
Posted 23 Jun 2023 at 09:45

Morning,

Just phoned up and got my PSA results 5 months post surgery.

0.009.

Comments please.

Vern.

User
Posted 23 Jun 2023 at 21:24

Fantastic result!

Maybe time for a celebration?

Best wishes,

JedSee.

User
Posted 23 Jun 2023 at 21:48

Cool nice to hear something positive I been negative about it today as basically don't understand it !

Vern.

User
Posted 23 Jun 2023 at 22:30
Good Heavens! Feeling negative???? This is an excellent result - basically your PSA is 100 times lower than the threshold for success! Have a pint or a glass of wine and enjoy the moment
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 24 Jun 2023 at 09:47

Thank you Lyn , for a beginner it's difficult to understand these things and helps when someone can give a experienced view . For myself and my wife there was a number 9 at the end so must have meant Cancer still there.

Forgive my ignorance of medical matters !

Vern.

User
Posted 24 Jun 2023 at 10:31
I know - everything seems so frightening when you are new to it. You can reassure your wife that she would have a higher PSA than yours if she was breastfeeding or had just had a great orgasm!
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 07 Aug 2023 at 17:20

Hi All,

I'm due my next PSA test which will be 7 months from Surgery and bit confused as to which test to have , I can have test at GPs which is a less sensitive test or private hospital test which is much more sensitive my last result there was 0.009 while previous one at GPs was < 0.1.

Takes 3 days to get results from GPs. But took 3 weeks to get private results from Consultant's office.

Any thoughts please.

 

Vern.

 

Vern.

User
Posted 07 Aug 2023 at 17:32

The consensus on here seems to be consistent in where you test. I always use my GP but fortunately they are testing more sensitivity than your GP,  down to 0.04.

User
Posted 07 Aug 2023 at 17:51

It is a great result. It seems you live on your own. If so, it is tough. Send me a private message if you wish to chat. Be positive and try and not push yourself so hard physically.

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 07 Aug 2023 at 19:48

Seems to me you’re doing very well….Onwards and Downwards!😊

User
Posted 08 Sep 2023 at 13:25

Hi All,

Time passing quickly and I'm doing ok . Just had my seven month PSA and it's 0.007 three months ago it was 0.009.

Kind Regards to you all.

 

 

Vern.

User
Posted 08 Sep 2023 at 13:31

Great result Vern.

Dave

 
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