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Bilateral nerve sparing

User
Posted 20 Mar 2023 at 08:19

I am due to have RP this week but starting to panic. The tumour I have is bilateral. Will this make nerve sparing more difficult?

User
Posted 20 Mar 2023 at 08:55

This is a question for your surgeon. It might make it more difficult, depending if the tumor is at or near the back of the prostate where the nerves are.


Since you're worried, contact the department. You may be able to defer it a bit if necessary for you to find out your situation and decide what you want to do. They can often pull someone else back into your slot given enough notice, so ask how long you'd need to wait if you deferred it.

User
Posted 20 Mar 2023 at 18:07

My surgeon did tell me before hand whether nerves were going to be sparked or not. In my case both nerves were sparred, however 10 months post surgery, still no erections.

Edited by member 20 Mar 2023 at 18:08  | Reason: Not specified

User
Posted 20 Mar 2023 at 19:52

Gee Baba - have you had any penile rehab: pump, Viagra, injections. From what I’ve read it can help to stop the atrophy during recovery time.

User
Posted 20 Mar 2023 at 20:25

Andy62
Spoke to the CNS today. She said that if I have been offered bilateral nerve sparing then the surgeon must be confident that this can be achieved - based on MRI scan.  Also said tumour is confined to the capsule which creates a layer between  tumour & the nerves.


Reassured by this but might still ring tomorrow & try to speak to a surgeon.

User
Posted 20 Mar 2023 at 20:31

Originally Posted by: Online Community Member


Gee Baba - have you had any penile rehab: pump, Viagra, injections. From what I’ve read it can help to stop the atrophy during recovery time.



Good question, I have tried all the above, but sadly not seen any improvements, I have got 2 high grade pumps, however the minute I come out of the pump, my penis deflates. I was prescribed 100mg Sidenafil, that did not work, then onto 20mg of Tadanafil, that also did not work. I know I should carry on trying, however not used either pumps in 2mths, and I do take the Tadanafil on days when I remember!

User
Posted 20 Mar 2023 at 20:42

Gee Baba


Have you read or watched John Mulhalll - he has some good advice. He also gives more realistic timelines.


 

User
Posted 20 Mar 2023 at 21:29

Originally Posted by: Online Community Member


Gee Baba


Have you read or watched John Mulhalll - he has some good advice. He also gives more realistic timelines.


 



John Mulhall? Never heard of him, thanks I will google him and let you know.

User
Posted 26 Mar 2023 at 00:20

Had my surgery on Wednesday. Surgeon came to see me on Thursday - he was aware of my NS concerns said surgery went well & both bundles saved 100%. If I didn’t have this feckin catheter I’d have jumped for joy. I know from this forum even with good NS ED can still be a problem. But at least it’s given me HOPE.

User
Posted 26 Mar 2023 at 00:30

Good news John, hope all goes well.

Dave

 
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