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PSA the same

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User
Posted 18 Apr 2023 at 12:15

Well that’s a bit of a shock.

latest PSA result is exactly what it was 5 weeks ago.

I am on Zoladex every 12 weeks and daily Appalutamide ….

my PSA had been going down every month. I have it tested every month because I’m on Apalutamide.

2 months ago it was 0.2 and dropped last month to 0.12 which another month on it still is.

is this likely to be it bottoming out ready to start rising, ?

or just bottomed out and this is as low as it is likely to go ?

or could it just be a blip and carry on down next time…..

 

last time I was on Zoladex it hit 0.03.

 

should I be concerned?

Shaun

sorry had to edit the PSA numbers… 0.12 is where it’s at.

Shaun

Edited by member 18 Apr 2023 at 14:52  | Reason: Wrong PSA numbers

User
Posted 14 Nov 2023 at 09:45

Another good PSA test.

down again .

now <0.05

apart from stiff hip joints and fatigue I feel great.

happy days

Shaun

User
Posted 18 Apr 2023 at 16:28
In your situation, the actual reading isn't as important as the trend so as long as the PSA is holding stable or dropping, all is well.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Aug 2023 at 12:36
PSA now down to 0.07 from two months ago when it was 0.08 ( I forgot to post ).

I have a prostate infection at the minute so that’s possibly the reason for the slight drop.

That said the oncologist said they are very happy with that reading and hopefully the meds …. Zoladex and Appalutamide will keep working for a good while longer.

Really made up with that.

Shaun

User
Posted 02 Oct 2023 at 09:38

Happy days.

latest PSA down from 0.07 to 0.06.

Not a big drop but that’s in 6 weeks.

I will take that as it’s still falling and I am feeling fairly wellπŸ˜ƒ.

Shaun

User
Posted 14 Nov 2023 at 13:17

Really pleased for you Shaun, onwards and downwards😊

Derek

User
Posted 15 Nov 2023 at 10:11
Great news Shaun, notice your coming upto the 8 year mark since diagnosis, keep going pal.
User
Posted 10 Jan 2024 at 11:24

Good stuff, Shaun.  I'm being treated at the Christie in Manchester, and in their view if a PSA reading is below 0.5 it's non-existent, so keep on keeping on!

User
Posted 10 Jan 2024 at 12:16
<0.05 is as low as your testing lab can go, doesn't get any better than that!

Will look at devil's claw....

User
Posted 10 Jan 2024 at 13:29

Originally Posted by: Online Community Member

Latest PSA … still <0.05 so it’s not dropped in last 12 weeks but I’m still really pleased.

The nurse

 from the Appalutamide company told me to try Devils claw for the joint pains….. It seems to have made a big difference , and did so very quickly .

All in all another good result and still living a fairly normal ish life.

8 years since initial diagnosis πŸ˜ƒπŸ˜ƒπŸ˜ƒπŸ˜ƒ

Shaun

Shaun,

Great news!

I’m also so pleased you’ve found something that helps your joint pains. I’m struggling with this on Prostap,  I wonder if this will help me? I will need to try and get a hold of this…anything’s worth trying.

Derek

User
Posted 06 Mar 2024 at 08:52

Great result Shaun, long may it continue.πŸ‘

Show Most Thanked Posts
User
Posted 18 Apr 2023 at 16:28
In your situation, the actual reading isn't as important as the trend so as long as the PSA is holding stable or dropping, all is well.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 18 Apr 2023 at 16:43

Thanks Lyn.

It was just a bit of a shock when it was the same as last month, I’d built it up in my head that I’d see it get into the 0.0’s but like you say if it stays stable I’ll be happy.

Shaun

User
Posted 08 Aug 2023 at 12:36
PSA now down to 0.07 from two months ago when it was 0.08 ( I forgot to post ).

I have a prostate infection at the minute so that’s possibly the reason for the slight drop.

That said the oncologist said they are very happy with that reading and hopefully the meds …. Zoladex and Appalutamide will keep working for a good while longer.

Really made up with that.

Shaun

User
Posted 08 Aug 2023 at 23:23

Great news Shaun. Hope your infection clears up soon though πŸ‘

User
Posted 09 Aug 2023 at 20:39

Great news, Shaun 2121!

Long may it continue.

Best wishes,

JedSee.

User
Posted 09 Aug 2023 at 21:44
Great news πŸ‘
User
Posted 02 Oct 2023 at 09:38

Happy days.

latest PSA down from 0.07 to 0.06.

Not a big drop but that’s in 6 weeks.

I will take that as it’s still falling and I am feeling fairly wellπŸ˜ƒ.

Shaun

User
Posted 02 Oct 2023 at 09:59

That's good.

Also note that COVID or a COVID jab can temporarily push it up considerably for a month or so.

User
Posted 14 Nov 2023 at 09:45

Another good PSA test.

down again .

now <0.05

apart from stiff hip joints and fatigue I feel great.

happy days

Shaun

User
Posted 14 Nov 2023 at 10:28

Originally Posted by: Online Community Member

Another good PSA test. 

 

Great news Shaun. Thanks for keeping us posted. πŸ‘

User
Posted 14 Nov 2023 at 13:17

Really pleased for you Shaun, onwards and downwards😊

Derek

User
Posted 14 Nov 2023 at 20:57
πŸŽ‰πŸ»πŸ‘
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 15 Nov 2023 at 10:11
Great news Shaun, notice your coming upto the 8 year mark since diagnosis, keep going pal.
User
Posted 15 Nov 2023 at 12:21
πŸ‘Anything with a < sign is as good as you can get. Hope it continues for you.

Cheers

Bill

User
Posted 10 Jan 2024 at 10:08

Latest PSA … still <0.05 so it’s not dropped in last 12 weeks but I’m still really pleased.

The nurse

 from the Appalutamide company told me to try Devils claw for the joint pains….. It seems to have made a big difference , and did so very quickly .

All in all another good result and still living a fairly normal ish life.

8 years since initial diagnosis πŸ˜ƒπŸ˜ƒπŸ˜ƒπŸ˜ƒ

Shaun

User
Posted 10 Jan 2024 at 11:24

Good stuff, Shaun.  I'm being treated at the Christie in Manchester, and in their view if a PSA reading is below 0.5 it's non-existent, so keep on keeping on!

User
Posted 10 Jan 2024 at 12:16
<0.05 is as low as your testing lab can go, doesn't get any better than that!

Will look at devil's claw....

User
Posted 10 Jan 2024 at 13:29

Originally Posted by: Online Community Member

Latest PSA … still <0.05 so it’s not dropped in last 12 weeks but I’m still really pleased.

The nurse

 from the Appalutamide company told me to try Devils claw for the joint pains….. It seems to have made a big difference , and did so very quickly .

All in all another good result and still living a fairly normal ish life.

8 years since initial diagnosis πŸ˜ƒπŸ˜ƒπŸ˜ƒπŸ˜ƒ

Shaun

Shaun,

Great news!

I’m also so pleased you’ve found something that helps your joint pains. I’m struggling with this on Prostap,  I wonder if this will help me? I will need to try and get a hold of this…anything’s worth trying.

Derek

User
Posted 10 Jan 2024 at 15:06

Good luck with your treatment. I had SABR done to the top of my spine at the Christie’s … great hospital .

User
Posted 10 Jan 2024 at 15:08

The devils claw has really helped me… she recommended Tumeric, but I was already taking that. That why she said try devils claw.

shaun

User
Posted 10 Jan 2024 at 17:31

Originally Posted by: Online Community Member

The devils claw has really helped me… she recommended Tumeric, but I was already taking that. That why she said try devils claw.

shaun

I’m taking turmeric, Vitenam D, Viteman E, glocusamine, cod liver oil, magnesium…and none of them seem to help😟

User
Posted 10 Jan 2024 at 17:36

What Brand are you using Shaun if you don’t mind me asking?

Thanks,

Derek

User
Posted 06 Mar 2024 at 07:13

Sorry Decho.

just seen your question.

i use A.Vogel…. Devils claw.

shaun

User
Posted 06 Mar 2024 at 07:17

Latest PSA is 0.05 … really pleased with that.πŸ˜ƒ

Its been that for 4 months now πŸ˜ƒ

User
Posted 06 Mar 2024 at 08:52

Great result Shaun, long may it continue.πŸ‘

User
Posted 30 May 2024 at 10:36

Well that’s a pleasant surprise πŸ˜ƒπŸ˜ƒπŸ˜ƒπŸ˜ƒπŸ˜ƒ

After being stable at 0.05 for 6 months ( I get tested every 6weeks ), my PSA has had a drop to 0.04.

And that’s with one of my two know areas still showing as active on a CT scan.

I thought 0.05 was as low as it was going to get this time round.

Shaun

User
Posted 19 Dec 2024 at 13:53

Not posted in a while.

My PSA got down to 0.03πŸ˜ƒ and stayed at that for a while.

Despite the low PSA, I was getting quite a lot of lower back ache.

Oncologist had an MRI done and it showed that the area at the bottom of my spine was still active despite PSA of 0.03.

I have previously had 3 areas treated with SABR and asked about getting this new area treated with SABR privately.

My oncologist took my case to the MDT and the agreed to the Treatment.

My PSA had now risen to 0.04.

I had 3 sessions planned to this small tumour.

Had to stop after the second due to pain.

After a few days had the third treatment followed by a lot of pain for 2 weeks.

I get PSA tested every 6 weeks, it’s back down to 0.03 for last two test.

I had hoped it to disappear but I’ll take 0.03 and reduced back ache.

Shaun

 
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