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Erection Ache

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User
Posted 24 Apr 2023 at 11:34

Although I’m On HT and RT I can still get a fairly good Erection with the right technique thanks to my wife! It doesn’t stay long but I can deal with that. I do get a slight ache in my penis though and I thought it was make just down to the pleasure, which is different (but still very nice!). However my wife has noticed I have a slight kink/indentation at the base of my penis and it’s a bit tender to touch when I have an erection. Never had this problem before, wondering if I have not been ’exercising’ it enough?

User
Posted 30 Apr 2023 at 18:08

Decho  Does your local hospital have an Ed clinic attached to the urology department? The McMillan nurse spoke to the sex therapy department and made an appointment for me (derby) they  spoke to me and my wife and we walked away with a prescription for viagra and a pump to trial, sometimes we just use the pump sometimes just viagra and sometimes both…. The effect has been fantastic , we are no longer in a sexless marriage.

User
Posted 24 Apr 2023 at 13:00
Lucky man that your wife is that observant! Mine just goes "wow amazing" well in my dream that's what happens!

Could be a touch of Peyronie's maybe a bit of RT damage? Either way check with your medics before pumping as that could be the cure or the problem.

User
Posted 24 Apr 2023 at 13:23

TBH we were both looking at it and saying ‘That’s not too bad considering!’🤣🤣🤣 when she noticed!

I did buy a pump from Lovehoney but haven’t used it much as it feels a bit tight with the constriction ring on it.
Sadly, it seems that those on the HT/RT seem to be treated as second class citizens when it comes to ED problems. I asked for a pump on prescription but was told to try viagra…which does work but that is not the point, I wanted it for rehab and to keep things healthy. I am going to ‘try’ and get an appointment at the ED clinic as soon as my RT is finished.

User
Posted 30 Apr 2023 at 18:15

Decho

Not true sexual health services vary across trusts. I had RP, been waiting since November for a referral to the SH clinic. Viagra? Got some from the Dr, but it's not a repeat prescription. If I want some more will have to ask. I really wanted some low dose to take every few days, but was told that they did not prescribe that any more.

User
Posted 30 Apr 2023 at 20:37

Hello Derek

Back in 2011 I started on HT, one month casodex followed by 3 years zoladex. and 35 doses of RT. Until 12 months ago when I started looking on forums such as this, I had never heard of ED clinics. Nobody at the hospitals thought to even mention them. In fact during one oncology consultation, when I mentioned the lack of erection, the female oncologist said, "Well there other things you can do as a couple"

User
Posted 30 Apr 2023 at 23:59

It sounds like Peyronie's disease, which is curvature of the penis, often (but not always) painful. It can also cause thinning (hour-glass deformity) and other shape changes.

It can happen if the penis gets injured (penile injections are a possible known cause) and forms scar tissue, which won't expand with the rest of the tissue and pulls on it. While you're on hormone therapy, it can also happen due to loss of multiple daily erections you are no longer getting in your REM sleep, which causes fibrous tissue to start forming and having the same effect.

This happened to me, and I asked a urologist. He said I needed to ask for a referral to a Peyronie's specialist, but as that wouldn't be immediate, to also get working on the penile rehab/physio with the pump. I did, 2 x 15 mins per day (that was a guess), but after just over a month, it had recovered. Mine wasn't painful and was rather more the hour-glass deformity. If it is painful when doing the penile physio, keep a close eye to make sure that's not making it worse.

Some months afterwards when the appointment came through, I did see a registrar (not a Peyronie's specialist). He had a good feel when it was soft and couldn't feel any scar tissue (called plaques), but it was fixed by the penile physio at that point, so that appointment was a waste of time.

For the SOMAerect Response II, there are some inner cylinders available for keeping the penis straight in order to try correcting Peyronie's curvature. (I don't have them.)

Edited by member 01 May 2023 at 00:03  | Reason: Not specified

User
Posted 02 May 2023 at 00:44
Peyronie's can also be caused by physical damage such as incorrect vacuum pump technique or trying to have intercourse when only partially erect. A man with Peyronie's can see improvement using a proper vacuum pump with instruction on how to use it safely but a cheap or ill fitting pump used badly can make it worse so do get medical advice first.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

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User
Posted 24 Apr 2023 at 13:00
Lucky man that your wife is that observant! Mine just goes "wow amazing" well in my dream that's what happens!

Could be a touch of Peyronie's maybe a bit of RT damage? Either way check with your medics before pumping as that could be the cure or the problem.

User
Posted 24 Apr 2023 at 13:23

TBH we were both looking at it and saying ‘That’s not too bad considering!’🤣🤣🤣 when she noticed!

I did buy a pump from Lovehoney but haven’t used it much as it feels a bit tight with the constriction ring on it.
Sadly, it seems that those on the HT/RT seem to be treated as second class citizens when it comes to ED problems. I asked for a pump on prescription but was told to try viagra…which does work but that is not the point, I wanted it for rehab and to keep things healthy. I am going to ‘try’ and get an appointment at the ED clinic as soon as my RT is finished.

User
Posted 30 Apr 2023 at 18:08

Decho  Does your local hospital have an Ed clinic attached to the urology department? The McMillan nurse spoke to the sex therapy department and made an appointment for me (derby) they  spoke to me and my wife and we walked away with a prescription for viagra and a pump to trial, sometimes we just use the pump sometimes just viagra and sometimes both…. The effect has been fantastic , we are no longer in a sexless marriage.

User
Posted 30 Apr 2023 at 18:15

Decho

Not true sexual health services vary across trusts. I had RP, been waiting since November for a referral to the SH clinic. Viagra? Got some from the Dr, but it's not a repeat prescription. If I want some more will have to ask. I really wanted some low dose to take every few days, but was told that they did not prescribe that any more.

User
Posted 30 Apr 2023 at 20:06
Hi Ernie3366,

I am going to phone my CNS as soon as my RT is finished and ask to be referred to the ED clinic. I know there’s a long waiting list but I can live with that. Viagra works fine for me but I want a proper pump demonstrated to me on how to use it properly so that I can keep it healthy.

Like Jim234 I was prescribed viagra(8 tablets, not sure how long they’re expected to last?) but not on repeat prescription so I have to ask for them…I have done this once with no problem but they might start to question it if I went in every week!

All the men I know who’ve had RP get automatically referred I think to the ED clinic but it seems that those on RT/HT don’t.I find this strange as we’ve got 3 years of HT to get through with zero libido!

Derek

User
Posted 30 Apr 2023 at 20:37

Hello Derek

Back in 2011 I started on HT, one month casodex followed by 3 years zoladex. and 35 doses of RT. Until 12 months ago when I started looking on forums such as this, I had never heard of ED clinics. Nobody at the hospitals thought to even mention them. In fact during one oncology consultation, when I mentioned the lack of erection, the female oncologist said, "Well there other things you can do as a couple"

User
Posted 30 Apr 2023 at 23:59

It sounds like Peyronie's disease, which is curvature of the penis, often (but not always) painful. It can also cause thinning (hour-glass deformity) and other shape changes.

It can happen if the penis gets injured (penile injections are a possible known cause) and forms scar tissue, which won't expand with the rest of the tissue and pulls on it. While you're on hormone therapy, it can also happen due to loss of multiple daily erections you are no longer getting in your REM sleep, which causes fibrous tissue to start forming and having the same effect.

This happened to me, and I asked a urologist. He said I needed to ask for a referral to a Peyronie's specialist, but as that wouldn't be immediate, to also get working on the penile rehab/physio with the pump. I did, 2 x 15 mins per day (that was a guess), but after just over a month, it had recovered. Mine wasn't painful and was rather more the hour-glass deformity. If it is painful when doing the penile physio, keep a close eye to make sure that's not making it worse.

Some months afterwards when the appointment came through, I did see a registrar (not a Peyronie's specialist). He had a good feel when it was soft and couldn't feel any scar tissue (called plaques), but it was fixed by the penile physio at that point, so that appointment was a waste of time.

For the SOMAerect Response II, there are some inner cylinders available for keeping the penis straight in order to try correcting Peyronie's curvature. (I don't have them.)

Edited by member 01 May 2023 at 00:03  | Reason: Not specified

User
Posted 01 May 2023 at 07:38

Wow! Thanks so much Andy62 for that information. Hour glass perfectly describes it but more so on one side. I never had this issue before I started HT so that could well explain it. I am definitely going to follow this up now with my CNS  and will even pay for a pump myself if I have to.

Derek

User
Posted 02 May 2023 at 00:44
Peyronie's can also be caused by physical damage such as incorrect vacuum pump technique or trying to have intercourse when only partially erect. A man with Peyronie's can see improvement using a proper vacuum pump with instruction on how to use it safely but a cheap or ill fitting pump used badly can make it worse so do get medical advice first.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 04 May 2023 at 12:33

On the slight Peyronie's issue - I agree about getting professional help, and in the meantime you can massage the affected area. It worked for me, not claiming it will work for anybody else. I wrote my story at https://www.recoveringman.net/non-surgical-treatment-for-peyronies-disease/ and included some links to published research on non-surgical treatment for Peyronie's disease.

I also had some slight aches for several months after treatment - like you I felt it was a small price to pay for the pleasure of my old friend being able more or less to stand up again. My treatment was surgery so not sure if source of aches the same. 

Best wishes with everything and glad you have a supportive partner!

 
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