I am on this trial and would like to contact any others on it too especially those on the same cohort. I was enrolled last September 2022 and had RP in March 2023. After randomisation I am on Intervention 2 which is HT standard NHS care - Enzalutamide 4x40 mg daily and Triptorelin injections every 3 months, RALP then hopefully RT SABR in the future.
Apart from some hot sweats and aching feet I have no other adverse reactions to the HT which started in September.
Post op incontinence is generally 1-2 pads per day. Nights are mostly dry, although I am having to learn about the new me and manage accordingly and do now get up once at night.
Last PSA pre op was undetectable and testosterone 0.7.
I am 70 and feel generally fit now and had no urinary or other symptoms pre op, not even getting up at night to pee.
It would be nice to be in contact with any others on the same clinical trial to share experiences.