Few Catheter issues post op

Thanks for the reply Chris, I’ve resolved some of my issues, the foreskin I’ve returned, tricky problem but if anyone else has it, start at the base of the penis and begin to pull the skin back at the base, once all done, then begin to pull up from near the bell bit, that worked for me, I was just trying to pull it up holding the penis mid way. Amazing this journey, never in a million years did I think I’d be describing this problem, but they all matter!!!

I’ve been given a number to call to order more bags so I’ll ask for a leg bag rather than above the knee, just what I’m used to.

I think the stocking issue is just not being used to wearing sock to bed, love them off my feet and all seems fine, I’m doing injections some hopefully all will be okay.

Thanks Chris, yes I must have replied before you but useful information with this issue as I couldn’t find anything on the search. 

I did for the first time see s very small amount of blood on the catheter tube at the penis entry, hopefully this should not be a problem if it doesn’t get worse, been 4 days since my RALP so early days, still not had a bowl movement yet, was not given any laxatives to take with me but have been lightly using them, might need to up the use a little, having fairly high fibre diet which normals makes me go, fingers crossed for tomorrow. 

Thanks Chris, I think I will try Senna tomorrow or similar.

The other issues is the constant feeling I need to wee with this catheter fitted, didn’t notice it first few days but now my mind is fixated by it! I’m sure it’s just in my head as obviously need to pee has gone, I’m almost wanting to get up and go to the toilet. 

Once the catheter is out will this feeling persist? I’m sure it will take time to adjust, any drinks to avoid. Sorry I know people on here have much bigger issue to deal with tun this. I’m also really surprised how often I fill the leg bag, sometimes after an hour it’s full, the larger night bag seems to be about 3/4 full in the morning, is this about normal, seems my body just doesn’t want to retain any fluid at all! 

I’m a couple of weeks ahead of you having had my op mid April. Willy was like a button for the 1st few days post op and foreskin peeled back. Painful and worrying that Willy had gone! Post catheter removal foreskin slipped back into place of its own accord after a couple of days. I was too scared to try and force it back as it was swollen and painful. Willy has recovered but not to previous size which I understand is a side effect surgeons never mention. I’m on silendafil which has so far had no effect but early days and the nurses did say it would take time. I have also been prescribed a pump but told not to start using it until after I’ve seen the surgeon (scheduled for week 8 post op). One side effect of ‘wee Willy’ is that when peeing sometimes due to size it dribbles down and wets trousers as no control. Something I need to work on! Can’t believe I’m putting this down in writing something I would not have considered a couple of months ago. Good luck with your recovery. The one thing I’ve learnt is take it slowly.

It may not be talked about as much as it should but I think a lot of men find it less messy to pee sitting down post-op

Normal to lose 1"-2" in length , depending on the size of your prostate and therefore how much your urethra has been shortened. Good penile rehab and a bit of luck means this may not be permanent although it often is. Our surgeon had a patient who lost so much length that he was never able to pee standing up again 😔

Edited by member 09 May 2023 at 22:06  | Reason: Not specified

Time and gravity will help everything drop a bit lower - as will gentle pulling and then the vacuum pump when you are allowed

Thanks for all the replies, just an update.

Had the catheter and clips removed today, 10 days after RLAP, both painless and mild discomfort at most for me. So far no leakage and flow like I’ve never seen it before!. I drank about two litres of water and one coffee, I’ve been peeing way too much, probably been about 8 times since this morning, I think my bladder does not hold much urine before I get the urge to wee, something I’ve suffered for a long time, hopefully once I’m back to normal living and drinking less this will settle.

I had one nerve bundle spared, not sure about ED yet but I’ve been prescribed 20mg Tadalafil, one tablet twice a week, 3 month supply given. How long should I wait to see if I can get an erection? Should the nerves be given a chance to recover, the nurse just said refrain from sex for while but nothing about doing some pre testing!!

I was a little confused about staging, after my MRI and biopsy I was told my stage was T3a NO MX gleeson 7 (3 + 4), but they weren’t sure if the cancer had breached the prosate gland, however after seeing the surgeon, he wrote and said it was T2 and even showed me the scan which showed it inside the wall. Now that the surgery has gone ahead and only one side nerves were spared does that mean that my initial T3 staging was correct or are the nerves still within the prostate? Would it be that my chances of re occurrence are greater with only half spare? The surgery team did say they got all of it but im just concerned it breached, I’ve got an appointment in a few weeks to discuss this but I always leave feeling a should have asked more questions when I see the consultant. They used Nerosafe when they did mine so the Samples would have been tested while doing the procedure so would have know the nerves positive before removal.