Hi D Bear,
Everything you say resonates with me. I love the bit about the ebike. My ebike is my saviour, I can get in it and cycle for 50 miles no problem, but getting my leg over(in more ways than one!🤣🤣😊) is like Ooooph!😟
we have a place in Fuerteventura with e-bikes there as well and I was down on the floor fixing something on the wheel and I just could NOT get up. I had to bum my way into the hall(fortunately it’s tiled!), sit on the first step of the stairs and haul myself up using the banister…fortunately I saw the funny side of it and just burst out laughing, but on more than one occasion I’ve burst into tears😢 Oh the joys of Prostap!
I’m 18 months into ADT with another 18 to go, but the joint issues started about 8 months ago and got steadily worse. I think it’s getting slightly better now….I’ve started acupuncture again and also started taking Magnesium Glycinate as well.
I see you do a huge amount of exercise and still suffering, I would have thought that would help. I too am quite active but not to your extent and also find that it doesn’t really help much, although the cycling helps loosen my knees.
MY Onco suggested to me it might just be old age and I nearly swung for him. Before this disease(and COVID) struck we headed off to Colorado every year to ski, but the thought skiing now is furthest from my mind. it is my goal however to get back to it in some form(maybe one of these ski scooter thingies😂) to it once I’m finished with this ‘poison’
Yes insomnia is another issue although recently I’ve been a bit better, but before sometimes it could take me 4 hours to get to sleep. And then the flushes….I get into bed, lie for a while reading ro watching TV and am fine, but as soon as my head hits the pillow…BANG! Every single night! I know it’s coming because I get agitated just before the event. It doesn’t last long but does nothing to help me get to sleep. I’ve started taking a couple of paracetamol just before I get into bed and that seems to have helped. I bought a small table top fan with a step less motor which sits on my bedside table. It’s good because it’s stemless you can turn it right down and it’s very quiet and provide a very gentle breeze to my face.
Hot flushes during the day are annoying but I can deal with them and they are nothing like as bad as they use to be.
My friend from Maggies who is on the same path as me suffers extreme fatigue…he can’t even walk the dog.
One thing IS for sure, there is just NOT the support for those of us on HT. I feel abandoned since finishing RT, the attitude seems to be ‘Suck it up, it’s only for a limited time(3 years!) and it will ‘hopefully’ help cure your cancer’.
So, in Answer to your question, NO it’s not old age or an old injury, you’re young(relatively😉) and obviously very fit and active, so it’s either…
1. The drug itself. or
2. Lack of testosterone
I tend to lean towards the former.
but you can’t give up, you just have to keep going, doing nice things helps me from slipping into depression. Last night I booked a night away in Pitlochry on the 21st December, we’re going up to watch ‘Sunshine on Leith’(The Procalimers), having dinner and staying the night, a lovely breakfast, long walk and then a nice afternoon tea in Fischers Hotel to round off the trip..Really looking forward to it..I had my PSA test this morning and helps keep my mind of the result…which in Scotland I have to wait a week for😡
All the best to you and I hope you have a nice Christmas…and we MUST continue to compare notes!