12 months after my SRT I noticed a reduction in flow, referred to urologist and after a scope was used they diagnosed a bulbar (that’s the area at the base of the penis) stricture it was about 1 cm long and my flow was reduced to less than 2ml at diagnosis. That was in 2020. I have had 3 dilatations since each time over a six month period my flow drops from >15ml to < 5ml.
At the last session completed two months ago I was asked to consider self catheterisation as a longer term option to manage the flow. Which I now do weekly and it’s easy.
I was told by my Radio Onco (Prof) that strictures were extremely rare and that I should not be concerned (since I specifically wanted to avoid this outcome) in reality they are much more common. You have to laugh with this disease it constantly gifts things you don’t want.
Strictures fall into a number of categories. Those like mine that operate/close over a six month period. Those that last 1-3 years and some that never return after dilatation. Each group is approx 1/3rd each.
The good news. Despite my fears. Managing self catheterisation to 16 CH weekly is really, really straight forward. Also if you desire you can have surgery to fix them. I may eventually go down this route with high probability of cure. But for me I have been on the wrong side of every percentage chance on this journey so far and will happily do self catheterisation. Plus you get training on how to do it from a hot nurse. Lol
My three dilatations have been done under a local (they apply a gel) anaesthetic and the whole process is at worst and at peak only mildly uncomfortable. My first consultant doing the dilatation described my stricture as soft. If they can get a scope through to your bladder (the scope is 14 CH) then you can easily do a full dilatation to 20 CH whilst awake. I like looking at the screen and watch the camera and ask questions anyway.
Edited by member 09 Aug 2023 at 11:13
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