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Winky shrinkage

User
Posted 29 Aug 2023 at 12:52

After 2 weeks on Tadalafil, as suggested by the ED nurse I took  a 100 mg sildenafil. The only difference I noticed was that it gave me a headache! I didn’t see any difference in my erection, which is reasonable although because of the Peyronie’s I can’t have penetration….still can have fun thoughπŸ˜‰πŸ˜‰

one thing I have noticed though is my foreskin is VERY tight, it’s always been quite tight but now with an erection it really doesn’t retract at all. Anyone else on the RT/HT route noticed this?

User
Posted 29 Aug 2023 at 13:20

A similar question (although specifically mentioning lichen sclerosis) came up in the facebook group just recently, which I responded thus...

There do seem to be some chains of events which prostate cancer patients should be aware of...

Treatments often result in loss of erections.
Some treatments and/or loss of erections leads on to penile shortening.
Loss of erections does sometimes seem to lead on to phimosis.
Penile shortening and/or pubic fat growth can cause "buried penis", making standing to pee impractical.
Phimosis or buried penis leads on to inflammation because cleaning becomes impossible.
Inflammation and/or constant urine contact due to incontinence may cause lichen sclerosis (I don't think this is fully understood).
Lichen sclerosis is a known cause of penile cancer (although I haven't come across a case starting from prostate cancer treatments).

I think it's important men keep their penises working properly, even if they have no interest in erections or sex. They probably still want to be able to stand to pee, and to keep themselves clean and inflammation/infection free. That probably means any man who isn't getting regular spontaneous erections should be regularly using a pump for penile physio, again regardless if you are interested in erections or sex.

If you do have phimosis, simply stretching things can make it worse by causing micro-scarring and more fibrosis, so you will need to get that sorted by going to see your GP or urologist before you start using a pump. Steroid creams sometimes help, but if that fix doesn't persist when you stop them, circumcision might be required. (I don't think you can simply stay on steroids forever without getting other problems.)

User
Posted 29 Aug 2023 at 20:11

Thanks everyone for your replies, wow it's a lot to take in, I'm keeping myself clean, sometimes taking 3 showers....coughing is my nemesis!

I'm mainly dry....which I'm taking some confidence. Been sleeping pad-less for the last 2 weeks which is only 2 weeks post opp.

I'm still not sure when to use pump as I've read a week after catheter removal is safe??? 

Think I need to buy a quality one as my eBay special might not cut mustard...they seem to be very integral part of getting the norm back.

Thank you so much everyone who has commented, I appreciate your help and time.

Stephen

πŸ‘πŸ‘

Edited by member 04 Jan 2024 at 09:34  | Reason: Not specified

User
Posted 29 Aug 2023 at 20:26

I commonly hear men told to hold off using the pump until 6 weeks after the op or 6 weeks after catheter out. It's really a question for your surgeon.

However, doing continuous dosing with Tadalafil from now (or even a couple of weeks before the op) is usually considered a good thing if you had nerve sparing. This is either 5mg daily low dose or 2 x 20mg/week. This is unlikely to enable erections so soon, but it improves blood flow in the area which improves nerve healing. The 2 x 20mg/week regime might enable you to start getting erections shortly after taking the doses earlier than you could without the medication.

Edited by member 29 Aug 2023 at 20:27  | Reason: Not specified

User
Posted 29 Aug 2023 at 20:41

 

Thanks Andy for reply

Do you think I should buy some Cialis? Or go to the doctors to try and get prescription which will be before my consultant psa opp?

 

User
Posted 29 Aug 2023 at 20:57
Following up to Decho. Where I am the advice about a pump and tadalfil (including the prescriptions for getting them) only came at a follow-up appointment with the PC nurse a couple of months after the operation. The first few times using the pump my glans and foreskin were VERY tight, to the extent I had to limit the vacuum or it hurt. However over time things improved.
User
Posted 29 Aug 2023 at 20:57

No harm in asking for a prescription from your GP or the hospital. Your GP might only be prepared to give you the standard ED dose (20mg/week), not really understanding that's not the current purpose of it. Some might refuse to prescribe Tadalafil at all and prescribe Sildenafil (Viagra) instead, but that doesn't work for nerve healing because it can't achieve continuous dosing (well not unless they prescribe it 3x per day) because it's so short acting.

If your surgeon tells the GP t prescribe it, the chance is better of getting the right thing, although not even that is always successful as some areas seem to have a blanket ban on prescribing Tadalafil. If you want to buy it yourself, still ask your GP or hospital to write a private prescription so they're still verifying that there's no medical reason you can't take it and it's recorded on your medical record. (There has been some talk of making one brand of Tadalafil available without prescription in the UK, but that hasn't happened yet as far as I know.)

User
Posted 29 Aug 2023 at 21:48

https://www.boots.com/cialis-together-tadalafil-10mg-tablets-4-tablets-10329996

£17 for 4

I'll buy some just for the future improvement then hopefully I'll get a prescription.

Thanks Stephen πŸ‘πŸ‘

User
Posted 29 Aug 2023 at 22:12

That's a ridiculous price for 4 half dose tablets.

User
Posted 30 Aug 2023 at 19:09

Hi Dry Guy,

I agree with Andy62 that £17 for four tablets (which are only half the usual dose) seems very expensive.  Have you tried other online chemists or providers?

Best wishes,

JedSee.

User
Posted 30 Aug 2023 at 19:27

It may be expensive, but hopefully this is a one off until you get a prescription (free for cancer patients).

Dave

User
Posted 30 Aug 2023 at 19:36

Hey JeeSee

No, never bought any from anywhere. I weren't too sure if some of the cheaper ones were fakes of scam websites.

Looked at Pharmacy2u?? £10 for 4 of 20mg which seem cheap but they need a prescription?? 

If I had a prescription I'd get them from doctors???   Probably for people who uses more than they can get prescribed?

It's a minefield what to do, I just want to do what's right to get future erections and to stop winky shrinkage. But been advised by one of the gents not to use a pump yet as it's 5 week today since opp.

Thanks for much needed advice

Stephen πŸ‘πŸ‘ 

 

Edited by member 30 Aug 2023 at 19:43  | Reason: Not specified

User
Posted 30 Aug 2023 at 20:17

You are obviously in the UK so the NHS prescribed pump is as goos as it gets. I am quite happy to exchange private messages with you, if it helps. By nature I am modest but if there is something I know a lot about is VEDs. since our intimate life for the past 12 years has been maintained by VEDs. Cheap pumps from sex shops are ok for practice and fun but otherwise they are useless! Good luck. By the way I have posted a survey of popular pumps with my recommendations for best buys on this side. You can access it if you follow this link:

https://community.prostatecanceruk.org/posts/t28948-Re-establishing-Sex-Life

 

 

 

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 30 Aug 2023 at 21:10

A quick google search just turned up 20mg Tadalafil for £2.12 down to £1.40 per tablet depending on qty.
The 5mg daily low dose around £1 per tablet (more for low numbers, less for high numbers). These are from a UK online pharmacy. They'll also write you a private prescription for a few pounds if you don't have one.

If you find much cheaper than that, they're probably produced in India and not EU/UK certified, and maybe not manufactured and tested to the standards they would be if EU/UK certified. There are fakes around too.

If you want branded Cialis, it will be several times the price.

Like I said, if you can't get them on the NHS in your area, at least ask for a private prescription from your GP to start with, so your GP is certifying you're OK taking them, and it's recorded on your medical notes, in case anything happens as a result.

Edited by member 30 Aug 2023 at 21:11  | Reason: Not specified

User
Posted 30 Aug 2023 at 21:14

Originally Posted by: Online Community Member

Looked at Pharmacy2u?? £10 for 4 of 20mg which seem cheap but they need a prescription?? 

If I had a prescription I'd get them from doctors???   Probably for people who uses more than they can get prescribed?

There are two types of prescription private or NHS.

When you buy online you don't need a prescription before you go on the website, and you will have a private prescription by the time you leave the website.

You decide what you want, you add it to your cart. You will then have to answer a few medical questions. A doctor employed by the online pharmacy reviews your answers and then issues a prescription, if he thinks appropriate, they then charge your credit card and send the drugs.

I would be happy to buy meds online from a UK based website.

Dave

User
Posted 30 Aug 2023 at 22:07

Thanks Andy, Dave & Pratap for your time & ongoing help.

Which website should I use? Any recommendations?

Thanks in advance

StephenπŸ‘πŸ‘

User
Posted 30 Aug 2023 at 22:36

I would use any UK pharmacy. The site will somewhere have a logo with a green cross and a number (about 8 digits on it) and the words "Registered pharmacy" if you click the logo it will take you to this website https://www.pharmacyregulation.org/

Check all the details such as web address, registered address all match. Between the two sites. I'm sure fraud and fakes could still happen, but I think you will be ok.

Dave

User
Posted 30 Aug 2023 at 22:55

Thanks Dave, you're the man! I'll have a butcher's

πŸ‘πŸ‘

User
Posted 11 Sep 2023 at 16:45
Menschem.co.uk

I have used for over a year and are very good. Next day delivery via Royal Mail.

I also have seen people on here suggest splitting tablets. Tadalafil are not designed to be split and you cannot accurately predict the strength of the resulting 2 halves of tablets.

User
Posted 11 Sep 2023 at 18:12

Thanks Speedster, I'll have a look as I need some daily ones as I just got 20mg.

Actually might wait as I see my consultant next week, he may send me to see a Stiffy quack.

I won't split them as previous gents said they give bad indigestion.

Thanks again mateπŸ‘πŸ‘

Edited by member 11 Sep 2023 at 18:54  | Reason: Not specified

 
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