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Post RP results ...

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User
Posted 20 Feb 2024 at 17:46

Ah thanks Steve and Decho. Re treatment times I thought it might be 5-7 weeks? If it’s only a few sessions we might still get away for June hols 🙄

User
Posted 20 Feb 2024 at 18:51

KD, you need to check with your oncologist, I had 33 sessions of SRT,but that was 7 years ago. A quick search of posts still shows guys having 33 sessions for SRT. 20 sessions is now common for guys having RT as primary treatment. I have also had just 5 sessions to a single lymph node. 


It's a combination of postcode lottery and progress.


I had my treatment over the Easter period and it took 50 days


Thanks Chris 

Edited by member 20 Feb 2024 at 18:56  | Reason: Not specified

User
Posted 20 Feb 2024 at 19:41

I did a bit of a dig around and found an interesting science paper on SRT which gives the average duration of SRT as 48 days - but that's average so there will be some less and some more. Don't know if that helps.


Here's the document Frontiers in Oncology

User
Posted 20 Feb 2024 at 20:29

Lymphocele and Lymphoedema are different (I've experienced both ). It's good that you have an immediate referral to the Lymphoedema clinic. I had a bit of a wait. Where is his Lymphoedema KD123? The usual treatment is compression garments. I have wear a full length compression stocking on my right leg. This has kept the swelling under good control for the last year or so. I was in a similar predicament to your OH. The first PSA after RP was 0.28. I had 33 sessions (47 days duration) of SRT to the prostate bed in 2022 along with six months of Bicalutamide. PSA now remains undetectable 🤞. 

User
Posted 20 Feb 2024 at 21:20

Interesting paper Steve- so from what you and Chris C are indicating it looks like it’s going to be a few weeks of RT then. Oh well better to know now. Thanks so much for researching. There’s some interesting commentary about the RADICALS-HD trial and the duration of ADT - that 24 months may not be optimal in all cases depending upon pathology. Yet today a friend of ours with BCR (a Gleason 7- 3+4) was told at Christie’s that he’ll need RT and possibly/probably 24 months if ADT yet his pathology nowhere as severe as my OH’s. So wonder if we’ll get to escape HT?! 

User
Posted 20 Feb 2024 at 21:24

Really helpful Chris C-  good to know for planning purposes but 50 days- wow that’s a big commitment isn’t it but needs must. I’ve been following your progress re targeting single lymph nodes -  a great example of doing what’s right for you not just accepting standard protocols. Keep well


BW


kate 

User
Posted 20 Feb 2024 at 21:28

Hi Chris B, I remember your experience and mentioned the risk of lymphodema to the surgeon when we discussed RP. He dismissed it and made me feel small for even asking! 🤔 it’s in his left legs foot to right thigh. Been wearing a compression stocking which is keeping it under control for now. GP  thought it was a problem with his varicose veins! 
and that’s so encouraging re your PSA results Chris- OH was a bit sad tonight as reality sinking in that this is not going to go away anytime soon but your experience is a great inspiration. Keep well


all the best


kate 

User
Posted 21 Feb 2024 at 07:15

If it brings about a cure then I can live with the side effects of treatment. They are a nuisance but they have not stopped be doing the things I was doing before PCa. The Lymphoedema post surgery was just a slight swelling at the top of the inner thigh and round the pubic bone. Unfortunately that worsened after SRT to affect the whole leg. I found that puzzling in view that the target area was supposedly the prostate bed. I only found out recently from the Onco that the whole surgical area was targeted ie where the lymph nodes were taken out.

User
Posted 14 Mar 2024 at 21:30

So here we go; latest PSA today 0.12 up from 0.08. Due to see oncology in c2 weeks so no doubt will hear more about what is planned. But clear from surgeons comments at the lymphodoema consultation that RT will be recommended ‘to get in early’ but no idea if that includes HT. 


OH understandably deflated but hopefully being at Anfield tonight will cheer him up! 
@Steve86 be interesting to see how treatment differs if at all from yours .

User
Posted 14 Mar 2024 at 21:44

I think Anfield will DEFINITELY be cheering OH up!😊


Tell him not to be too downhearted, at least he HAS a plan B!

User
Posted 14 Mar 2024 at 22:08

Well if that score doesn’t I don’t know what will! 
thanks Decho - yes you’re right we need to focus on the fact there’s a Plan B- reoccurrence was always on the cards so not a total surprise x

User
Posted 15 Mar 2024 at 15:52

It's not the news you were hoping for but probably expected given the pist surgical results. If he does get six months of Bical most of us to tolerate okay. My only real issue was the breast buds but they did  return to normal eventually. 

User
Posted 15 Mar 2024 at 17:33

Thanks Chris that’s good to know. We’ve got a v quick consultation with the surgeon on Monday afternoon so will probably find out a bit more about what’s likely. 

User
Posted 23 Apr 2024 at 17:38

Thoughts welcome! Just back from seeing a very friendly oncologist. 2 years 150mg bicalutamide (plus tamoxifen) and 4 weeks of radiotherapy in 2 months time. Given that I’ve read a lot about others having injections think we were both surprised that the oncologist went down the bical route. 
I’ve been v positive based on i think  Chris’s comments that most men tolerate bical quite well. Hope it’s true for my OH. Oncologist did say he could stop if he hated the HT. v interested to hear what you all think  


many thanks Kate 

 
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