meeting with oncologist discussion

So he's saying you have no evidence of disease.

That's a good start for trying to get TRT if you want it.

You need to ask for a referral to Andrology for low Testosterone.

Best wishes,

Chris

You are having to navigate an NHS bureaucracy and no one wants to take responsibility for your treatment (they get paid the same whether you're ill or not, so it's easier pass the buck than risk treating you).

It is ten years since you were treated for cancer, you are probably all clear, but there is a tiny chance you are only clear because you have no testosterone.

The lack of testosterone is clearly having a significant impact on your quality of life, and your health. The GP should(must) refer you to an andrologist, if he won't, ask him why he won't? and ask him to send that reason to you in a letter.

The andrologist will be scarred the testosterone may revive the cancer, ask him if that is the only reason he is not prescribing TRT? Tell him the oncologist says you are cancer free. If he still refuses TRT. Tell him to put his reasons down in writing and send it as a letter to you. Tell him you will forward the letter to the oncologist, or for speed he may want to copy the oncologist in directly himself.

The oncologist will try and ignore everything so you will have to ask him to reply and either confirm or deny the validity of the andrologists opinion on the separate specialism of oncology, in which he is not trained (if you can start a turf war, you gain all the power, your thumb 👎👍 will decide the winner, and I'm sure that will be the one offering the treatment you want).

The main point of all the above is that you are letting everyone know you are building a paper trail of evidence. Passing the buck is easy, but it's harder to defend when it is clear who passed the buck to whom and when.

Now the clinical decision that the one medic where the buck stopped makes, may or may not be correct. If you think it is incorrect you will know which specialist is stopping your TRT and you will know which department must give a second opinion on your case. If you need to make a PALS complaint you will know who you are complaining about. 

Now I don't know what the correct medical decision is, but all the above will make sure the medics are thinking very carefully what is the correct decision.

BAT (bipolar Androgen therapy) is a form of hormone therapy for men who have become castrate resistant even after using novel hormone therapy drugs such as Abiraterone, Enzalutamide, etc. It does improve quality of life, but not much evidence of improved longevity, and it doesn't have much credibility currently. The only person here who tried it died on the first Testosterone cycle as far as I remember.

The last thing you want at this stage is any form of hormone therapy.

Prostate cancer is monitored by PSA after treatment. Scans are not as sensitive and not done unless your prostate cancer was a non-secretor of PSA originally.

I suggest you stop bringing up BAT with clinicians, which most oncologists and urologists probably never heard of anyway, and is irrelevant for you.