Hi all,
First post here.
Diagnosed with PC in mid April with a PSA of 4.92. DRE found something, MRI confirmed that, biopsy 4/17 positive, M0N0, T3a, Gleeson 8, CT thorax / pelvis and bone scans clear. I think they said the cancer was 13mm long and on one side but was considered to be 'High risk'.
Told outcome of surgery or RT would be identical, chose surgery at UCH as I could have a second bite of the cherry with RT later if needed.
The morning before surgery I had a bit of a breakdown, managed to get to a local PC meeting, had another breakdown but they were very supportive but suggested I really wasn't in the right headspace to make such a big decision.
I tried to notify UCH of my change of heart but the NHS admin seems to be closed from 4:30 on a Friday till 8am on Monday. I did manage to leave a message with a night nurse but still got a call at 8am on the day of surgery, asking where I was. ;-(
So, I hope I have now triggered 'the system' to get me back onto a treatment path with emails and phone calls etc and have made some enquiries re getting on any of the shorter treatment trials (like PACE-C?) because it might mean I'd still be more functional so I can look after my wife who has dementia.
The person from radiology mentioned they had also seen a '4.5mm node on my lung' (but not to worry!) and I think they were going to check on that at the CT scan after 3 months (post surgery)? I volunteered to go on a trial for 'cancer metastasis for treatment stratification of localised cancer (C-ProMeta-1)' but not sure if that is still relevant.
Basically I'd just like to be able to live long enough to care for my wife.
Any thoughts or suggestions welcomed.