Diagnosed Dec 2022, Stage 4b Metastatic Prostate Cancer
Hi All
So my treatments have now all finished (chemo, orchidectomy, RT, Darolutamide). Been a long year with it all spanning Dec 22 to October 23. I'm now waiting the requisite 6 weeks after RT before re-checking PSA levels, and will be doing that every 3 months apparently.
One disappointing thing is that my liver couldn't take the constant Darolutamide bombardment. I had been on it since January 23, but in late August I was hospitalised with drug induced liver injury (rather painful 5 days until it got under control). LFTs were sky high, with ALT readings into the 1100s. Since stopping Darolutamide they have dropped dramatically and should return to somewhat normal in a month or two. I can never go back on to it.
I suspect not having Darolutamide in my treatment will effect my prognosis (at a guess this is probably 6-18 months off my 5-8 year estimate at the start).
I was lucky to get on a weeks adventure with Odyssey last week, which is a charity that bring together cancer patients after their treatment for some bonding and outdoor activities to boost your mood and make some new friends. Was a great time and I really appreciate the guys and girls who run Odyssey and have donated to their cause.
Rob