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User
Posted 03 Nov 2023 at 09:03

Hi all, I had rarp surgery on the 20th October 2023, all went well with the surgery and the surgeon said that he's managed to save one side of the nerves. I had my catheter removed on the 1st November and was allowed home after a few hours, since the catheter has been removed I have been leaking quite a lot during the day mainly when I'm walking or any movement, at night its very minimal. I'm probably changing pads around 4 times a day at present. I'm still quite sore down below so I imagine things are still healing, also I think the catheter has made thing sore too as I experienced bladder spasms, when I now go the bathroom to pee at the end of the cycle I get some pain when stopping, my urine is a bit cloudy so its currently being tested today at my local health centre to see if I have an infection ( I did mention this to the nurse when the catheter was removed but nothing was tested.)

I'm getting up twice in the night to use the bathroom at present and Im drinking around 2 litres of fluid a day (no caffeine/pop/alcohol), I'm using the squeegy app to do 4 sets of pelvic floor exercises a day and following the guidelines for healthy eating. 

Has anyone else gone through this ? And should I try and be more patient with time to heal etc ?

Many thanks 

User
Posted 03 Nov 2023 at 10:08

Hi, I didn't have surgery so I can't offer any personal experience, however I've been reading this site for a few years.

I would say you are making excellent progress. Some people are completely dry on day one, that is very rare. Some people have zero control on day one, that is not unusual. Most people have some control. For everybody it improves usually over the next year. Quite a lot of people will still use a pad for safety, or if they know a particular situation they may leak in. Cloudy urine may be an infection, but there is still debris from the op so it may be no concern.

You very wisely asked the question: "should I try and be more patient with time to heal etc ?"

The answer is YES. 

To take another one of your sentences: "I imagine things are still healing." No imagination is required, you are still healing and will be for at least another four weeks and possibly upto another six months.

The worst thing you could do is start rushing in to strenuous activity. One person on this site was set back just by unloading the shopping from the car. Everyone is different and will heal at different rates, being young you will probably heal quickly. Trying to push things will not speed up the healing process. I am sure you want to get back to normal activity levels but it is not worth the risk by being impatient. 

Follow your surgeons advice on levels of physical activity.

Most people can get back to walking quite quickly. Anything beyond that such as cycling, gym, golf, take your time. If they are a major hobby of yours and you can't live without them, yes try and ease yourself back in to them at about the six week mark. For golf that may mean putting rather than playing a hole, but even bending down to pick a ball out the hole could be risky in the earliest days post op.

So in short, you're recovering better than most at the moment, things will almost certainly improve, try to get back to normal activity, but be aware there is a lot of internally injury which is healing.

 

Dave

User
Posted 03 Nov 2023 at 10:13

Bobby , I was very lucky, I saw a massive change within the first 4 days post catheter removal. I was 99 percent dry 4 days after catheter removal. As you say lots happening down there. 

I did get recurring infections after surgery,they eventually found a surgical clip in my bladder, it's supposed to be a 1 in 500 event, in fairness I haven't seen so many reports of it happening lately.

If the spasms don't go away there are some good anti spasm meds. There are gels designed for urethral use if the eye of the penis is sore.

As you say you need to have a bit more patience.

Hope all goes well take it easy but keep mobile.

Thanks Chris 

Edited by member 03 Nov 2023 at 10:14  | Reason: Not specified

User
Posted 03 Nov 2023 at 11:32

Morning,

I had RARP nine months ago and I'm just about back to normal.

I felt very despondent for the first few weeks. Although dry at night, during the day my peeing was out of control. I contacted my specialist nurse who told me generally it took about 6 months for men to regain full bladder control.

Things will improve mate, you've just got to try and be patient. 

Adrian

 

Edited by member 03 Nov 2023 at 11:42  | Reason: Not specified

User
Posted 03 Nov 2023 at 15:05

 

I had surgery Easter 23 and after the catheter was removed I could not as they say hold water and was on 9/10 pads a day and wetting through occasionally as well. Not a good time. But things improved and by the time I went back to work after 7 weeks I was on 4/5 pads a day. Now I’m on 1 pad occasionally 2 if I need to freshen up  if going out on the evening and it’s getting better but I’ve not got the confidence yet to go without.

Be patient and listen to your body. I walked too far after 3 weeks and suspect it knocked me back a week in recovery. I have only just gone back to the gym and not lifting anything heavy.

As has been said everyone is different so don’t get too worried about progress.

Good luck with the recovery

 

User
Posted 03 Nov 2023 at 18:27

I had my urine test back today from my doctors surgery and they say I do have a water infection, when I had my catheter removed on Wednesday at hospital I told the nurse this and they said they would check but in the end didn't check it at all and I was sent home with the infection, so I decided to have urine test at my gp instead, I'm glad I did. Also I call the urology nurses at the hospital to ask if results have come back yet but they haven't, I also mentioned to her about the water infection that wasn't picked up and she said we wouldn't deal with that anyway and you would have to see your gp, then I mentioned about leaking still and she said that could happen forever, thanks for the positive !!

I'm now on a weeks course of antibiotics for the infection.

Edited by member 03 Nov 2023 at 18:28  | Reason: Not specified

User
Posted 03 Nov 2023 at 20:26
Bobby, your experience of pad use and urine leakage just two days after catheter removal sounds pretty normal - certainly that was where I was. But getting a urine infection is bad luck, and might mean that once it is under control you will actually do better.

To be honest we all react differently so it is difficult to say what is "normal", particularly in these early stages. Some men regain total continence very quickly, others have continuing problems. But it is pretty typical to take several months to stabilise, and until then you are best being patient.

User
Posted 03 Nov 2023 at 20:20

Hi Bobby 70,

I had very bad urinary incontinence after my surgery (June '22).  At first I was using about 8 pads per day, but this has improved over the months and I'm now using about 3 pads per day.  So, I would say that it is very early days for you and you are doing quite well.  If you also have a urinary infection on top of the surgery, I would suggest that you're doing extremely well!  But  I would recommend that you keep up the Kegel exercises / Squeezy app., and exercise moderately to begin with.  You can build it up slowly.

Good luck.

JedSee.

User
Posted 08 Nov 2023 at 15:42

Hi Bobby, still early days but it should improve over time, weeks, maybe but not days. Like you I leaked on walking, changing pad multiple times , and not leaking at rest. Over a few months I got it down to 1 pad a day even with long walks.

Walking is good, but careful at this time with the dog, especially as you say he pulls. No lifting either for 6 weeks, let the abdominals heal. Sounds like the wounds are as you say healing well. 

P.

User
Posted 08 Nov 2023 at 18:41
It is a great shame if your medical team didn't explain to you what to expect post-op. It is perfectly normal to have incontinence this soon after the catheter was removed, and to leak more when you are moving around. The fact that you are getting up for a wee at night rather than having to sleep on waterproof pads is really positive and suggests that you will recover your bladder control eventually.

Walking 2km per day - you might be overdoing things a little bit.

Driving - unless your hospital gave you a leaflet specifying how long you must wait before driving, you need to ask your insurance company. Some hospitals say you can drive 2 weeks after abdominal surgery, others say 4 weeks. If the hospital has given you their position on this and you ignore it, you would be breaking the law by driving while uninsured. If the hospital doesn't have a stance on it, many insurers just say that you can drive as soon as you feel able to do an emergency stop. My husband's car insurer would not cover him until 12 weeks post-op but he had open RP rather than keyhole.

Returning to work - it depends on how quickly you recover and also how easy it would be to work if you are not able to control your bladder. The standard sick note for keyhole RP is 6 weeks - some men are able to work earlier than that, particularly if hey can work from home and / or are mostly on a laptop. Heavy work - you may need up to 12 weeks off.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Nov 2023 at 20:22

Thank you Lyn, from diagnosis, the biopsy and surgery everything was excellent and very efficient, diagnosed late August and surgery was 20th October. It was when I was being discharged the next day the care went downhill, was prescribed laxatives and codeine but the hospital nurse said we had to purchase them ourselves, also was shown how the catheter works but the nurse didn't really know herself(as I think she was in training). Was discharged with no info at all really, catheter was taken out a week ago, which went ok but they didn't advise on timescales for recovery very well and also I mentioned I may have a water infection but they didn't test for it ( confirmed at doctors a few days  later) . They did give me a prostate cancer uk pack and a satchel of pads etc, the nurse also said I should be of been told of my results from surgery on whether I would need further treatment or not but the results are not back yet, I do have a follow up telephone appointment on the 14th December with the urology department though. Mine was classed as T3a, the surgeon said the op went well and managed to save one side of the nerves, the cancer they said was confined to the prostate but it was on one side of the wall ready to break out. Thats all the info I was given. Many thanks.

Edit - They said I can drive as long as I can perform an emergency stop.

Edit - Also I'm not sure if I can get free prescriptions for the recovery etc.

Edited by member 08 Nov 2023 at 20:28  | Reason: Not specified

User
Posted 08 Nov 2023 at 21:14

Originally Posted by: Online Community Member
the nurse also said I should be of been told of my results from surgery on whether I would need further treatment or not but the results are not back yet 

...........................

Edit - Also I'm not sure if I can get free prescriptions for the recovery etc.

It is usual to get the pathology results 6 - 8 weeks post-op, at your follow up appointment. Did they tell you to get a PSA test about a week before the appointment? 

 

Any man who has been diagnosed with prostate cancer can get a prescription exemption certificate - it lasts for 5 years. If, in 5 years time, you still have PCa or need treatment for the side effects of PCa treatment (for example, if you still need Viagra or pads or whatever) you can have the exemption certificate extended. Ask your local pharmacy for an application form, fill it in and then ask your GP, urologist or nurse specialist to sign it.  

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Nov 2023 at 10:41

You get the exemption certificate if you have cancer or you need treatment for effects of cancer or the side effects of cancer treatment. It lasts for five years and if after that you still need treatments for the side effects (Viagra for instance, Sertraline if the cancer caused depression) then it can be renewed for another five years. 

The certificate exempts you from all medicine prescription charges, even if the particular medication is nothing to do with cancer, which is a bonus. It does not cover dental or opticians treatment, though it would cover medicine prescribed by either.

Dave

User
Posted 09 Nov 2023 at 16:01

Bobby,

It seems to me that you are well looking after yourself, so you should be on the right track for improvements. Having one nerve side removed will make it longer to re educate your bladder and also the infection can add delays.

The most common steps are:

- dry at night: you don't add any work for the bladder and you stay dry. It is a very good point. 

- leaking is caused by fatigue: you will start seeing less leaks in the morning. In the afternoons or if you over walk, fatigue triggers leaks. Nothing to worry

- so leaks in the afternoon will be the last to disappear

- 4 weeks after the catheter is out, seems to be the average time to get better results. For many. me included, we start seeing it gets better in the morning, better in the afternoon, then plateau and suddenly improve fast.

So right now you are in a normal timeframe.

My hospital gave me an appointment with the team in charge of bladder re education about 4 weeks after the catheter was out. We went through the exercises with the squeezy app (they didn't change anything about the timing) and talk about ED.

They prescribed daily tablets of 5mg Tadalafil for 3 months. It's all about increasing the blood flow to help recovery.

User
Posted 09 Nov 2023 at 18:44

Just received a call from the hospital urology nurse, they have now confirmed that the cancer was confined to just the prostate which is the best news I've had for some time. Now just a psa test next month and a follow up telephone appointment to discuss the psa test and existing side effects, I'm very pleased to say the least !

User
Posted 12 Nov 2023 at 20:12

I had my RP 5 years ago and it took a couple of months  for me to become dry. During periods of exertion I would leak so would wear a pad Occasionally I can still leak a little, such as if drink too much beer as this can be an irritant and if I don’t wait for a few seconds after I have stopped peeing.

Keep up with the Kegel exercises, they do help. Importantly keep your spirits up as its early days and you are still healing.

Mike

User
Posted 14 Nov 2023 at 13:45

Bobby, I had actually gone to see my erectile dysfunction guy, he is also a urology consultant/surgeon. I mentioned the infection and a slow flow and he referred me for a cystoscopy. A few days later by chance I saw my RARP surgeon who doubted the need for the cystoscopy but agreed to do it. While in the urethra and bladder they found the scar tissue and a clip floating around in the bladder.That first one was removed with the attachment on the camera.

Thanks Chris 

User
Posted 14 Nov 2023 at 21:24

Hi all, first day today I have seen a slight improvement on leakage, 2 weeks since the catheter was removed. I'm on my second round of antibiotics and I think they are helping clear an infection.

Show Most Thanked Posts
User
Posted 03 Nov 2023 at 10:08

Hi, I didn't have surgery so I can't offer any personal experience, however I've been reading this site for a few years.

I would say you are making excellent progress. Some people are completely dry on day one, that is very rare. Some people have zero control on day one, that is not unusual. Most people have some control. For everybody it improves usually over the next year. Quite a lot of people will still use a pad for safety, or if they know a particular situation they may leak in. Cloudy urine may be an infection, but there is still debris from the op so it may be no concern.

You very wisely asked the question: "should I try and be more patient with time to heal etc ?"

The answer is YES. 

To take another one of your sentences: "I imagine things are still healing." No imagination is required, you are still healing and will be for at least another four weeks and possibly upto another six months.

The worst thing you could do is start rushing in to strenuous activity. One person on this site was set back just by unloading the shopping from the car. Everyone is different and will heal at different rates, being young you will probably heal quickly. Trying to push things will not speed up the healing process. I am sure you want to get back to normal activity levels but it is not worth the risk by being impatient. 

Follow your surgeons advice on levels of physical activity.

Most people can get back to walking quite quickly. Anything beyond that such as cycling, gym, golf, take your time. If they are a major hobby of yours and you can't live without them, yes try and ease yourself back in to them at about the six week mark. For golf that may mean putting rather than playing a hole, but even bending down to pick a ball out the hole could be risky in the earliest days post op.

So in short, you're recovering better than most at the moment, things will almost certainly improve, try to get back to normal activity, but be aware there is a lot of internally injury which is healing.

 

Dave

User
Posted 03 Nov 2023 at 10:13

Bobby , I was very lucky, I saw a massive change within the first 4 days post catheter removal. I was 99 percent dry 4 days after catheter removal. As you say lots happening down there. 

I did get recurring infections after surgery,they eventually found a surgical clip in my bladder, it's supposed to be a 1 in 500 event, in fairness I haven't seen so many reports of it happening lately.

If the spasms don't go away there are some good anti spasm meds. There are gels designed for urethral use if the eye of the penis is sore.

As you say you need to have a bit more patience.

Hope all goes well take it easy but keep mobile.

Thanks Chris 

Edited by member 03 Nov 2023 at 10:14  | Reason: Not specified

User
Posted 03 Nov 2023 at 11:32

Morning,

I had RARP nine months ago and I'm just about back to normal.

I felt very despondent for the first few weeks. Although dry at night, during the day my peeing was out of control. I contacted my specialist nurse who told me generally it took about 6 months for men to regain full bladder control.

Things will improve mate, you've just got to try and be patient. 

Adrian

 

Edited by member 03 Nov 2023 at 11:42  | Reason: Not specified

User
Posted 03 Nov 2023 at 15:05

 

I had surgery Easter 23 and after the catheter was removed I could not as they say hold water and was on 9/10 pads a day and wetting through occasionally as well. Not a good time. But things improved and by the time I went back to work after 7 weeks I was on 4/5 pads a day. Now I’m on 1 pad occasionally 2 if I need to freshen up  if going out on the evening and it’s getting better but I’ve not got the confidence yet to go without.

Be patient and listen to your body. I walked too far after 3 weeks and suspect it knocked me back a week in recovery. I have only just gone back to the gym and not lifting anything heavy.

As has been said everyone is different so don’t get too worried about progress.

Good luck with the recovery

 

User
Posted 03 Nov 2023 at 18:27

I had my urine test back today from my doctors surgery and they say I do have a water infection, when I had my catheter removed on Wednesday at hospital I told the nurse this and they said they would check but in the end didn't check it at all and I was sent home with the infection, so I decided to have urine test at my gp instead, I'm glad I did. Also I call the urology nurses at the hospital to ask if results have come back yet but they haven't, I also mentioned to her about the water infection that wasn't picked up and she said we wouldn't deal with that anyway and you would have to see your gp, then I mentioned about leaking still and she said that could happen forever, thanks for the positive !!

I'm now on a weeks course of antibiotics for the infection.

Edited by member 03 Nov 2023 at 18:28  | Reason: Not specified

User
Posted 03 Nov 2023 at 20:20

Hi Bobby 70,

I had very bad urinary incontinence after my surgery (June '22).  At first I was using about 8 pads per day, but this has improved over the months and I'm now using about 3 pads per day.  So, I would say that it is very early days for you and you are doing quite well.  If you also have a urinary infection on top of the surgery, I would suggest that you're doing extremely well!  But  I would recommend that you keep up the Kegel exercises / Squeezy app., and exercise moderately to begin with.  You can build it up slowly.

Good luck.

JedSee.

User
Posted 03 Nov 2023 at 20:26
Bobby, your experience of pad use and urine leakage just two days after catheter removal sounds pretty normal - certainly that was where I was. But getting a urine infection is bad luck, and might mean that once it is under control you will actually do better.

To be honest we all react differently so it is difficult to say what is "normal", particularly in these early stages. Some men regain total continence very quickly, others have continuing problems. But it is pretty typical to take several months to stabilise, and until then you are best being patient.

User
Posted 08 Nov 2023 at 14:23
Hi all, I'm walking around 2k a day, when I walk is when I leak the most, it hasn't got any better over the last 5 days, its still the same, will it improve month by month as opposed to days ? If I go for a walk I have to change my pad on return, if I'm sitting or lying down I don't leak. I'm coming up to 3 weeks post op and I had catheter removed 7 days ago, when is it best to start other things like driving, walking the dog (I have a lab who can pull on the lead), returning to work and maybe doing some form of yoga exercises ? Many thanks.

Also I'm healing well, I have 6 key hole wounds, the two on my right side still feel sore and tender but the others no pain at all, they are all healing well on the outside though, would I be wasting the doctors time if I made an appointment ?

User
Posted 08 Nov 2023 at 15:42

Hi Bobby, still early days but it should improve over time, weeks, maybe but not days. Like you I leaked on walking, changing pad multiple times , and not leaking at rest. Over a few months I got it down to 1 pad a day even with long walks.

Walking is good, but careful at this time with the dog, especially as you say he pulls. No lifting either for 6 weeks, let the abdominals heal. Sounds like the wounds are as you say healing well. 

P.

User
Posted 08 Nov 2023 at 18:41
It is a great shame if your medical team didn't explain to you what to expect post-op. It is perfectly normal to have incontinence this soon after the catheter was removed, and to leak more when you are moving around. The fact that you are getting up for a wee at night rather than having to sleep on waterproof pads is really positive and suggests that you will recover your bladder control eventually.

Walking 2km per day - you might be overdoing things a little bit.

Driving - unless your hospital gave you a leaflet specifying how long you must wait before driving, you need to ask your insurance company. Some hospitals say you can drive 2 weeks after abdominal surgery, others say 4 weeks. If the hospital has given you their position on this and you ignore it, you would be breaking the law by driving while uninsured. If the hospital doesn't have a stance on it, many insurers just say that you can drive as soon as you feel able to do an emergency stop. My husband's car insurer would not cover him until 12 weeks post-op but he had open RP rather than keyhole.

Returning to work - it depends on how quickly you recover and also how easy it would be to work if you are not able to control your bladder. The standard sick note for keyhole RP is 6 weeks - some men are able to work earlier than that, particularly if hey can work from home and / or are mostly on a laptop. Heavy work - you may need up to 12 weeks off.

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 08 Nov 2023 at 20:22

Thank you Lyn, from diagnosis, the biopsy and surgery everything was excellent and very efficient, diagnosed late August and surgery was 20th October. It was when I was being discharged the next day the care went downhill, was prescribed laxatives and codeine but the hospital nurse said we had to purchase them ourselves, also was shown how the catheter works but the nurse didn't really know herself(as I think she was in training). Was discharged with no info at all really, catheter was taken out a week ago, which went ok but they didn't advise on timescales for recovery very well and also I mentioned I may have a water infection but they didn't test for it ( confirmed at doctors a few days  later) . They did give me a prostate cancer uk pack and a satchel of pads etc, the nurse also said I should be of been told of my results from surgery on whether I would need further treatment or not but the results are not back yet, I do have a follow up telephone appointment on the 14th December with the urology department though. Mine was classed as T3a, the surgeon said the op went well and managed to save one side of the nerves, the cancer they said was confined to the prostate but it was on one side of the wall ready to break out. Thats all the info I was given. Many thanks.

Edit - They said I can drive as long as I can perform an emergency stop.

Edit - Also I'm not sure if I can get free prescriptions for the recovery etc.

Edited by member 08 Nov 2023 at 20:28  | Reason: Not specified

User
Posted 08 Nov 2023 at 21:14

Originally Posted by: Online Community Member
the nurse also said I should be of been told of my results from surgery on whether I would need further treatment or not but the results are not back yet 

...........................

Edit - Also I'm not sure if I can get free prescriptions for the recovery etc.

It is usual to get the pathology results 6 - 8 weeks post-op, at your follow up appointment. Did they tell you to get a PSA test about a week before the appointment? 

 

Any man who has been diagnosed with prostate cancer can get a prescription exemption certificate - it lasts for 5 years. If, in 5 years time, you still have PCa or need treatment for the side effects of PCa treatment (for example, if you still need Viagra or pads or whatever) you can have the exemption certificate extended. Ask your local pharmacy for an application form, fill it in and then ask your GP, urologist or nurse specialist to sign it.  

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 09 Nov 2023 at 09:11

Hi Lyn,

Yes they did advise to book a psa test, I have a blood psa test booked on the 4th December, 10 days prior to the appointment. The exemption certificate would only be related to any pc issues, is that correct ?

 

Edit - Also I'm using the squeegy NHS app, standard is to do 3 sets per day and in each set do a 10 second hold with a 4 second rest x 10, then straight after do 10 quick squeezes. On researching on you tube, some recommendations say hold for no longer than 6 seconds so not sure what would be best ? Also I try and do a set lying down, sitting and one standing ( standing is much harder to feel the contraction)

Many thanks

Edited by member 09 Nov 2023 at 09:18  | Reason: Not specified

User
Posted 09 Nov 2023 at 10:41

You get the exemption certificate if you have cancer or you need treatment for effects of cancer or the side effects of cancer treatment. It lasts for five years and if after that you still need treatments for the side effects (Viagra for instance, Sertraline if the cancer caused depression) then it can be renewed for another five years. 

The certificate exempts you from all medicine prescription charges, even if the particular medication is nothing to do with cancer, which is a bonus. It does not cover dental or opticians treatment, though it would cover medicine prescribed by either.

Dave

User
Posted 09 Nov 2023 at 16:01

Bobby,

It seems to me that you are well looking after yourself, so you should be on the right track for improvements. Having one nerve side removed will make it longer to re educate your bladder and also the infection can add delays.

The most common steps are:

- dry at night: you don't add any work for the bladder and you stay dry. It is a very good point. 

- leaking is caused by fatigue: you will start seeing less leaks in the morning. In the afternoons or if you over walk, fatigue triggers leaks. Nothing to worry

- so leaks in the afternoon will be the last to disappear

- 4 weeks after the catheter is out, seems to be the average time to get better results. For many. me included, we start seeing it gets better in the morning, better in the afternoon, then plateau and suddenly improve fast.

So right now you are in a normal timeframe.

My hospital gave me an appointment with the team in charge of bladder re education about 4 weeks after the catheter was out. We went through the exercises with the squeezy app (they didn't change anything about the timing) and talk about ED.

They prescribed daily tablets of 5mg Tadalafil for 3 months. It's all about increasing the blood flow to help recovery.

User
Posted 09 Nov 2023 at 18:44

Just received a call from the hospital urology nurse, they have now confirmed that the cancer was confined to just the prostate which is the best news I've had for some time. Now just a psa test next month and a follow up telephone appointment to discuss the psa test and existing side effects, I'm very pleased to say the least !

User
Posted 11 Nov 2023 at 19:57

Hello

 

I have just had key hole rp.

 

did you say standard sick note is 6 weeks, i was told only 2, where did you get that info please

 

Many thanks Richard

User
Posted 11 Nov 2023 at 20:05

Hello

how do I get this certificate please

thanks richard

User
Posted 11 Nov 2023 at 21:04

Hi Richard, 

With my work I have told I'll return when I'm able to, I have based mine on a colleague who has had RP a few years ago, he was off work for 8 weeks and his job can be quite active. I was hoping to return in 6 - 8 weeks depending on recovery but at the moment I'm leaking quite a lot so unable to go to far at present, I can take up to 6 months sick with pay if needed.

With regards to the certificate I think you have to go to your pharmacy and ask for an exemption form, I'm going to do that on Monday, then your doctor or nurse will need to sign off the form as per Lyn's reply within this conversation.

Hope this helps

Regards

Rob

User
Posted 11 Nov 2023 at 21:09

very helpful thanks

User
Posted 11 Nov 2023 at 21:17

Hi

so how long was it for you before you had reasonable control? and was it mostly down to pelvic floor exercises?

thanks richard

User
Posted 12 Nov 2023 at 07:39

Richard, I did pelvic floor exercises for four months before my surgery and I was 99 percent dry 4 days after catheter removal. When I tell people, my wife chips in with" nothing to do with the skill of the surgeon then ?"

They are a no cost option and many guys who lose their continence some time after being in control say they recover control after restarting the PFEs.

The physio on the FOPS zoom meeting Andy organises also suggests practicing, contracting the pelvic muscles when going from seated to standing, in time it can become almost automatic.

Thanks Chris 

 

Edited by member 12 Nov 2023 at 07:40  | Reason: Not specified

User
Posted 12 Nov 2023 at 20:12

I had my RP 5 years ago and it took a couple of months  for me to become dry. During periods of exertion I would leak so would wear a pad Occasionally I can still leak a little, such as if drink too much beer as this can be an irritant and if I don’t wait for a few seconds after I have stopped peeing.

Keep up with the Kegel exercises, they do help. Importantly keep your spirits up as its early days and you are still healing.

Mike

User
Posted 13 Nov 2023 at 20:13

I think I have another water infection again, urine is slightly cloudy and I can still feel where the catheter was inserted like and mild irritating pain. I seem to be dry at night and in the daytime any walking I do I leak, so much so that I dont need to use the toilet during the day, probably just the once. I have provided another urine sample and I get results in a couple of days, the gp has presrcibed me a different antibiotic which I have started taking today. Also when do manage to use the toilet on the stream ending I get the same irritating feeling.

User
Posted 13 Nov 2023 at 20:17

Originally Posted by: Online Community Member

Bobby , I was very lucky, I saw a massive change within the first 4 days post catheter removal. I was 99 percent dry 4 days after catheter removal. As you say lots happening down there. 

I did get recurring infections after surgery,they eventually found a surgical clip in my bladder, it's supposed to be a 1 in 500 event, in fairness I haven't seen so many reports of it happening lately.

If the spasms don't go away there are some good anti spasm meds. There are gels designed for urethral use if the eye of the penis is sore.

As you say you need to have a bit more patience.

Hope all goes well take it easy but keep mobile.

Thanks Chris 

Chris,

How did they manage to know and find out it was a surgical clip, I'm starting to wonder as I'm on my second possible infection, many thanks.

User
Posted 14 Nov 2023 at 13:45

Bobby, I had actually gone to see my erectile dysfunction guy, he is also a urology consultant/surgeon. I mentioned the infection and a slow flow and he referred me for a cystoscopy. A few days later by chance I saw my RARP surgeon who doubted the need for the cystoscopy but agreed to do it. While in the urethra and bladder they found the scar tissue and a clip floating around in the bladder.That first one was removed with the attachment on the camera.

Thanks Chris 

User
Posted 14 Nov 2023 at 20:54

Originally Posted by: Online Community Member

Hi

so how long was it for you before you had reasonable control? and was it mostly down to pelvic floor exercises?

thanks richard

Pelvic floor exercises help with recovery of bladder control,  assuming that there is no mechanical damage. However, some men are left with permanent incontinence even though they have done all the right things and have been painstaking about doing their PFEs. NHS data indicates that 90% of men are using one pad per day or less by 12 months post-op. It is sometimes just the luck of the draw, unfortunately. 

Edited by member 14 Nov 2023 at 20:56  | Reason: Not specified

"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 14 Nov 2023 at 21:24

Hi all, first day today I have seen a slight improvement on leakage, 2 weeks since the catheter was removed. I'm on my second round of antibiotics and I think they are helping clear an infection.

User
Posted 24 Nov 2023 at 08:40

starting to feel a lot better now with the leaking, 5 weeks post op today, still leaking but reduced by quite an amount, using 2-3 pads a day now.

User
Posted 24 Nov 2023 at 10:26

Bobby70

I just wonder if you are overdoing it with the pelvic floor exercise so soon after surgery - just a thought. Prostatectomy is a very traumatic experience for the remaining sphincter.  

 'Physics is like sex: sure, it may give some practical results, but that’s not why we do it.'                    Richard Feynman (1918-1988) Nobel Prize laureate

 

 

User
Posted 24 Nov 2023 at 10:58

Originally Posted by: Online Community Member

starting to feel a lot better now with the leaking, 5 weeks post op today, still leaking but reduced by quite an amount, using 2-3 pads a day now.

Hi Bobby,

Thanks for the update. I'm very pleased you're feeling better and making such good progress.

Adrian

 
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