I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Can you stay stable with a high PSA after treatment

User
Posted 18 Nov 2023 at 20:55

My husband was diagnosed with Advanced Prostate cancer in March 2023. Extensive bilateral adenocarcinoma.

His PSA at this time was 3712.

Gleason score 9 (4 + 5)

Likert score of 5. PSA Density 92.5 T3b N1 M1

Possible involvement of the apex of bladder

Scans showed spread to multiple abdominal nodes and bone metastasis in ribs bilaterally, iliac bones of sacrum, right public bone and right acetabulum. Patchy activity throughout thoracic and lumbar spine which may be degenerative rather than metastatic. Changes noted right hip and sternoclavicular joint also.

 

He was commenced immediately on Degarelix injections and has just completed 6 sessions of Docetaxel (80% strength because of increased risk of neuropathy)

He has also had Zometa with each chemotherapy.

His PSA fell rapidly initially but has now plateaued. His current PSA is 170.

Our Oncologist has told us that he does not expect PSA to fall much further, but the important thing is to keep it from rising again, looking particularly at its doubling time.

He will have another PSA in 3 weeks time, then further bone scans and CT scan in January before reviewing situation in February.

Our question is:- With PSA still so high after chemotherapy, does this affect prognosis or have others managed to retain PSA for some time without rising.?

We have talked about next lines of treatment,  so are aware there are still options.

User
Posted 19 Nov 2023 at 02:08
I think you have to trust the onco - with such a high starting figure, there would have been no real expectation that his PSA would go down to single figures in the way that some men do. Also, PSA is not a reliable indicator of the efficacy of the docetaxel because chemo doesn't always make the PSA fall. We have had members who started with PSA in the many thousands, fell to no lower than 500 and still managed to stick around for a few years. Trevor Boothe comes to mind - he had a very similar diagnosis but with the complexity of a couple of heart attacks along the way and he lasted a good 5 years.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Nov 2023 at 23:03

https://community.prostatecanceruk.org/default.aspx?g=profile&u=14159

 

Hi Kingfisher,

His profile is linked above.  The search of members brings it up. 

Sometimes it can be unsettling to read other people's stories.  We're all different in our make up and case details.  It seems more like a lottery.  A probability is the best you can say.

keep hopeful,

Peter

Show Most Thanked Posts
User
Posted 19 Nov 2023 at 02:08
I think you have to trust the onco - with such a high starting figure, there would have been no real expectation that his PSA would go down to single figures in the way that some men do. Also, PSA is not a reliable indicator of the efficacy of the docetaxel because chemo doesn't always make the PSA fall. We have had members who started with PSA in the many thousands, fell to no lower than 500 and still managed to stick around for a few years. Trevor Boothe comes to mind - he had a very similar diagnosis but with the complexity of a couple of heart attacks along the way and he lasted a good 5 years.
"Life can only be understood backwards; but it must be lived forwards." Soren Kierkegaard

User
Posted 19 Nov 2023 at 17:06

Thank you for your reply.

I think you are right in that we have to put our trust in our Oncologist. 

We just wondered if there were any other people's journey that were similar to ours with a more positive outcome than what we are seeing at the moment. Hearing their story would help us try to remain positive about our own.

You mentioned a Trevor Boothe? Does he have his story chartered somewhere we could view please?

Thank you

User
Posted 19 Nov 2023 at 23:03

https://community.prostatecanceruk.org/default.aspx?g=profile&u=14159

 

Hi Kingfisher,

His profile is linked above.  The search of members brings it up. 

Sometimes it can be unsettling to read other people's stories.  We're all different in our make up and case details.  It seems more like a lottery.  A probability is the best you can say.

keep hopeful,

Peter

User
Posted 20 Nov 2023 at 14:02

Hi Peter,

 

Thank you for the link.  We understand that every single persons journey is different, how their body reacts to the treatments can vary so much.(as you say, a bit of a lottery).

Hope and positive thinking are all we have at the end of the day, but can be so inspiring to hear stories of people who have beaten the odds.

 

Many thanks

 
Forum Jump  
©2024 Prostate Cancer UK