WM, I have had a permanent suprapubic catheter for a number of years. What you describe does happen to me, I resist using the word normal.
You need to watch out for a few things, blood coming into the catheter bag, the bag not filling, the bag getting too full, and the catheter and pipe getting bent trapped or kinked. Bypassing where urine comes past the the catheter and out of the penis is frequently mentioned. Bypassing also frequently happens when passing a motion, a bit of tissue under the end of the penis will usually soak up the leak
Over night I can pass anything from 300 to 1200 mls. My bag is usually very slow to fill in the first two or three hours after getting up but then usually fills at a more regular rate later in the day. If you think about it we don't urinate at regular intervals,well I didn't used to.
Make sure your hygiene is at its best. Make sure joints are tight. I attach my night bag tube to my ankle while in bed, it saves pulling on the joint to the leg bag. I put my night bag on a stand and put it in a Flexi bag, just in case of leaks. I have only had two night bags leak in over six years.
Instilagel or hydrocaine or optilube are usually available from a pharmacy without prescription,they are gels designed for catheter insertion and maintenance. They are great for easing any soreness in the eye of the penis, they contain anesthetic and antiseptic and lubricant. Boots usually need a prescription,the gels are about £2 a syringe.
If your catheter gets blocked, get off to A&E, urine retention is classed as an emergency and can be dangerous.
I take Regurin aka trospium chloride four bladder spasms.
Hope you get rid of it soon.
Thanks Chris
Added,the position of the catheter in the bladder can make a big difference to how it flows. Sometimes your catheter can get a bit of debris in it and will then get forced out as the bladder fills and pressure forces it out.
Edited by member 12 Dec 2023 at 18:44
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