Hi Gerryb,
I'm sorry that you're having a hard time. But for most people, it does get better. As Decho has said, you can have good days, and then have a setback. Also, as Decho has already suggested, I would strongly recommend that you seek support from a group, if possible. If there is no group near you, then I would suggest that you reach out to people on here as often as you need to do. And as Adrianus has said, having the treatment is better than the alternative. Where there's life, there's hope of improvement.
I had my prostatectomy 18 months ago. For the first 3-6 months afterwards, my incontinence was terrible during the day - I was using about 8 pads per day. I remember once that I cried after I had just stepped out of the shower and then immediately peed all over the bathroom floor. It was so humiliating. Like you, I was pretty dry when lying down at night. My Urologist told me that the drier nights were a good sign, in that it suggested that it was a 'mechanical' problem (gravity), which should get better in time. I was practicing the Kegel exercises 3 times per day. The Urologist referred me to a Specialist Lower Pelvic Floor Physiotherapist. They confirmed that I was doing the exercises correctly but that my pelvic floor muscles were very weak, so it would take time to build them up. I then started doing Yoga and Pilates as well as the Kegel exercises. I also try to go for a 5 mile walk most days. I still have incontinence but now use between 2-3 pads per day, which is a lot better, but by no means perfect. I'm still hopeful of further improvement. I'm still learning what drinks I need to avoid (for me, it's caffeine, long drinks, carbonated drinks and most citrus fruit juices) but people vary in what triggers their bladder to empty. Weirdly, a couple of glasses of red wine seem to settle my bladder.
I feel confident that your own incontinence will also improve with time.
Best wishes,
JedSee.