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18 months Post RP....

User
Posted 27 Mar 2024 at 05:34

Thought I'd chime in to this forum and share my experience. My PSA was 4.8 when we decided to take it out knowing it was inevitable anyway. I was 58 and reasonably fit. The surgeon told me he could likely save one nerve and my recovery could be better.


I had the op and went through the sheer hell that most men on this forum went through. Funnily enough I never leaked at night. The incontinence was terrible for maybe a month then it started to come right, albeit very slowly. But I was noticing improvements every week.


I did, and still do kegels 4 months before my op 3 times a day.  I recently bought a device that doe's it for me now and it does like 300 exercises in 10 minutes. This played a huge part in my recovery.


ED was the new normal, or at least that's what we thought.


My wife and I accepted that this was the price to pay to be cancer free. Skip on a few months and I am 99.9% leak free and wear no pads. I gave up cafine which helped me so much. It was noticeable 2 weeks after quitting it. I sometimes leak a drip if I fart haha, but that's about it. If I cross my legs I'm fine.


If you guys leak, please at least try giving up coffee and tea. Drink decaf, you'll get use to it. It might help.


Anyway, I started using bimix and bam, I was back. Yeh it's a bit sore but it hugely repaired my depressive state and made me feel like a bloke again. The urine leaking on climax was a horror story but we worked out if she got on top it never happened. That'll do. If I go for another position I wear a condom. Leaking doesn't happen every time. In reckon in another 6 months it'll be normal.


So I started vedafil daily and then 1/2 a Cialis every now and then. I haven't used the bimix for months and don't need to thankfully.


Now we can have sex without too much drama. Sometimes I use a Cialis but only half and not all the time.


I talk to men all the time about this disease, and I know not everyone gets a good result. But all I can say is I exercise regularly, stopped cafine, and doing kegels has brought me back to 99.9% of where I was 18 months ago.


I am cancer free. Job done.


 

User
Posted 27 Mar 2024 at 05:34

Thought I'd chime in to this forum and share my experience. My PSA was 4.8 when we decided to take it out knowing it was inevitable anyway. I was 58 and reasonably fit. The surgeon told me he could likely save one nerve and my recovery could be better.


I had the op and went through the sheer hell that most men on this forum went through. Funnily enough I never leaked at night. The incontinence was terrible for maybe a month then it started to come right, albeit very slowly. But I was noticing improvements every week.


I did, and still do kegels 4 months before my op 3 times a day.  I recently bought a device that doe's it for me now and it does like 300 exercises in 10 minutes. This played a huge part in my recovery.


ED was the new normal, or at least that's what we thought.


My wife and I accepted that this was the price to pay to be cancer free. Skip on a few months and I am 99.9% leak free and wear no pads. I gave up cafine which helped me so much. It was noticeable 2 weeks after quitting it. I sometimes leak a drip if I fart haha, but that's about it. If I cross my legs I'm fine.


If you guys leak, please at least try giving up coffee and tea. Drink decaf, you'll get use to it. It might help.


Anyway, I started using bimix and bam, I was back. Yeh it's a bit sore but it hugely repaired my depressive state and made me feel like a bloke again. The urine leaking on climax was a horror story but we worked out if she got on top it never happened. That'll do. If I go for another position I wear a condom. Leaking doesn't happen every time. In reckon in another 6 months it'll be normal.


So I started vedafil daily and then 1/2 a Cialis every now and then. I haven't used the bimix for months and don't need to thankfully.


Now we can have sex without too much drama. Sometimes I use a Cialis but only half and not all the time.


I talk to men all the time about this disease, and I know not everyone gets a good result. But all I can say is I exercise regularly, stopped cafine, and doing kegels has brought me back to 99.9% of where I was 18 months ago.


I am cancer free. Job done.


 

User
Posted 27 Mar 2024 at 07:50

Hi Adrian,


My Gleason score was 4+3 from memory. It was the lightest number. My staging wasn't given a number as such, and even if it had I wouldn't have understood what it meant. They said it wasn't going anywhere fast.


Mine was deemed to be very slow and the MRI showed it was well contained, so I felt positive about it. That result was like winning lotto less the millions haha.


There were 3 lesions on the gland. Because I'm only 70kg the surgeon told me I had a good chance of getting back to a new normal. It's been a real battle like everyone has had, but there is light.


The ED thing was a worry but I battled on. Funny thing, well not hilarious really but I was sitting in my spa pool one year to the day of my op and what do you know, it rose up for no reason. Apart from the birth of my kids I reckon that was the best day of my life. Having to inject isn't the end of the world, and the more. it's done the better they told me. Kegels was, and still is a huge help.


I am in NZ and we don't get offered all the options some countries get, but I still feel lucky to be where I am today.


I get blood tests every 6 months. I tend not to worry so much. I feel it's over.


All the best to you and keep at it brother. 

Edited by member 27 Mar 2024 at 07:55  | Reason: Not specified

User
Posted 27 Mar 2024 at 08:24

Great result 993man and so pleased you decided to share your good news story on this forum.


All the best for the future,


Derek

User
Posted 27 Mar 2024 at 10:21

Originally Posted by: Online Community Member


Even if I was in a spa pool crammed full of topless beauties and being tittilated by a couple of underwater fluffers, I doubt they'd be any action. 😂



I agree, but could you arrange this please as I'd like to at least say I tried! :)

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User
Posted 27 Mar 2024 at 07:00

Hi Graham,


Welcome to the forum and thanks for such an upbeat post. The nature of this site tends to be biased towards less good outcomes and it's refreshing to hear good news.


I posted a similar story not too long ago.


https://community.prostatecanceruk.org/posts/t30214-Almost-a-year-on-after-RARP


Do you mind telling us what your cancer staging and Gleason score were pre op and you still having 3 monthly PSA checks?


I'm envious of your ED recovery on tablets alone. I'm having to inject but still hopeful for further improvement. I'm pretty sure your urination during sex will get better, mine has.


All the best for the future.

Edited by member 27 Mar 2024 at 07:17  | Reason: Add link

User
Posted 27 Mar 2024 at 07:50

Hi Adrian,


My Gleason score was 4+3 from memory. It was the lightest number. My staging wasn't given a number as such, and even if it had I wouldn't have understood what it meant. They said it wasn't going anywhere fast.


Mine was deemed to be very slow and the MRI showed it was well contained, so I felt positive about it. That result was like winning lotto less the millions haha.


There were 3 lesions on the gland. Because I'm only 70kg the surgeon told me I had a good chance of getting back to a new normal. It's been a real battle like everyone has had, but there is light.


The ED thing was a worry but I battled on. Funny thing, well not hilarious really but I was sitting in my spa pool one year to the day of my op and what do you know, it rose up for no reason. Apart from the birth of my kids I reckon that was the best day of my life. Having to inject isn't the end of the world, and the more. it's done the better they told me. Kegels was, and still is a huge help.


I am in NZ and we don't get offered all the options some countries get, but I still feel lucky to be where I am today.


I get blood tests every 6 months. I tend not to worry so much. I feel it's over.


All the best to you and keep at it brother. 

Edited by member 27 Mar 2024 at 07:55  | Reason: Not specified

User
Posted 27 Mar 2024 at 08:24

Great result 993man and so pleased you decided to share your good news story on this forum.


All the best for the future,


Derek

User
Posted 27 Mar 2024 at 09:14

Originally Posted by: Online Community Member


I was sitting in my spa pool one year to the day of my op and what do you know, it rose up for no reason.



Brilliant! 


However In my case, I fear there's more chance of raising the Titanic. 


Even if I was in a spa pool crammed full of topless beauties and being tittilated by a couple of underwater fluffers, I doubt they'd be any action. 😂

User
Posted 27 Mar 2024 at 10:21

Originally Posted by: Online Community Member


Even if I was in a spa pool crammed full of topless beauties and being tittilated by a couple of underwater fluffers, I doubt they'd be any action. 😂



I agree, but could you arrange this please as I'd like to at least say I tried! :)

 
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