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Treatment time frame advice

User
Posted 04 Apr 2024 at 16:53

Very grateful for your take on following time scales and whether those whose journey is a little way down the road can advise whether in their opinion the time frame I'm currently looking for treatment which is yet to start is quite normal?. 

Biopsy 1 Feb 24

Urology appt Info'd results of Biopsy 15 Feb 24 (Gleason 4+3 PSA 30)

CT scan 17 Feb Bone scan 19 Feb 24 

Urology appt 14 Mar 24 to discuss Rx ** 

Letter rec'd a further CT PET Scan booked for 19 April 24

Letter rec'd Oncology appt booked 30 May 24

** This appt was in my humble opinion a little rushed. An hour late getting in to see a pleasant though clearly busy Urologist & nurse eager to progress (now 1700) to their next patient in a very busy waiting room. Large prostate, locally advanced further CT PET Scan req'd however Rx agreed on Hormone & Radiotherapy. I did email Senior Nurse Practitioner before Easter but still await reply. Want to emphasise in no way criticism its just the words 'cancer'.. 'high risk' .. 'aggressive' uttered to me on 15 Feb still foremost in my mind.

User
Posted 05 Apr 2024 at 00:16
The CT PET (check the type) is the right diagnostic IMHO, the timescales are probably good for NHS.

Always wise to be a pushy patient in the NHS or you will get missed.

User
Posted 05 Apr 2024 at 20:41

Agree that you need to be a pushy patient.  You could also ask the specialist nurse if you should be prescribed bicalutimide. My husband also has locally advanced PC and as soon as he had had a PSMA PET scan he started taking bicalutimide to slow the cancer down pending further treatment. PET scan was 19 Jan, he saw urologist on 19 Feb and had surgery yesterday. Best of luck. 

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User
Posted 05 Apr 2024 at 00:16
The CT PET (check the type) is the right diagnostic IMHO, the timescales are probably good for NHS.

Always wise to be a pushy patient in the NHS or you will get missed.

User
Posted 05 Apr 2024 at 20:41

Agree that you need to be a pushy patient.  You could also ask the specialist nurse if you should be prescribed bicalutimide. My husband also has locally advanced PC and as soon as he had had a PSMA PET scan he started taking bicalutimide to slow the cancer down pending further treatment. PET scan was 19 Jan, he saw urologist on 19 Feb and had surgery yesterday. Best of luck. 

 
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