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Recently noticed a curve in the penis..maybe peyronie's

User
Posted 25 Apr 2024 at 18:00

Hi....

I don't really post on here but I do read and gain lots of good information.iv been using caverject/invicorp injections since January 2024. Both work very well but just recently noticed a curve in my penis which bends to the right. I'm aware it's probably the start if peyronie's disease. I did struggle to inject into the left side of the penis at the beginning so injected the first 10 times in the right side only however I can ow inject in the left side just as good.

Iv phoned the ed clinic and I'm due to see an ed nurse which could take months and worried about it getting much worse in the meantime. Iv read up about specialist focused shock wave treatment, the use of a ved and the xiaflex injections. Has anybody used any of these treatments? Can these treatments be used if your recovering from radical prostectomy with ed problems ect. Any information or guidance would be appreciated.

User
Posted 25 Apr 2024 at 19:23
I developed this after RT, but after a couple of years it just went away on its own, which apparently is pretty common.

Chris

User
Posted 25 Apr 2024 at 22:06

I developed this after RT Marcus, except mine was like an hour glass at the base. I didn’t want to wait a year so went to see a specialist privately and he diagnosed Peyronie’s disease.

He recommended using a vacuum pump, the SomaCorrect, which is the same as the Somaercet except you get more cylinders to ensure you get the right size. He also said you could use another device to stretch it which looked like something out of a torture chamber, so I declined that one. 😱😱😱 He wrote to my GP who then prescribed it for me and I have been using it since, although I have to say since having my last HT injection I’ve been a bit lapse. It’s definitely helped correct it and removed the pain I go when erect.

There is an op to correct it but the specialist advised me against it as success rate is not that high.

All in all £250 well spent and I got an appointment within a week.

Good luck,

Derek

User
Posted 26 Apr 2024 at 19:35

Hi Marcus,

After my prostatectomy, I too was prescribed the Soma Correct Vacuum Device on the NHS.  I hadn't developed Peyronie's Disease before it was issued.  I suppose it was issued as a precaution against developing it.  I've been using it for about 18 months.  So far, so good.

Best wishes,

JedSee.

User
Posted 27 Apr 2024 at 10:07

Yes, the SOMAcorrect is just a SOMAerect with extra cylinders, which you can buy separately.

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User
Posted 25 Apr 2024 at 19:23
I developed this after RT, but after a couple of years it just went away on its own, which apparently is pretty common.

Chris

User
Posted 25 Apr 2024 at 19:40

Cheers chris. That sounds reassuring.

User
Posted 25 Apr 2024 at 22:06

I developed this after RT Marcus, except mine was like an hour glass at the base. I didn’t want to wait a year so went to see a specialist privately and he diagnosed Peyronie’s disease.

He recommended using a vacuum pump, the SomaCorrect, which is the same as the Somaercet except you get more cylinders to ensure you get the right size. He also said you could use another device to stretch it which looked like something out of a torture chamber, so I declined that one. 😱😱😱 He wrote to my GP who then prescribed it for me and I have been using it since, although I have to say since having my last HT injection I’ve been a bit lapse. It’s definitely helped correct it and removed the pain I go when erect.

There is an op to correct it but the specialist advised me against it as success rate is not that high.

All in all £250 well spent and I got an appointment within a week.

Good luck,

Derek

User
Posted 25 Apr 2024 at 22:21

Cheers derek for the advice..

I will look into getting the soma correct ved. I know what you mean about the traction device it looks like it belong in the 18th century...no likey, think I will also swerve then torture device 

 

Regards Marcus 

User
Posted 26 Apr 2024 at 19:35

Hi Marcus,

After my prostatectomy, I too was prescribed the Soma Correct Vacuum Device on the NHS.  I hadn't developed Peyronie's Disease before it was issued.  I suppose it was issued as a precaution against developing it.  I've been using it for about 18 months.  So far, so good.

Best wishes,

JedSee.

User
Posted 26 Apr 2024 at 20:46

Hi jed

I was prescribed a somaerect  response 2. 4 months after my rp. Think it's the same as the somacorrect but without the selection of tubes just a one size fits all

Think I need to order a somacorrect and use it twice a day. It's good to know the somacorrect seems to help stop any curves from developing.

 

Regards marcus

 

 

User
Posted 27 Apr 2024 at 07:45

I would say Marcus, if you’ve already got the Somaerect and it’s working then you’d be wasting you money buying the Somacorrect. If you’re achieving a good erection with it then it’s doing the job. If not then it might be worth buying a smaller cylinder…it just slots inside the bigger one and the pump still attaches to the larger one. It took me a while to find the right size,I had to go for the medium one, one size down from the one the pump attaches to. The small size that’s also supplied is redundant unless you are VERY small in that department😊

if the cylinder is too big it sucks in skin from around the base and prevents you getting fully erect.

The other thing I was prescribed was daily tidalafil 5mg to help blood flow.

Happy Pumping😉

Derek

User
Posted 27 Apr 2024 at 10:07

Yes, the SOMAcorrect is just a SOMAerect with extra cylinders, which you can buy separately.

User
Posted 27 Apr 2024 at 10:17

Hi dereck.

Thanks for the advice. Think I'll probably just stick to the somaerect then if it's the same device but use it more often and maybe twice a day to try to straighten the curve out.

Regards

Marcus 

User
Posted 27 Apr 2024 at 10:22

There seem to be two types of Peyronie's.

The classic is where a plaque forms from scar tissue and causes a sharp (and often painful) bend because that tissue no longer expands when you get an erection. Injection site or other injury can be a cause of this. There are different treatments for use during its acute phase (while it's getting worse), and its stable phase (when it's finished getting worse). Different treatments are applicable to the two different phases. When flaccid, you can feel the harder plaque.

The other type is due to lack of regular erections, and is fibrosis of the corpus cavernosum (the expandable part) caused by not expanding it regularly. This can cause thinning on one or both sides (hour glass deformity), and some curvature when not symmetrical. Plaque might not be present. This type certainly lends itself to recovery by frequent use of pump when you first notice it.

I have also heard some urologists say Vitamin E supplement may be beneficial.

User
Posted 27 Apr 2024 at 10:33

Hi andy.

I think mine is probably the first one you mentioned.  I used caverject then invicorp injections since January. I injected only on the first side for the first 10 times but now do both left and right.

I think it is probably scar tissue from the injections which has caused the curve to the right. Iv been taking natural  vitamin e complex tablets for about a week also.

 

Regards 

Marcus 

Edited by member 27 Apr 2024 at 10:34  | Reason: Not specified

User
Posted 27 Apr 2024 at 11:26

It's understandable to feel concerned about the potential worsening of your condition while awaiting your appointment with the ED nurse. The treatments you've mentioned, such as shock wave therapy, VED, and Xiaflex injections, are indeed options commonly used for Peyronie's disease. However, the suitability of these treatments, especially in the context of recovering from a radical prostatectomy with ED problems, should be discussed with a healthcare provider familiar with your medical history.

Each treatment option has its own benefits and considerations, and your healthcare provider can assess which approach may be most appropriate for you. They can also provide guidance on whether these treatments can be safely used alongside your recovery from surgery and existing ED issues. Get well soon.

User
Posted 27 Apr 2024 at 11:37

Hi david.

Your right about getting the correct information off a health care professional first. I have had a telephone call with an ed nurse who knows my health condition with prostate cancer and surgery. It was mentioned that the ved should help and taking vitamen e tablets in the meantime until my appointment with the ed nurse becomes available.

Regards 

Marcus

 
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