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Salvage Radiation RT

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User
Posted 01 May 2024 at 22:16

I would like to here from people who has had the Prostate Removed but then required Salvage Radiation and choose to have HT only.

I am going through the choices of Salvage Radiation, I am Gleason 9 with a PSA  of 0.24, I am thinking of having RT only.

Would appreciate any information of people who have had Salvage Radiation RT only and how are they doing now. 

Thanks 

User
Posted 03 May 2024 at 05:13

I was pT3b and Gleason 9.  Prostatectomy in December 2016.  Just over a year later, had SRT and HT.  It worked and I've been undetectable ever since.

User
Posted 02 May 2024 at 07:27

Hi Badger. I can’t offer any direct experience other than my OH is due to start RT in a couple of months and the oncologist proposed 2 years of bicalutamide. Yesterday he received the letter summarising the appointment  and the oncologist stated ‘two years of hormone therapy has been shown to improve the metastasis free survival and time to salvage therapy but not the overall survival’. Perhaps that helps in decision making. 

good luck going forward 

User
Posted 02 May 2024 at 07:36

Badger, have a look at this conversation, particularly posts from the 9th April, it might be useful. 

https://community.prostatecanceruk.org/posts/t30068-PSA-detectable-9-months-post-RARP.

Thanks Chris 

Edited by member 02 May 2024 at 07:38  | Reason: Not specified

User
Posted 02 May 2024 at 08:41

Hi Badger,

I had 20 fractions of SRT without HT in July 2022, I had surgery in November 2019 and was 4+3=7.

I found it pretty straightforward, there was the daily grind of driving round the M25 to and from the treatment centre. Symptoms started kicking in around a couple of weeks in, nothing else to worry about. 

It took a year for my PSA to drop back to undetectable though, guessing maybe that would have been slightly different if I had been on HT, who knows?

Chris' link is worth reading, not just because I posted there 😁.

Good luck. 

Kev.

User
Posted 03 May 2024 at 23:02

Hi Badger07,

I'm about to start salvage radiotherapy in about 3 weeks time. My PSA went to 0.1 after prostatectomy then has climbed to 0.22 in around 2.5 months. 

HT was not recommended to me, just the RT. I asked my oncologist would it benefit me and he said that in his experience the HT is more of benefit when you have a much higher PSA....my other option was let PSA climb to 10 then go on HT but not curative then

I see that different consultants have differing proposals and we must trust their expertise. My simple rationale is that if RT works on its own that will be a fantastic outcome, will spare me the side effects of HT and will then keep that in the armoury should i ever need it down the line.

 

Best advice is go for makes you comfortable and puts your mind at ease. I wish you the very best of luck mate.

 

Cheers

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User
Posted 02 May 2024 at 07:27

Hi Badger. I can’t offer any direct experience other than my OH is due to start RT in a couple of months and the oncologist proposed 2 years of bicalutamide. Yesterday he received the letter summarising the appointment  and the oncologist stated ‘two years of hormone therapy has been shown to improve the metastasis free survival and time to salvage therapy but not the overall survival’. Perhaps that helps in decision making. 

good luck going forward 

User
Posted 02 May 2024 at 07:36

Badger, have a look at this conversation, particularly posts from the 9th April, it might be useful. 

https://community.prostatecanceruk.org/posts/t30068-PSA-detectable-9-months-post-RARP.

Thanks Chris 

Edited by member 02 May 2024 at 07:38  | Reason: Not specified

User
Posted 02 May 2024 at 08:41

Hi Badger,

I had 20 fractions of SRT without HT in July 2022, I had surgery in November 2019 and was 4+3=7.

I found it pretty straightforward, there was the daily grind of driving round the M25 to and from the treatment centre. Symptoms started kicking in around a couple of weeks in, nothing else to worry about. 

It took a year for my PSA to drop back to undetectable though, guessing maybe that would have been slightly different if I had been on HT, who knows?

Chris' link is worth reading, not just because I posted there 😁.

Good luck. 

Kev.

User
Posted 03 May 2024 at 05:13

I was pT3b and Gleason 9.  Prostatectomy in December 2016.  Just over a year later, had SRT and HT.  It worked and I've been undetectable ever since.

User
Posted 03 May 2024 at 20:35
Badger, I was one of the people commenting in the thread Chris linked. The paper I found suggests that if your PSA doubling time is less than 8 months (look back over your records) there is benefit in combining HT with RT. If your numbers are going up more slowly than that it is worth a chat with your oncologist, you don't want to be suffering more side effects than you need.
User
Posted 03 May 2024 at 23:02

Hi Badger07,

I'm about to start salvage radiotherapy in about 3 weeks time. My PSA went to 0.1 after prostatectomy then has climbed to 0.22 in around 2.5 months. 

HT was not recommended to me, just the RT. I asked my oncologist would it benefit me and he said that in his experience the HT is more of benefit when you have a much higher PSA....my other option was let PSA climb to 10 then go on HT but not curative then

I see that different consultants have differing proposals and we must trust their expertise. My simple rationale is that if RT works on its own that will be a fantastic outcome, will spare me the side effects of HT and will then keep that in the armoury should i ever need it down the line.

 

Best advice is go for makes you comfortable and puts your mind at ease. I wish you the very best of luck mate.

 

Cheers

 
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