DH’s daughter found out she had breast cancer in her early 30’s she was found to have the brca2 gene (she’s fine now) DH had been diagnosed and treated for prostate cancer several years before this, once we heard she’d got the gene we knew dh was going to be the carrier. 9 years after his treatment we find out the cancer had been hiding in his nodes all along, despite psa of 0.01 for many years and is now incurable. His consultant said if dh didn’t have the gene, he would have chemo as the first treatment. But apparently chemo can be ineffective for those with the gene. So that is definitely a downside to the have a gene mutation. So he’s on HT plus second gen. HT (enzalutamide)
Had we known he carried the gene mutation at original diagnosis perhaps there would have been more tests. He had biopsy and MRI. He was given a Gleason of 6. But it wasn’t spotted that the cancer had spread into the nodes.