1 year post prostatectomy, slight rise

I'm now a year on from my RP and 2 months ago my PSA went from <0.01 to 0.02. Since I'm within the first 2 years I will be getting tested every 3 months and up to recently I was also getting a phone call from the Urologist to give me the result. But on the last blood test when the result went to 0.02 this phone call didn't happen and what's really annoyed me is they kept me in suspense for a month before the NHS app finally unlocked the PSA value, presumably after Urology was supposed to contact me. Why lock you out? When the Urologist did last call me 4 months ago he got his facts wrong and said he'd speak to me in 6 months time. I felt like saying to him....Do me a favour before you ring clients who are on tenterhooks read the patients file and get your facts straight...you're getting paid enough!

Do you guys who've had RP get to talk to Urology every 3 months for the first 2 year i.e. do they call you?

If no to above then if there are changes should they not call you to discuss possibilities/reassure?

Why oh why lock the result on the NHS app until the Urologist is supposed to call you? Can I have this changed so I see the result straightaway?

Gerry, I unfortunately developed a urethral stricture so was in constant contact with my  consultant for the first three years, we were on first name terms. NICE did change their guidance on testing from 3 months to six months even in those first two years. I was fortunate that we had a team of urology nurses at the end of the phone for things like blood test results. 

I had two vials of blood drawn at the same time and tested at the same lab with a difference of 0.01. 

You could perhaps manage to get your bloods taken by your GP surgery and gets the results alot quicker .I have an online system at our GP surgery and also use the NHS app. In our area the consultant can see tests the GP asks for but the GP cannot see tests the consultant asks for,unless it is sent to the GP.

I know how frustrating it is when you can't get the service you expect. I don't think some medical professionals think about the mental health of their patients.

Thanks Chris 

I had RP, telephonic consultations every 6 months, PSA checks every 3 months.

I got my GP surgery to do my PSA blood tests. They are on systmonline. I can access my result within 24 hours.

I'm 16 months post op my PSA has been <0.02 which is the lowest our laboratory measures to. Your's is a minimal rise. 

I  have been disappointed by poor clinician - patient communications, I've become very proactive in my own monitoring.

Best of luck mate.

Luckily I have a bit of medical background and proactive in my own management and surveillance. I feel for those that are let down by the system and have fallen through the cracks which can easily happen.

Its a bit of a pain, as I have to explain myself every 6 months to the receptionist/nurse that I need to have another PSA as part of my monitoring. I just don't understand why it can't be highlighted on their system or better still automated repeat PSA ( frequency dependent on your situation). I know for a fact, if I didn't contact for a PSA test, I will never get a call or reminder to do this.

My PSA has fortunately remain <0.01 ( the lowest the lab measures) . Interestly, the GP surgery patient app has this recorded as 0.01 but the NHS app states <0.01 from the start.

I rarely look at the GP app anymore.

And just to prove the point in my previous post, my PSA result was posted on the NHS website yesterday (very quick). It came back as 0.16 'normal, no action'. Never mind the rising trend and the fact I have no prostate, as long as it is less than 4.9 then that's just fine with them. I too feel a formal complaint coming on. 

No need to be concerned Adrian. I watched the debates on TV last night. They all promised to fix the NHS. So there you have it - job done! 

Peter