Hello, I posted recently and really appreciated feedback and guidance based on the experience of others.
I'm still at the stage of not being brilliant at or finding it easy to quote all my numbers so I hope it's ok to say locally advanced PCa with RARP and first PSA two weeks ago.
I was really happy and relieved to get an undetectable PSA , and so was my wife - was touch and go whether it was operable, some questionable things spotted on my PET scan and rib pains for months pre and post op, but surgeon discounted it and said no need for further scans. I have also had a really rocky recovery post surgery recovery.
I have just had a session with a consultant about rib pains and they were more cautious about it not being PCa, as well as saying that undetectable PSA results couldn't always be trusted and they would start scanning again.
Any relevant experiences and perspectives would be much appreciated - I need to make some decisions and have a serious conversation with my main consultant and need to get my head around this.
Really appreciate any help.