I'm interested in conversations about and I want to talk about
Know exactly what you want?
Show search

Notification

Error

Is this PCA?

User
Posted 22 Jun 2024 at 09:19

Hi all, firstly this is a great site and a source of support for all.

I have just been for a 3T MRI and I am awaiting my results so really anxious 

I have had a yearly PSA for last 10 years and DRE every couple of years and now at 50 I have had my second MRI. This is because my dad passed away fromPCA at 64 having had various urology issue but weirdly didn’t get diagnosed or have a PSA test until metastatic . 

my 1st MRI was all good at 46 and recommended another at 50 which I now am. pSA always 0.5 every year and recent DRE suggested enlarged prostate so taken tamsulosin as I was having a dribble after pee and a sting post pee but no other issues particularly but lots of groin pain and feeling achy which GP didn’t really have an answer for and between us just said ‘oh it’s prostititus’ and try cipro every 6 months or so when I have a flare up which doesn’t do anything really.

 

so currently getting pain around anus and pelvis which is constant dull pain and feel like prostate is pushing on something inside/ sitting on a golf ball  

 

I am due my results next week and urologist did say let’s get you checked out as a matter of course rather than we need to get you seen asap when I saw him in may so am I just being over anxious or should I be worried based on experiences on here.

 

I know there are no specific pca exact symptoms but as I feel the  aching bones, dribble and BHP I am worried this is something more sinister and wanted peoples thoughts on if this was/is  something similar to their experiences 

 

 

Edited by member 22 Jun 2024 at 15:18  | Reason: Spellings

User
Posted 22 Jun 2024 at 19:05

It is so easy (and understandable) to attribute every ache and pain to possible PCa but in reality in the majority of cases the disease is symptomless Pain would only occur when the cancer is very advanced and spread to your bones. I would be reassured by the fact  that you have had an unremarkable initial MRI scan and consistent PSA results for a decade.

User
Posted 22 Jun 2024 at 20:29

Welcome to the forum.

I'm not medically trained and can only echo what Chris has said. From the information you've given it maybe that some of your symptoms maybe due to other prostate disorders but cancer is extremely unlikely.

I hope your results show that there is nothing serious to worry about.

Please let us know the outcome.

Edited by member 22 Jun 2024 at 20:33  | Reason: Typo.

User
Posted 23 Jun 2024 at 07:08

A urinary tract infection or prostatitis would normally result in an increase in your usual level of PSA. It's interesting that your results have remained consistent at 0.5 which is respectably low. Prostate enlargement also increases your PSA level as there is a larger volume of tissue producing PSA. Just out interest, does your reading have any zeros after the 0.5 or a < sign in front of it?

User
Posted 23 Jun 2024 at 10:42

Thanks , I’m not sure re 0.5 so will ask GP but yes does seem remarkably consistent. Results should be with me Tuesday from scan so just hoping it’s BHP and nothing worse. It is so frustrating that despite all of the research that even if you do follow the ‘gold standard’ method to monitor your prostate that doesn’t mean it will mean it’s caught early. 

just as an aside whilst there are the specialist nurses available have there ever been urologists on this forum for advice and guidance as well as experts by experience 

User
Posted 23 Jun 2024 at 12:31

I'm sure there must be medical professionals in the capacity of patients or patient's family on this forum but in an official capacity only the specialist nurses as far as I am aware. Good luck with your results.

 
Forum Jump  
©2024 Prostate Cancer UK