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Medical and moral questions-PSA rise

User
Posted 03 Jul 2024 at 16:34

There re wise, experienced and snitove folk here, so I wonder what your thoughts are.

Robotic surgery in Feb 2018, Gleason 3plus 4

PSA became detectable August 2019, and has risen in tiny increments, plateauing in 2023 at 0.08, and is now 0.09

 

Therefor havebeen given a consultants appointment for next month, as there-is a clear and consistent rise, inevitably close to the 0.1 threshold

Obviously nervous, as I dont know with these numbers, what the medical options might be- Radiation, Hormones, both or neither..

The moral question is this- I am an actor, and have just joined a new agent, and some of the jobs film abroad that they put me up for- how far to go with information about my condition and possible treatment options, insofar as they could effect availability or ability to work?

This fluid situation leaves me in a quandary

Thanks in advance for any input

Anton

User
Posted 03 Jul 2024 at 17:30
The threshold is normally 0.2 - mine did the same and so I have had hormone therapy (HT) (no major side effects apart from no libido and occasional hot flushes) and a total of 32 Radiotherapy (RT) sessions which run daily except for weekends.

No significant side effects from the RT but if you live a fair way away from the hospital then it takes a chunk out of your day driving there and back. The treatments are only 5 minutes each plus the wait in case there is a queue.

After 28 sessions, my PSA is down to 0.03 from 0.22 at the start.

User
Posted 04 Jul 2024 at 19:05

Yes, Shakespeare feedeth the soul but starveth the bank account…

 

Thank you for the moral insight, I think that is completely on point

Havena good weekend…and election.

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User
Posted 03 Jul 2024 at 17:30
The threshold is normally 0.2 - mine did the same and so I have had hormone therapy (HT) (no major side effects apart from no libido and occasional hot flushes) and a total of 32 Radiotherapy (RT) sessions which run daily except for weekends.

No significant side effects from the RT but if you live a fair way away from the hospital then it takes a chunk out of your day driving there and back. The treatments are only 5 minutes each plus the wait in case there is a queue.

After 28 sessions, my PSA is down to 0.03 from 0.22 at the start.

User
Posted 03 Jul 2024 at 19:50

Anton,things have progressed and changed since I was in your situation.In my day 0.1 meant coming back under the umbrella of urology for closer monitoring. 0.2 was the usual trigger point for planning or getting further treatment, possibly salvage RT. Now the trigger value seems to be a little higher in some situations. 

The slow rise is a better situation than a fast rise 

Thanks Chris 

User
Posted 03 Jul 2024 at 21:23

Just before we get on to morals. The law says you can not be discriminated against if you have or have had cancer, or as a consequence of treatment for cancer.

Now if you and someone else are doing an audition, and the two of you are identical then the only way they can choose between you is toss a coin. However if they know you have just a tiny possibility that you may inconvenience them (because of cancer) that coin is not going to come down in your favour. I would not disclose anything about cancer to your agent. I would have no moral qualms about this. You may have to disclose medical conditions later for insurance etc.but cross that bridge when you come to it. With your current rate of PSA rise it will hopefully be a long time before you get to that bridge.

Unrelated to the above. When I was young I worked short term contracts in admin and then IT. I found myself working with an actor who was 'resting' (Shakespeare was his thing). He was very friendly and at one point I asked about the financial implications of being an actor. He said "well this year my income has been really good. I haven't had a single acting job all year, so I'm doing these temp jobs and I'm able to pay the rent and buy food, for a change."

 

 

 

Dave

User
Posted 04 Jul 2024 at 19:05

Yes, Shakespeare feedeth the soul but starveth the bank account…

 

Thank you for the moral insight, I think that is completely on point

Havena good weekend…and election.

User
Posted 07 Jul 2024 at 22:56

Hi Antony,

Many hospitals only test above 0.1 so you would not know about the rise yet.   So perhaps you're worrying too soon.   You have been given a warning that something is happening which I think is worth knowing.

My psa is rising very slowly too and has reached 0.11, doubling in just over 2 years.   I've been told the oncologist will do nothing before 0.2 when it's rising so slowly so there's no point seeing one, although I might contest that when it gets a bit higher.   It's highly unlikely any scan would find anything at that level.  So I'd have to insist they gave RT without knowing where it is and wouldn't want to do that.

The hospital says they wait until it reaches 0.5 to have an NHS psma scan.  But I think that's too late and would pay for a scan just above 0.2 if they won't give me one.   Some people have had earlier scans on the NHS so they might agree.

So in summary there's no rush unless you find it stressful or prefer to have RT without a scan, which is something that does happen.   I think there must be an increased risk of something worse as the psa gets higher but it seems to be one that is accepted..

On the moral question, it seems to me you could be waiting another couple of years before any treatment is started so there is no moral question unless it's a long running part and you might move on anyway.  Also the NHS will work round your timetable I'd think.  So if you work at night you can have the RT in the morning.   

I think the question is about whether you think working could be a detriment to your treatment.  Unless money is in the balance as well. 

In summary as you might not have any treatment for quite a while I don't think you need to tell anyone.  Even if you have treatment you should decide if work effects it rather than if it effects work, unless you think you are going to be unable to work when you might want to ask again when you know what treatment you're having, when and what your work situation is.  Hope that helps.

All the best, Peter

 

 

 

 

User
Posted 09 Jul 2024 at 10:21

Peter,

Thank you, that is very clear and reassuring.

I paid for my own scan some years ago, and would definitely go again with that option..

But thanks for your post, it helps

 

Ant b

 
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