My first psa reading of 30

User

Posted 13 Sep 2024 at 21:06

First prostrap injection today then another next month then every 3

User

Posted 13 Sep 2024 at 22:04

Thanks for the update mate. Best of luck and please keep us informed how you get on.

User

Posted 23 Sep 2024 at 20:50

All good had my tablets and 1st prostrap Injection a couple of weeks ago, no side effects yet, next one on 10 th October then every 3 months.

User

Posted 24 Sep 2024 at 23:32

Treatment going well hormone therapy started no visible side effects other than sleeping, keep waking up during the night had my prostrap injections just waiting on radiotherapy date seeing consultant early November.

Thanks for the support

User

Posted 25 Sep 2024 at 08:38

Thanks for the update mate. Please keeps us informed about your radiotherapy treatment when it starts.

Best of luck.

User

Posted 25 Sep 2024 at 09:09

Hi Marvel,

Good that treatment has started and hopefully the side effects from HT won’t be too bad for you, some men seem to get away with it and others don’t so maybe you’ll be lucky. You’ll probably get your RT in 3-6 months after the HT has started to work. Most people including me don’t find the RT bad at all, in fact I quite enjoyed going in for my daily chat with the other patients and staff, who were simply wonderful.

Try and keep as active and fit as possible to avoid joint problems with the HT. Walking, swimming and other weight bearing exercises are good. If you’re not a gym goer buy some resistance bands and use them every day.

Good luck when the RT starts and keep us posted.

Derek

User

Posted 02 Oct 2024 at 22:46

Been a month now and all seems OK, next Injection next week which should last 3 months, 7th November meeting consultant to discuss radiotherapy

User

Posted 05 Oct 2024 at 23:50

All going good, finished the tablets, 1 month jab coming to an end have my 3 month next week. No real side effects other than feeling tired, and getting the munchies for sweets.

Then 7th November consultant to discuss radiotherapy.

Not sure when or if I have another psa test

User

Posted 06 Oct 2024 at 09:03

Good to hear Marvel, keep going with the exercise to avoid joint issues as your muscles weaken. I found it cumulative, especially with the joints.

You’ll probably have a PSA test every 3 months before your Prostap jab. In my case the jab was administered by the CNS who liked to see my PSA result to make sure it was working.

All the best,

Derek

User

Posted 06 Oct 2024 at 09:31

Thanks, always appreciate your knowledge and replies

User

Posted 02 Nov 2024 at 22:29

Seems Like ages since my last post, all seems to be going fine, that said all that's changed is I have prostrap injections ever 3 months, not had another PSA reading since the initial.

I meet with the NHS consultant next week to discuss radiotherapy. I am disappointed with the communication side of things, I just seem to limp from one appointment to the next.

I asked about the implant spacer, but looks like I'll have to get that done privately before rt.

The only real side affect is fatigue, I'm inbed most days around 7.00pm but rarely get more than a few hours sleep. Just wake up then can get back to sleep.

Other than that I'm fine.

User

Posted 05 Dec 2024 at 22:38

5.12.24

Went for my second PSA bloods, today hopefully the level should be dropping as I've been in HT for 17 weeks.

I have another CT BOOKED for the 19th When hopefully I shall get a date for RT.

Been a strange journey, I've got my head around it thanks to the response on this site.

The only thing affected ATM is my sleep, if I get 2 -3 hrs at night im lucky fornominally tired.

Im still working but go to bed at about 7.30 tired but 5-6 later I'm still awake.

Is this normal?

Edited by member 05 Dec 2024 at 22:41 | Reason: Not specified

User

Posted 10 Dec 2024 at 10:24

Hi Marvel,

Yep I think HT does mess with your sleep patterns. I find it hard to fall asleep and have a patch around 2am when I wake and cannot sleep again for about an hour or so. We also invested in a great mattress, so I can bounce around, throw covers off and pull them back on all without disturbing the wife (which is not a good thing to do!).

You mentioned also getting the munchies, that has very much been the case for me. Put on a stone when first started, and so far have not got back to my starting weight!

Stick with it, think of the fact that is has "put your cancer cells to sleep" as my Oncologist put it. Then when they are least expecting it, hit them with the radiation!! :-)

Good luck. You can beat this!

David

User

Posted 11 Dec 2024 at 22:14

I'm 4 months in to my in HT injections just about to have my nex5 3 month injections and I've noticed at night my calfs are starting to itch, is this common?

User

Posted 11 Dec 2024 at 23:28

Hello again mate.

Itchy calves sounds like a job for James Herriot. 😉

Joking apart. I believe, hormone therapy can cause dry skin and itchiness.

Edited by member 11 Dec 2024 at 23:36 | Reason: Additional text

User

Posted 11 Dec 2024 at 23:56

I think I need a vet, he would put me down lol. I seem to be getting more issues the longer I'm on prostrap . Not really moaning , hopefully the end result will be worth it.

Cheers

User

Posted 19 Dec 2024 at 20:17

Another milestone day, went for my ct scan and rt date. Scan was ok and they marked me up with the dot tattoos

Start Rt on the 09.01.25, my psa has dropped from 30.4 to 1.8, hopefully it continues down.

Especially when on Rt. Feeling a bit better now I know it's on the way down, just 20 sessions of Rt and 18 month's left of Hormone therapy...lol

User

Posted 20 Dec 2024 at 02:05

Today I had my 2nd ct scan today and got my tattoos for radiotherapy which starts 09 01 25.

Been on ht for a few months and psa has dropped from 30.4 to 1.8. So fingers crossed, feeling more optimistic now.

User

Posted 20 Dec 2024 at 04:08

Thanks for the update mate. I'm glad that you're feeling brighter, and good luck with your future treatment.👍

User

Posted 03 Jan 2025 at 03:54

Has anyone noticed that when you are coming to the end of the 3 month prostrap injection, you are sleeping better returning to " normal " then as soon as you have your next 3 month injection, straight back to insomnia , etc etc.

Also I start my radiotherapy next week, does it make you tired ?

Or are there any other side effects?

User

Posted 16 Jan 2025 at 20:19

7 days Into radiotherapy, all going well, still not sleeping but no other real side effects of radiotherapy or hormone therapy.

Fi gers crossed it stays that way

User

Posted 24 Jan 2025 at 13:56

Hi all I’m 57 and thought I’d get checked as we had a meeting at work for men of a certain age (over 50) and because my dad has an enlarged prostate. (No symptoms for me & no peeing during the night)
well the results came back 3.04, which I thought was ok but the Doc said it was borderline better get checked well you can imagine the rest scan, biopsy 😫, anyway result 3+3 on the watchlist now

First 3 Monthly was 3.09 I’m told that’s fine, I hope other factors affected as it it’s a minor change.

Had my 2nd 3 monthly bloods a few days ago and will find out early Feb needless to say all the horrors and thoughts have gone through my head. Will have to wait and see but it’s never far away from my thoughts.

User

Posted 05 Feb 2025 at 23:32

One day left of radiotherapy, it's been OK, no side effects, just back to the waiting game now. New blood test and consultant in april. Hopefully psa will have fallen.

Started at 30.4 August 24

December 24 down to 1.8 after hormone therapy.

Now hopefully after 20 sessions of radiotherapy it will be even lower

User

Posted 06 Feb 2025 at 07:16

Thanks again, mate, for keeping us updated. It's great that your treatment has almost finished. I'm so pleased with your recovery long may it continue.

Your story will undoubtedly help others. 👍

User

Posted 23 Apr 2025 at 03:19

Just an update, radiotherapy done latest psa gone down from 30.4 to 0.054

Keeping the faith

User

Posted 23 Apr 2025 at 08:24

Fantastic news, mate. Thanks for taking the time to update us.👍

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