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PSA AFTER prostatectomy

User
Posted 22 Jul 2024 at 22:29

I've been advised not to exercise and to cease my pelvic floor exercises before my first post-prostatectomy PSA test. This is puzzles me. With my prostate now removed, why might this be? Anyone else been given this advice?

I had planned to avoid strenuous exercise for at least 48 hours, but I'm not going to manage 48 hours for Kegels - it will be more like 42. Ok, not really concerned by a few hours too few for Kegels, but I am puzzled why the requirement to abstain at all. Possibly some prostate tissue still around? Is this the issue? I had nerve sparing on one side, so I suppose it's possible.

Thoughts, please.

Thanks

 

User
Posted 23 Jul 2024 at 00:49

You are right without a prostate it should make no difference, but medics have boxes to tick, they are just told to tell the patients things like, no exercise, no ejaculation, blah blah blah. Also if the result comes back as <2.9 you will be told you have a normal PSA. Which is not true if you have no prostate. In the modern NHS you need to manage your own treatment, NHS staff are too busy, filling in forms to look after patients.

Dave

User
Posted 23 Jul 2024 at 08:39

Hi Barry.

I had no such warnings prior to my first post op PSA test. It seems illogical advice .

Best of luck with your results.

User
Posted 23 Jul 2024 at 09:45
It does sound strange and like the others, I never received that advice either.

Hopefully the first one comes back with the magic "<" in it and then it's a case of making sure you have them every 3 months for at least the first year.

Good luck!

User
Posted 27 Jul 2024 at 21:44

Hi Barry.

Great result mate! Long may they continue.

I was T3a and Gleason 9 (4+5). I've got my 18 month post op PSA test next week, and I'm hoping, like all the previous, it will be <0.02. 🤞

User
Posted 12 Aug 2024 at 13:47

Hi Dave, good to see you got the key "<".

Re the Kegels, I had my RP two weeks before you and it wasn't until week 10 that I seemed to have a step change in my continence. I've eased off the Kegels a little - I was doing 6 reps of 10 fast&slow each day - but I began to realise that the Kegels were giving me the wrong impression about my recovery and were making the leaks worse later on during the evening. So I've switched to 4 reps starting at 2pm, which means I'm more or less pad free in the mornings. Things get a little worse as the day progresses, but even then only one light pad (if at home I wear boxers and maybe have a bit of dampness occasionally). My daily runs are a challenge, but they too are way better than just a couple of weeks ago. As I said, a "step change" around week 10.

So you may be closer than you think. I hope you are. I wonder if you too have sensed that the Kegels, though important, do actually seem to make matters worse for a short time after? 

Personally, I find wearing pads to be uncomfortable. I've just received some washable underpants with little absorbency built in to try.

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User
Posted 23 Jul 2024 at 00:49

You are right without a prostate it should make no difference, but medics have boxes to tick, they are just told to tell the patients things like, no exercise, no ejaculation, blah blah blah. Also if the result comes back as <2.9 you will be told you have a normal PSA. Which is not true if you have no prostate. In the modern NHS you need to manage your own treatment, NHS staff are too busy, filling in forms to look after patients.

Dave

User
Posted 23 Jul 2024 at 08:39

Hi Barry.

I had no such warnings prior to my first post op PSA test. It seems illogical advice .

Best of luck with your results.

User
Posted 23 Jul 2024 at 09:45
It does sound strange and like the others, I never received that advice either.

Hopefully the first one comes back with the magic "<" in it and then it's a case of making sure you have them every 3 months for at least the first year.

Good luck!

User
Posted 23 Jul 2024 at 10:14

Many thanks Steve. Adrian and Dave,

Seems medics may well just be being over cautious/prescriptive. This was my guess.

Maybe there is a remote clinical risk - perhaps if some prostate tissue is been left behind. Maybe ...

Looking forward to the magic "undetectable" ...

User
Posted 23 Jul 2024 at 20:24

You may also be told to produce a urine sample so they can check for a UTI is not causing a raised PSA level. Another pointless exercise if you don't have a prostate. I wish you the best of luck with your result. Chris

User
Posted 27 Jul 2024 at 21:16
:-) < 0.014

Guess our community will get that meaning.

Many more tests to come, but I'm very happy with this first result. I get to speak to the surgeon on Monday to say thank you and to discuss a few remaining points - the pre-PSA exercise restriction being imposed on me being one of them

Eight weeks post surgery and if it wasn't for my continence issue I'd say I'm feeling "fixed". Yes, I know as a T3a I may well have to deal with problems in the future, but that's then not now.

User
Posted 27 Jul 2024 at 21:44

Hi Barry.

Great result mate! Long may they continue.

I was T3a and Gleason 9 (4+5). I've got my 18 month post op PSA test next week, and I'm hoping, like all the previous, it will be <0.02. 🤞

User
Posted 27 Jul 2024 at 22:25

Hi Adrian, hope you maintain that all important "<". 

From somebody who very rarely visited my GP, having broken through 65 last year my arms are now either being pumped full of vaccinations or emptied of blood. Quite a change.

User
Posted 27 Jul 2024 at 22:30

Dave is absolutely correct. Don't expect anything from the NHS you have to manage your own health. Book your own blood tests, check your own results, push for treatment for ED etc...

You can of course use this to your advantage. Nearly 2 years post op I still have 3 monthly PSA tests. The GP practice nurse asked me about its legitimacy. My reply was that until some one tells me different then I will continue as is.  The Nurse agreed that this was the correct strategy. 

User
Posted 12 Aug 2024 at 10:50

Just got my first PSA tests results post RALP (13 June) <0.02, which is I hope where it should be, keeping up on the keegles and seeing some improvement, but its slow progress. Perhaps I want to much to soon?

User
Posted 12 Aug 2024 at 13:47

Hi Dave, good to see you got the key "<".

Re the Kegels, I had my RP two weeks before you and it wasn't until week 10 that I seemed to have a step change in my continence. I've eased off the Kegels a little - I was doing 6 reps of 10 fast&slow each day - but I began to realise that the Kegels were giving me the wrong impression about my recovery and were making the leaks worse later on during the evening. So I've switched to 4 reps starting at 2pm, which means I'm more or less pad free in the mornings. Things get a little worse as the day progresses, but even then only one light pad (if at home I wear boxers and maybe have a bit of dampness occasionally). My daily runs are a challenge, but they too are way better than just a couple of weeks ago. As I said, a "step change" around week 10.

So you may be closer than you think. I hope you are. I wonder if you too have sensed that the Kegels, though important, do actually seem to make matters worse for a short time after? 

Personally, I find wearing pads to be uncomfortable. I've just received some washable underpants with little absorbency built in to try.

User
Posted 13 Aug 2024 at 16:24
I found this link on you tube regarding Kegels and to do them correctly https://www.youtube.com/@DrEricLeckie

The big issue with Kegel exercises is knowing you are doing them correctly, this guy shows you how to tell if you are or not and how often to do them to best effect.

 
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