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Does 2 years of HT mean different things to different trusts?

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User
Posted 02 Aug 2024 at 17:34

At the start of our journey, we were told that there would be two years of hormone therapy, and Prostap3 was to be given every 3 months. By our reconning, that meant 8 injections in total, (8 x 3 = 24 months) so, after having the eighth one in June, we didn't make another appointment for any more, as we have done previously. Yesterday, after we enquired about the end of treatment, we found out that he is still to have another one, meaning a total of 27 months in his system. We have kept and checked all correspondence, and nowhere on any of the letters or emails, does it mention the number of injections. The email telling him that he is due another in September reads;

"You attended on 08/09/2022 for your first injection at WWL hospital and were for a total of 2 years of injections. If this is a 3 monthly injection, you should have your final injection in September 2024."

Do all Trusts consider 2 years of HT to equal 9 three monthly injections, meaning 27 in the system, or does it differ?

Thanks in advance.

Elle x

 

User
Posted 03 Aug 2024 at 00:07

I don't have a high opinion of admin departments, they miss off less than signs, they get dates wrong, the list goes on.

I was on two years zoladex and that is a 12 week injection, so four of those is 48 weeks. About a month short of a year. So to get a full two years you need nine injections and that is two years and four weeks of zoladex in your system. 

Prostap is a 3 month injection, which is about 13 weeks. 4 of them is 52 weeks which is more or less one year.

So I think your maths is about right. If you really want an answer you will have to ask the oncologist, if prostap is available as a one month dose see if you can get one of those instead of the three months dose.

Dave

User
Posted 05 Aug 2024 at 17:24

Hi, 

I've found that periods of time are never what is said at many NHS clinics.   For me the biggest concern has been whether it's good for it to be shorter or longer.   

This morning my 6 monthly Glaucoma Check came through as 5 months although there are 20 options, the last one being 5 months 3 weeks so I took that although after 5yrs of monitoring as stable and not having Glaucoma I think it could go longer.

Is having an extra dose better or worse?  I can only think it's better in the short term but perhaps not if you ever have to take it again as it might mean it doesn't work as well. That might not be right, I don't know but it would be my question.   All the best, Peter

 

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User
Posted 02 Aug 2024 at 18:15
I was on Zoladex for 3yrs, when it was coming up to the last implants I remember finishing or having last implant in June 2018 when it should, mathematically, been the penultimate one. Oncologist said as implant 'lasts' 12 weeks that will make up 3yrs ADT. I didnt have any complaint one way or another.

Peter

User
Posted 03 Aug 2024 at 00:07

I don't have a high opinion of admin departments, they miss off less than signs, they get dates wrong, the list goes on.

I was on two years zoladex and that is a 12 week injection, so four of those is 48 weeks. About a month short of a year. So to get a full two years you need nine injections and that is two years and four weeks of zoladex in your system. 

Prostap is a 3 month injection, which is about 13 weeks. 4 of them is 52 weeks which is more or less one year.

So I think your maths is about right. If you really want an answer you will have to ask the oncologist, if prostap is available as a one month dose see if you can get one of those instead of the three months dose.

Dave

User
Posted 05 Aug 2024 at 17:24

Hi, 

I've found that periods of time are never what is said at many NHS clinics.   For me the biggest concern has been whether it's good for it to be shorter or longer.   

This morning my 6 monthly Glaucoma Check came through as 5 months although there are 20 options, the last one being 5 months 3 weeks so I took that although after 5yrs of monitoring as stable and not having Glaucoma I think it could go longer.

Is having an extra dose better or worse?  I can only think it's better in the short term but perhaps not if you ever have to take it again as it might mean it doesn't work as well. That might not be right, I don't know but it would be my question.   All the best, Peter

 

User
Posted 06 Aug 2024 at 14:55

Problem sorted!

The person who said he was due another had got it wrong.

8 injections DOES equal 2 years!

Elle x

 
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